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Afternoon everyone, I'm a 36 year old male who had shingles over 13 years ago and have had chronic PHN ever since. I've tried/tested just about everything out there for the pain management. I've found (my wife found) a research Doctor that has been studying the VSV virus at length and has some new things on the horizon.
Currently I've been on massive doses of anitvirals as genetic testing shows that my immune system responds differently than it should to the shingles virus. There's a few things that could be happening, I have chronic shingles that isn't breaking through the skin and the nerves are never able to heal, my immune response is about 100 times what it should be when the virus is active causing painful inflammation, and another option is, the virus has actually changed the nerve receptors. The last one is the latest they've come across...in my understanding (I'm at a toddler level of medical knowledge), there are two types of receptors in nerves, ones for pain and the other for when the nerve/muscle stretches, they're thinking that the stretch response some how changes and now causes pain.
Just wanted to let you all know that there are some great doctors out there working on this! I've been a guinie pig for a while now but it's nice when there is actually some form of positive outlook :D Always happy to communicate with anyone about my experiences as well.
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