A lot of health issues. In desperate need of help.

Edited , 6 users are following.

Hi. I have some issues I have to address. I am here because I have no other idea what else I can try and am pretty desperate.

MONO:

  • Before I was 10
  • Intravenous treatment

LYME:

  • when I was 18 years old
  • 3 weeks in hospital
  • IGM+IGG affected
  • IV+antibiotics intravenous
  • DOXYCYCLINE for 6 months - 600 mg 3x/ day
  • Was diagnosed after many doctor visits due to tiredness, fainting, bruising, hand tremor, headaches.
  • Have seen neurologist, infectious disease specialist etc

**POLY-CYSTIC OVARIES:

  • Had 3 treatments
  • Discovered when I was 19-20
  • Last treatment was the pill
  • First time I started the treatment the bleeding didn’t stop for more than 3 weeks and had doctors intervene and offer emergency treatment (pills and a liquid that I had to drink)

IRREGULAR MENSTRUAL CYCLE:

  • First time when I was 12
  • Approx. once every 3-4 months
  • Times when there was just spotting
  • Times when it was just dry and old blood

TOO MUCH TESTOSTERONE (as per tests done)

HEADACHES:

  • Started when I was 8 - 10 years old
  • almost every day, going to sleep did not help
  • Acute pain mainly in my right temple up until I was about 23
  • Since then it’s somewhat less and not just my right temple but entire head and behind the eye (not always the same one)
  • Used to take KETONAL or other painkillers
  • Had MRI without contrast when I was 15-16 years old
  • Told I was a woman and that it’s natural for women to have headaches
  • Moments when the pain was so bad I just wanted to end it (yelling+crying)

MARCH 2020:

  • While I was sitting on the couch about to have an ice cream my partner came in:
  • Dizziness (could not move or stand up; like a spinning sensation)
  • Decreased eye movement
  • Headache on both sides - Severe intensity
  • Nausea
  • Loss of consciousness multiple times (duration less than 30 seconds)
  • Skin flushing and burning up ( I was undressed of my blouse by my partner)
  • Cold arm
  • Tingling and numbness in my lower right arm
  • Impaired coordination
  • Decreased physical coordination
  • Slurred speech
  • Hearing difficulties
  • No confusion to cause the loss of consciousnesses being used to the fainting sensation
  • Muscle weakness; body and face
  • Palpitations (heart and throat)
  • Seen a doctor next morning still being dizzy and dismissed pretty much all I explained and said I have LABYRYNTHITIS
  • Brainstem stroke?
  • Haemorrhagic stroke?
  • Stroke?

SKIN SENSITIVITY:

  • Face skin sheds all the time (had treatments)
  • Stretch marks: started when I was 2-3 years old, doctor saw me and said he had never seen something like this but didn't know how to help. I gained 30+ kg when I was 21 and I got full of real stretch marks
  • Belly skin very thin and I can feel it tearing apart and stinging when I put pressure
  • Feet skin very sensitive (blisters appear every time I walk more than 10-15 minutes; have comfortable shoes – blisters on the ankles and toes)
  • Sensation of skin/muscle tearing on the bottom of my feet

HAIR LOSS:

  • More than half of my hair has fallen in the last half year
  • Bleached it when I was 18 and then only used hair tint – NO DYE
  • Bleached it 4 times since I was 18 (last time was in 2018)
  • Each time I shower I take out a hand full of hair easily
  • No straighteners or other devices used
  • Dyed last time in the summer of 2019 without bleach
  • Treatments:
  • Special shampoos and conditioners
  • Aloe vera
  • Argan oil
  • Coconut oil
  • Ginseng
  • Placenta
  • Onion juice
  • Bottles water
  • Ricin
  • Marijuana conditioner + shampoo
  • Egg yolk +olive oil

VERY THIN NAILS

TOE NAILS (falling every few months)

JOINT PAIN AND CRACKLING

TIREDNESS (all the time)- There was an episode when I woke up and although I had a full night of sleep I got up had a glass of water, and went straight to bed and slept until 4 PM

  • Didn’t go to work and couldn't even call anyone to announce

SWOLLEN GANGLIONS (very often since I was a child)

MOOD SWINGS:

  • Had a time when I had horrible thoughts without any reason
  • Getting angry very easily
  • Crying for no reason

HORRIBLE SLEEPING PROBLEMS:

  • Since I was a child I was a sleepwalker (talking and moving)
  • Dreaming every night and remembering all (thus more tired)
  • My dreams have no connection to the reality (most times)
  • INSOMNIA (taking sleeping pills only helps for a few days, at present only taking half a pill called IMOVANE)

USUAL:

  • Chest pain from time to time
  • Palpitations every few days
  • Dizziness
  • Acid reflux (ever since I was diagnosed with LYME; nothing helps to get rid of it; had different treatments for intestinal flora)
  • Heart burn
  • Bloating
  • Tiredness (all the time)
  • Headaches about once a week

Thank you for taking the time.

1 like, 5 replies

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5 Replies

  • Posted

    Oh dear Have you tried having a conversation with a professional about it to see what help they can recommend or advise

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  • Posted

    have you had your vitamin levels checked? it might not be that, but I've heard of people with b12 deficiency or vitamin d deficiency who have a lot of similar symptoms to you. Worth checking anyway. if your doctors won't do it, you can get your levels checked easily through an online company where you send a finger pick blood sample off and they do the rest.

    all the best

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  • Posted

    Wow that really sucks, hope you get better. You do need to see a medical professional in person which might be difficult due to lockdown but it's the only way.

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