A DAY IN THE LIFE OF FYBROMYALIA

Posted , 7 users are following.

Hi all

So getting out of bed and walking around is a major effort..Thank God the house isn't on fire or I would look like burnt breakfast..OOh forgot to mention have headache and nausea and yes feel exhausted and have only woke up.

You think your having a good day and your energy is soaring to the point you feel you could walk for miles, clean the house from top to bottom, revamp the garden, decorate the house..

So off you go enjoying that you are able to do more than normal.. Having coffee inbetween ( well i do)..Having the feel good factor that your achieving so much today..WOW GO ME

OOPS you have spilt your coffee on the floor..So you get on your knees to clean it up..But how the heck am I going to get up again?? Even the thought of trying to get up is a struggle.. The pain and stiffness is unbelievable..My face is so distorted from the effort I know for sure this could be a Youtube hit for ugly..

Anyway off you go continuing with your day and this heaviness in your head won't go away and you are starting to feel weak and tired..

Go on have another coffee..Take a load off ( rest)

Just started to gut out a room and mess everywhere and I feel exhausted..Getting up the stairs is starting to become difficult because my feet and legs ache.. My arms ache and now my hands are starting to get sore..(thank god I can still hold a cup of coffee)

I want to rest in a chair to get my mojo back to do some more, but my neck and back or aching so not feeling comfortable to rest..The heavniess in my head is getting worse so I have to lie down because Iam exhausted..At this point all appointments canceled. But you get a phone call you have won a million pounds and it has to be collected now or you lose it..Guess we all know what happened to that lol..

So I wake up after my nap and WOW I still feel exhausted and cannot think straight. Not forgettng I feel like I have been hit by a bus now aching from top to bottom..( Get me my coffee pleaseeee ).. Oh that's right I live on my own..

I want to finish the room I have started to clean and now I am trudging and having to stop and start.. I have lost my mojo and feel like someone has popped me like a balloon and all the energy has left me..

I ache all over, feel weak, my head feels like I am zoned out, every move is a big effort, I break out in random sweats, I am frustrated, I feel like 90 years old, now I am crying where is my life??.. NO I DON'T WANT A COFFEE.. 

This was a good day in the life of Fybro ( you all know the rest) 

5 likes, 162 replies

162 Replies

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  • Posted

    Ok girls Iam beginning to think what the heck !! Whales?? Easters eggs?? Being chased by by greens?? REALLY???

    Well I dreamt there was a dead body under my floors and no-one would believe me..Now that more realistic lmao

    • Posted

      A little bit of humour doesn't hurt anyone does it, especially if your life is quite hard lol
    • Posted

      Same here, I sat watching Jack Whitehall stand up, something I wouldn't normally watch, my son was there and he said that it was the most normal he had seen me look and laugh, he said he had missed it. So if I can get those reactions comedy is the way to go. What would we do Laura if we didn't laugh? I agree with you totally
    • Posted

      Same here, but I try to do a little bit more now even if I'm not leaving house. Order pizza, a funny film and lie on the sofa on a Saturday, love it. It's not much to a lot of people but to me it's like one of my medications. Xxx
    • Posted

      Well if we are going there, Michael buble serving me the pizza would that be possible? Mmmmm the thought, he would literally be scared witless lol
    • Posted

      Hi girls. Yes laughter is a healing gift. Life can be pretty serious most times, so to have those moments to find some joy, is very beneficial to everyone. I watch a comedy often and I stay away from all the dramas. Life has enough dramas to deal with already. Why would I watch things that tense me up or frighten me? It just does not make sense to me. As far as I am concerned, that is not entertainment. Yet that is what is mostly offered up to the public today. Murders, violence, even in Sy Fy. I find that we FM ones, do not do well with tension of any kind, even in entertainment. Our nerves have had enough tension over the years which often got us where we are today. We don't need to be tested anymore, we know we have been strong facing life.  So I try to stick to upbuilding themes. Not many out there but I do have my stash of videos. I love the movie The Parent Trap, or Maid in Manhatten, Jane Austen movies, you know, in those type themes. I even like the animated stuff from Disney. Stuff that makes you come away feeling refreshed. My husband has a dry sense of humour and even thought he irritates me at times, he makes me laugh and that is like you say, good medicine. 
    • Posted

      Exactly, I say if you don't laugh you'll have yourself for company for a lot of your time, nobody wants to sit with someone who although I'm suffering I do what I can, when I can, it's took most of everything else from me, it's not taking my sense of humour to. Xxxx

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