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A.L.C.A.P.A. (Anomalous Left Coronary Artery From the Pulmonary Artery)

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babybrowns
babybrowns

hi has anybody hurd of A.L.C.A.P.A. (Anomalous Left Coronary Artery From the Pulmonary Artery) as i was born with it and would love to talk to someone who knows aabout it.

1 like, 22 replies

22 Replies

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  • bobfr636
    bobfr636 babybrowns

    Posted

    You should google "heart" to get an idea what it is. I did that and learned some about the heart. 

    Apparently the used blood from the body goes into the right atria from which it goes into the right ventricle. Then it goes into the lungs to get it oxigenated. from the lungs all of the blood (as a norm) goes back into the left atria of the heart through the pulmonary arteries (there is one from each lung). From the left atria it goes into the left ventricle during the diastole. Then during the next systole it gets pumped into the body through the left and right large blood vessel from all arteries including the left and right coronary arteries  -as a rule- among all other places. In your case your left coronary artery comes directly from the left pulmonary artery (from the lung) instead from the heart's left ventricle. That is an anomaly - an unusual occurrence.

     I tell you it is fascinating to google all that. Don't forget to google the Wigger's diagram (www.wiggers diagram.png) for timing of which chamber does what and when. Fascinating. Don't forget it IS YOUR heart and you should be interested in (some part of) yourself. Shouldn't you?   

    • babybrowns
      babybrowns bobfr636

      Posted

      bob i know what it is ive reseached it all my self . i was just wondering if anybody new anybody that had had the same condition.
  • ashley63091
    ashley63091 babybrowns

    Posted

    Hi

    I was born with alcapa too. I have always wanted to find someone who was born with the same. How old are you if you don't mind me asking? Have you experienced any problems since your surgery?

    • babybrowns
      babybrowns ashley63091

      Posted

      hi im 47 omg finally someone that has had it also. ive suffered all my life with it like breathing difficulties ect.  i was only operated in jan 2012 just after my 45 birthday at papworth by Mr Large.

      i was okay and felt great after for 6 months but since then in and out of hospital again now my heart is in af.

      how old are you.?

      i have 3 children 19 megan, 17 chloe, 13 kieran.

      megan gets fast heart rate bt they said that she could not have what i had which gets me as from the age of 12 my mum had me going through all the normal test like 24 hour monitors and they just said i had pulpertation.

      when did you have your opp and at what age.?

      i was told if mine was left another week or so that i would of died so if not for me pushing and going in and out of hospital i dont think i would be here so very lucky. at one point my heart rate went up to 230 bpm. very frieghtning.

      julie <3>

    • babybrowns
      babybrowns ashley63091

      Posted

      sorry i never replyed earlier but i never ever thought that i would find anybody whom has had it as well. im so pleased that i can now talk to you ashley.

      have to ask are male or female as i know ashley can be both. sorry had to ask.

      redface

    • stephanie82448
      stephanie82448 babybrowns

      Posted

      Thankfully they found it when they did. I thought it was something that was diagnosed in babies. The doctors diagnosed my daughter Shannon's just in time also. If they hadn't her organs would have started failing.
  • stephanie82448
    stephanie82448 babybrowns

    Posted

    My daughter was diagnosed with this at 2 months old and had surgery a few days later. She is now 16 years old. If there is anything I can help you with let me know.
  • stephanie82448
    stephanie82448 babybrowns

    Posted

    I have also never met anyone else that was diagnosed with alcapa, thank goodness, because I wouldn't want anyone else to have to go through what we did 16 years ago.
    • babybrowns
      babybrowns stephanie82448

      Posted

      hi im 47 omg finally someone that has had it also. ive suffered all my life with it like breathing difficulties ect.  i was only operated in jan 2012 just after my 45 birthday at papworth by Mr Large.

      i was okay and felt great after for 6 months but since then in and out of hospital again now my heart is in af.

      how old are you.?

      i have 3 children 19 megan, 17 chloe, 13 kieran.

      megan gets fast heart rate bt they said that she could not have what i had which gets me as from the age of 12 my mum had me going through all the normal test like 24 hour monitors and they just said i had pulpertation.

      when did you have your opp and at what age.?

      i was told if mine was left another week or so that i would of died so if not for me pushing and going in and out of hospital i dont think i would be here so very lucky. at one point my heart rate went up to 230 bpm. very frieghtning.

      julie <3>

    • ashley63091
      ashley63091 babybrowns

      Posted

      I'm a girl haha and I'm 24, 25 in a couple of months.

      I had my surgery at 5 months old, I now just go for yearly checkups at the hospital

      I can't believe I have found not one person but two people now who have the same. I thought I was alone. It does make me panic sometimes when I start to google about what it is that I have wrong with me. I'm also glad you have had children as I was worried I wouldn't be able to ever conceive

      So scary that if you hadn't of kept going to the hospital you could have died.. I think your amazing you have lived to that age without any surgery

      Ashley x

    • ashley63091
      ashley63091

      Posted

      Stephanie...

      Has your daughter suffered any problems since having her surgery or does she live a normal life?

      Ashley x

    • babybrowns
      babybrowns ashley63091

      Posted

      hi had my children with alcapa you still a young lady had my boy at 35.

      do you have any problems now ? were was you operated on ?

      im in the medical books for papworth as they could not beleive that my heart had survived so long.

      so happy to find you are you on facebook if so would you add me my full name julie greenwood.

      would love to talk more.

    • ashley63091
      ashley63091 babybrowns

      Posted

      I was operated on at Birmingham by Bill brawn I think he's called. I'm pretty sure he has retired now.

      Just looked on Facebook and there is so many Julie greenwoods.. What's your profile picture or cover photo like?

    • stephanie82448
      stephanie82448 ashley63091

      Posted

      Thankfully she lives a normal life. She is very active, never sits still. She plays sports in school. She see's her cardiologist every 2 years. We have had no problems since she had her surgery 16 and a half years ago. She had her first stress test a few years ago and passed with flying colors.
    • stephanie82448
      stephanie82448 ashley63091

      Posted

      I'm so glad I have found others with ALCAPA also. Like you I have never known anyonethat has been through this. 
    • ashley63091
      ashley63091 stephanie82448

      Posted

      Yeah I live a normal life too. I go every year for check ups, sometimes I go every two years.

      Im very active too having horses and I did go to the gym everyday until I collapsed in January after a pt session. So now I'm waiting for a ct scan to make sure what happened in the gym wasn't to do with my heart. I went on Monday to the hospital and said heart looked fine but just to make sure they are sending me for ct.

      What did your daughter have done in her surgery? From looking online I think there is a couple of ways it can be fixed

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