A diagnosed after 20 years
Posted , 3 users are following.
i has to share some exciting news. my CfS has been confirmed.
ive seen a specialist after my doctors referral, she was amazing, and out of the 8 symptoms i had 7! I took my mum for moral support and so glad i did as she was able to hear that im not a hypochodriact like everyone thought.
The specialist has dated me having cfs since glandular fever exactly 20 years ago. Ive had 2 operations thinking my symptoms was endometriosis.
ive got an activity plan which i have to follow and its Really tough because its changing the habits ive had since i was a teenager, im such an active person, always on the go and now told to slow down. However I am willing to try anything as long as I can manage these symptoms for the rest of my life.
Keep going everyone.x
0 likes, 4 replies
Beverley_01 caroline_74621
Posted
Hi Caroline,
Can hear the relief in your message! Fantastic you got the answer after all this time.
Hope the activity plan helps too.
Beverley
caroline_74621 Beverley_01
Posted
Thank you Beverley.
Not going to dwell on it, I'm way to positive for that but now can start to change my habits and routines to fit around life.
Jadakink caroline_74621
Posted
Hi Caroline. That is fantastic news. So pleased for you.
what are your 7 symptoms?
caroline_74621 Jadakink
Posted
Thank you.
Most of these we just put down to it being "a Caz moment"!!