A little confused!

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Hello, 

I just wanted to tsrat off by saying that I am extremely gratfeful for all of the wonderful advice that I have been given on this discussion board. I dont know what I would do without this! 

I am a little confused because the doctor that I had seen (I am in the process of finding a new doctor) had briefly told me to put on Dermol 500 lotion, Cetraban Lotion, and then Clobetasol- in that order? Is this correct? Also, she did not mention how long I should wait inbetween each application. If anyone could provide me with some advice on that- it would be very helpful! 

A few days ago I posted about feeling worries about applying clobetasol cream on what I have left of my labia. Since the skin is thinned out, should I still apply the ointment on this area. I have been applying clob on the skin that has fused over my clitoris. I had sent the doctor I had seen a few days ago about where I should EXACTLY be applying the clob and her response was 'on the affected areas' (that was extremely helpful.....;/) Thanks so much for all of your responses! I really appreciate it!!

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6 Replies

  • Posted

    Hiya nicole...I am not that long diagnosed myself although I think I have had this condition much longer than what I realise.

    I am 71 and not even heard of LS until this year.

    It's a vague condition and we get a lot of vague instuction from the medical profession.

    The most helpful suggestions come from fellow suffferers such as those on this site.

    As far as I can tell the best method if possible is to soak the affected area in a sitz or portable bidet for 20 mins to soften the tissues, pat dry then massage in the steroid leaving it at least approx.30 mins before applying a mosturizer or barrier cream.

    At the present time I have stopped using a steroid as I have no irritation and have never had an itch.

    I do soak every other day in a sea salt solution then use a barrier ointment to keep internal moisture in and external moisture out.

    If I start to get any inflammation I will use the steroid to get things under control.

    I do use dermol for washing with and it can be a cooling lotion as well for irritation.

    I also have Cetraban cream but I prefer to use that as a moisturizer for my eczema.

    As for affected areas.... not sure how exacting that is as each regards it differently.

    I would say anywhere that displays inflammation and mutilated architecture is a result of inflammatory cell changes.

    We do try to learn from one another and every now and then some new idea pops up.

    Good luck with your progress. 

     

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  • Posted

    Hi Nicole,

    I have to day I've never heard of anyone being told to put the steroid cream on last !!! Having said that I have read in here from several sources that at least 30 mins should be left between steroid and moisturiser so presumably that would do you too ?.

    Re where to apply. I had white areas all over the place from top of labia to either side of the anus. After a month of daily application and a month of every other day I now only have 1 little bit over the clitoris/urethra area. I am using it every other day on that day only until it goes and on the rest a maintenance of once a week.

    I'm always banging on about this but were you told to rub in the steroid for 90 seconds ? That is SO important. . Hope some of this helps

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    • Posted

      Hello Caroline, thank you for your response! Does this mean that I should apply the moisturiser first and then put on the ointment ?? I am glad to hear that the white spots have mostly cleared. This is what I am hoping for as well!

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    • Posted

      Well , I put on steroid first on the one part, moisturiser on the rest of the areas then half an hour later put on the barrier cream. I think most people use this method Nicole.
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  • Posted

    Nicole, I use the ointment which in my case is Advantan fatty ointment at bedtime which allows it time to work well. So, in the morning or during the day you can use the other creams that moisturise.

    I do not soak as my specialists have advised against that.

    I am lucky as I have good doctors looking after me.

     

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  • Posted

    Nicole, I have read that you can either put the ointment on before or after the steroid. But wait 30 min. at least before applying the second.  I can't remember where I read this, but I remember I surprised also .
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