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Hi all, I am new to this group, looking for some advice/supports, felt frustrated.
My period is regular, no pain or severe bleeding, I do exercise regularly, can run 10 miles. I consider myself rather healthy until I felt a lump in my tummy, went to GP, referred ultrasound, confirm fibroid, back to GP, referred to a consultant at a local hospital. The drama started.
the first consultant only read my GP's letter to me during the meeting, literally, reading nearly everything from the computer screen, gave me a leaflet, referred me to MRI. job done. MRI shows a large subserosal fibroid arising from the right side the uterus, measuring 95 x 80 x 92 mm.
I don't feel confident with the first consultant so I asked the clinic to arrange my appointment with another consultant.
The second consultant reviewed treatment options and made another appointment with me to see what treatment I would like to go, also saying she will discuss at MDT as I asked keyhole surgery instead of incision.
I went 3rd appointment at the clinic, the consultant was asking me how was my surgery. I was very embarrassed! it seems she thought I am somebody else?? During our conversation, I don't think she has discussed my case at MDT at all, but she pretended she did. I decided to follow her suggestion as the fibroid is quite huge, keyhole surgery maybe not sufficient. I had pre-assessment done on the same day. So I thought I was on the waitlist for a surgery. a consent form was given. She said the surgery will use local
anaesthesia, recovering time is 2 weeks, all middle-aged female doctors doing the opp.
However, a few days later, I suddenly received another phone call from the clinic saying, another appointment has arranged, the girl saying, they have another consultant, who is going to do the opp, to see me because the second consultant is not doing the opp. The girl also advised me my opp date.
When I went the appointment, the new consultant is a male doctor. He seems no idea what my problem is. He asked all questions which I already discussed with the previous consultant. He tried to persuade me to take Esmya before opp. I denied it when the second consultant advised this drug. But he was not happy when I said "no", he said that is the drug to shrink fibroid before opp, if the fibroid is too big, the incision could be vertical, not horizontal. He also said general anaesthesia for the opp, the recovery period is 6 weeks, he doesn't even know I have done pre-assessment. He kept looking his mobile, even answered a phone call, it sounds a junior colleague called him up in the theatre looking for help. He said over the phone, " read the lecture, have a coffee, the clinic is overbooked. I got another patient." I finally agree to take the drug, but I went to the pharmacy, they told me the drug is out of stock, the consultant needs to prescribe an alternative drug. I have to go back to the clinic even I knew he is gone to see the junior colleague. The receptionist took notes saying to email him and his secretary. 3 days later, nothing happened. I went to the clinic again, the receptionist said nothing heard from the doctor. She rung the doctor, his secretary answered it, I have spoken to the secretary, ask her "how can a doctor prescribe drug out of stock", she advised me someone will give me a call.at this moment, I have completely lost my faith in NHS doctors. I am deeply in doubt if they can take care of me, should I opt out the surgery? My main concern is the fibroid is too big, could become bigger, and gradually I feel more dull pain in my tummy. I read something, the fibroid could be twisted and make a fetal harm to the uterus. After all unpleasant experience with NHS, I really hesitated to go further. But I don't want to take pills too. I am very sensitive to drugs, I am worried about the side effects of drugs for the treatment. Should I complain to the local hospital? Should I go ahead the surgery? so frustrated now.....help, please.
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