A diagnosed after 20 years

Posted , 3 users are following.

i has to share some exciting news. my CfS has been confirmed.

ive seen a specialist after my doctors referral, she was amazing, and out of the 8 symptoms i had 7! I took my mum for moral support and so glad i did as she was able to hear that im not a hypochodriact like everyone thought.

The specialist has dated me having cfs since glandular fever exactly 20 years ago. Ive had 2 operations thinking my symptoms was endometriosis.

ive got an activity plan which i have to follow and its Really tough because its changing the habits ive had since i was a teenager, im such an active person, always on the go and now told to slow down. However I am willing to try anything as long as I can manage these symptoms for the rest of my life.

Keep going everyone.x

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  • Posted

    Hi Caroline. That is fantastic news. So pleased for you.

    what are your 7 symptoms?

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    • Posted

      Thank you.

      Most of these we just put down to it being "a Caz moment"!!

      • Clumsiness
      • Forgetfulness
      • Difficulties with pincer grip
      • Fatigue
      • Leg & finger Spasms
      • Over sensitive to noise (even at a "normal" level)
      • Pains in my joints and muscles
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