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A DAY IN THE LIFE OF FYBROMYALIA

Posted , 7 users are following.

laura11452
laura11452

Hi all

So getting out of bed and walking around is a major effort..Thank God the house isn't on fire or I would look like burnt breakfast..OOh forgot to mention have headache and nausea and yes feel exhausted and have only woke up.

You think your having a good day and your energy is soaring to the point you feel you could walk for miles, clean the house from top to bottom, revamp the garden, decorate the house..

So off you go enjoying that you are able to do more than normal.. Having coffee inbetween ( well i do)..Having the feel good factor that your achieving so much today..WOW GO ME

OOPS you have spilt your coffee on the floor..So you get on your knees to clean it up..But how the heck am I going to get up again?? Even the thought of trying to get up is a struggle.. The pain and stiffness is unbelievable..My face is so distorted from the effort I know for sure this could be a Youtube hit for ugly..

Anyway off you go continuing with your day and this heaviness in your head won't go away and you are starting to feel weak and tired..

Go on have another coffee..Take a load off ( rest)

Just started to gut out a room and mess everywhere and I feel exhausted..Getting up the stairs is starting to become difficult because my feet and legs ache.. My arms ache and now my hands are starting to get sore..(thank god I can still hold a cup of coffee)

I want to rest in a chair to get my mojo back to do some more, but my neck and back or aching so not feeling comfortable to rest..The heavniess in my head is getting worse so I have to lie down because Iam exhausted..At this point all appointments canceled. But you get a phone call you have won a million pounds and it has to be collected now or you lose it..Guess we all know what happened to that lol..

So I wake up after my nap and WOW I still feel exhausted and cannot think straight. Not forgettng I feel like I have been hit by a bus now aching from top to bottom..( Get me my coffee pleaseeee ).. Oh that's right I live on my own..

I want to finish the room I have started to clean and now I am trudging and having to stop and start.. I have lost my mojo and feel like someone has popped me like a balloon and all the energy has left me..

I ache all over, feel weak, my head feels like I am zoned out, every move is a big effort, I break out in random sweats, I am frustrated, I feel like 90 years old, now I am crying where is my life??.. NO I DON'T WANT A COFFEE.. 

This was a good day in the life of Fybro ( you all know the rest) 

5 likes, 162 replies

162 Replies

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  • trisha87499
    trisha87499 laura11452

    Posted

    That's my position at the moment Laura, I have a grandson whom I adore, he is 3 and I want to do so much more with him, but my daughter in law brings him up here at least 2 or 3 times a week, and I make sure I have some energy to play with him, she makes sure it's only maybe an hour or 2, she is a diamond. So try and not worry, something will get worked out for you as well. And I also treat going to the hairdressers as a chore, I've got to wait until I'm desperate, and then plan it out. The more we all share the better it makes you feel because you realise there are loads of us out there, living the exact way and can totally get each other, it's like a little club.

    it makes me feel content, it's okay to feel the way we do. No more guilt.

    • Magpie2me
      Magpie2me trisha87499

      Posted

      I remember something Oprah said years ago. She said no matter how we may feel on any given day, to take time to put on even a little mascara. It makes us feel a little better. I believe that Oprah herself has struggled with depression. Most nurturers have suffered in their peronsal lives and want to make others feel their worth. But that lesson: of Taking time for ourselves to get our hair done or do our nails or get a massage or take a long soak in a tub; those things are part of nurturing US. It should not be a chore for us or a guiltfest! It is usually because we feel overwhelmed, that even going to get our hair cut becomes almost a burden. That should be a signal that we are doing too much or our expectations are out of control. We are worried or loaded down with some stressful thoughts often involving a situation of which we usually do not have much control over. Did you ever notice how jumbled our thoughts get at times. All kinds of things coming into our minds even on just awakening in the morning. It is ridiculous at times. That again is anxiety and stress. That is why I find writing things down in a journal helps get these worries out of our heads and under control with a more rational outlook. We are basically worry worts! We build things up in our minds in no time flat. Learning methods to control worry and these automatic thoughts, is a tremendous help in reducing stress.
    • laura11452
      laura11452 trisha87499

      Posted

      Lol I thought I was the only one that had a problem with hairdressers.. I have long thick hair and trust me they hate to see me coming lol..I am chore for them..Makes it worth the money when it comes to my hair lol..

      Brilliant your daughter in law is understanding and yes if my daughter has children I will know to pace myself..

      Yes.. no more guilt your doing the best you can everyday and it takes a lot to keep going at times..Now that takes courage..Power to women who go through so much and still keep going. YEEHAA

    • trisha87499
      trisha87499 laura11452

      Posted

      The only other thing is to lie down and make yourself and everybody around you the same. Bring it on lol
    • Amanda_Awake
      Amanda_Awake trisha87499

      Posted

      It's so good that you have a daughter in law that thinks like that. My daughter does not really understand my fibro and still asks me to babysit.

      I am going to make an effort to not feel guilty too!.

      I will show myself the concern I show everyone else (and they are not ill  lol)

      I might even get used to it !!

       

    • trisha87499
      trisha87499 Amanda_Awake

      Posted

      That's the attitude because then when you do see your grandchildren it's under your terms, you girl
    • Amanda_Awake
      Amanda_Awake trisha87499

      Posted

      Oh by the way..haircuts!  I have, to my shame been so fatigued and in a couldn't care less mode that I have allowed my hubby to cut my hair !!!

      I said just cut it in a straight line across my back and tidy it up ..lol

      It turned out OK ...I hope I dont end up going the whole Brittney Spears style tho..lol..it would save a lot of money and energy tho!!

    • trisha87499
      trisha87499 Amanda_Awake

      Posted

      Last time I went to hairdressers I got my long hair that I've had for life cut up to my chin so that there would be more time for me before I have to go back, is that forward planning or what? Lol but everybody walks by me , they don't recognise me and my family just didn't mention it, that's when I know they don't like it 😆
    • Amanda_Awake
      Amanda_Awake trisha87499

      Posted

      Silence speaks volumes..lol 

      My daughters think I am mad letting him loose on my hair..but I was just too tired to care. I thought it was fine anyway!

    • trisha87499
      trisha87499 laura11452

      Posted

      Just don't do what I did, I went totally unrepairable short, go half first then if you like it then shorter you go. Lol😚
    • laura11452
      laura11452 trisha87499

      Posted

      To be honest my hair has been that long for most of my life i am not sure I would be as brave as you.. But would like a change to manage it better.. My hair would do three heads lol
    • trisha87499
      trisha87499 laura11452

      Posted

      My stylist just got me at a weak moment, she said I made her day, pity, when I got home and had a closer look I still remember my word Why? And oh no?
    • laura11452
      laura11452 trisha87499

      Posted

      lmao..My stylist knows when she sees me that it must be a Christmas gift from my daughter
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