A lot of health issues. In desperate need of help.
Posted , 6 users are following.
Hi. I have some issues I have to address. I am here because I have no other idea what else I can try and am pretty desperate.
MONO:
-Before I was 10
-Intravenous treatment
LYME:
-when I was 18 years old
-3 weeks in hospital
-IGM+IGG affected
-IV+antibiotics intravenous
-DOXYCYCLINE for 6 months - 600 mg 3x/ day
-Was diagnosed after many doctor visits due to tiredness, fainting, bruising, hand tremor, headaches.
-Have seen neurologist, infectious disease specialist etc
**POLY-CYSTIC OVARIES:
- Had 3 treatments
-Discovered when I was 19-20
-Last treatment was the pill
-First time I started the treatment the bleeding didn’t stop for more than 3 weeks and had doctors intervene and offer emergency treatment (pills and a liquid that I had to drink)
IRREGULAR MENSTRUAL CYCLE:
-First time when I was 12
-Approx. once every 3-4 months
-Times when there was just spotting
-Times when it was just dry and old blood
TOO MUCH TESTOSTERONE (as per tests done)
HEADACHES:
-Started when I was 8 - 10 years old
-almost every day, going to sleep did not help
-Acute pain mainly in my right temple up until I was about 23
-Since then it’s somewhat less and not just my right temple but entire head and behind the eye (not always the same one)
-Used to take KETONAL or other painkillers
-Had MRI without contrast when I was 15-16 years old
-Told I was a woman and that it’s natural for women to have headaches
-Moments when the pain was so bad I just wanted to end it (yelling+crying)
MARCH 2020:
-While I was sitting on the couch about to have an ice cream my partner came in:
-Dizziness (could not move or stand up; like a spinning sensation)
-Decreased eye movement
-Headache on both sides - Severe intensity
-Nausea
-Loss of consciousness multiple times (duration less than 30 seconds)
-Skin flushing and burning up ( I was undressed of my blouse by my partner)
-Cold arm
-Tingling and numbness in my lower right arm
-Impaired coordination
-Decreased physical coordination
-Slurred speech
-Hearing difficulties
-No confusion to cause the loss of consciousnesses being used to the fainting sensation
-Muscle weakness; body and face
-Palpitations (heart and throat)
-Seen a doctor next morning still being dizzy and dismissed pretty much all I explained and said I have LABYRYNTHITIS
-Brainstem stroke?
-Haemorrhagic stroke?
-Stroke?
SKIN SENSITIVITY:
-Face skin sheds all the time (had treatments)
-Stretch marks: started when I was 2-3 years old, doctor saw me and said he had never seen something like this but didn't know how to help. I gained 30+ kg when I was 21 and I got full of real stretch marks
-Belly skin very thin and I can feel it tearing apart and stinging when I put pressure
-Feet skin very sensitive (blisters appear every time I walk more than 10-15 minutes; have comfortable shoes – blisters on the ankles and toes)
-Sensation of skin/muscle tearing on the bottom of my feet
HAIR LOSS:
-More than half of my hair has fallen in the last half year
-Bleached it when I was 18 and then only used hair tint – NO DYE
-Bleached it 4 times since I was 18 (last time was in 2018)
-Each time I shower I take out a hand full of hair easily
-No straighteners or other devices used
-Dyed last time in the summer of 2019 without bleach
-Treatments:
-Special shampoos and conditioners
-Aloe vera
-Argan oil
-Coconut oil
-Ginseng
-Placenta
-Onion juice
-Bottles water
-Ricin
-Marijuana conditioner + shampoo
-Egg yolk +olive oil
VERY THIN NAILS
TOE NAILS (falling every few months)
JOINT PAIN AND CRACKLING
TIREDNESS (all the time)-There was an episode when I woke up and although I had a full night of sleep I got up had a glass of water, and went straight to bed and slept until 4 PM
-Didn’t go to work and couldn't even call anyone to announce
SWOLLEN GANGLIONS (very often since I was a child)
MOOD SWINGS:
-Had a time when I had horrible thoughts without any reason
-Getting angry very easily
-Crying for no reason
HORRIBLE SLEEPING PROBLEMS:
-Since I was a child I was a sleepwalker (talking and moving)
-Dreaming every night and remembering all (thus more tired)
-My dreams have no connection to the reality (most times)
-INSOMNIA (taking sleeping pills only helps for a few days, at present only taking half a pill called IMOVANE)
USUAL:
-Chest pain from time to time
-Palpitations every few days
-Dizziness
-Acid reflux (ever since I was diagnosed with LYME; nothing helps to get rid of it; had different treatments for intestinal flora)
-Heart burn
-Bloating
-Tiredness (all the time)
-Headaches about once a week
Thank you for taking the time.
1 like, 5 replies
lester90053 mara77198
Posted
You must have left something out.
mara77198 lester90053
Posted
Yes. A lot, trust me. This is not something I can face dealing with every day. Especially sarcasm.
sarajo mara77198
Posted
Oh dear Have you tried having a conversation with a professional about it to see what help they can recommend or advise
john37749 mara77198
Posted
have you had your vitamin levels checked? it might not be that, but I've heard of people with b12 deficiency or vitamin d deficiency who have a lot of similar symptoms to you. Worth checking anyway. if your doctors won't do it, you can get your levels checked easily through an online company where you send a finger pick blood sample off and they do the rest.
all the best
anon32327 mara77198
Posted
Wow that really sucks, hope you get better. You do need to see a medical professional in person which might be difficult due to lockdown but it's the only way.