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A Pat on the Back for Everyone

Posted , 5 users are following.

Bertman
Bertman

 I feel we all deserve a pat on the back from our family and friends, Dealing with this disease is very trying and very difficult to lead a normal life. Normalcy took a big turn when meniere's moved its way in to my life. I personally want to say that I am proud of everyone of you! Taking on meniere's disease is a big challenge, and everyone in this group can relate to the strength and perseverance required to even be able to function a little bit. And with all the uncertainty of whats next, we live in fear. The big thing is that we are all here! Trying to get better, trying new things and doing the best that we can. It is the time for us to pull together, We are only stronger in numbers. 

^^^^^^^^^^^^^^l |^^^^^^^^^^| |

|?    ?      I am Pulling For You !!!!!!!!!!! ? ||”"”;..\___.

|……_______________| l______________l _||__|…, ]

“(@)’(@)”""""""*l'(@)l'(@)l """"""""""""""(@)'(@)""""'(@)

...?......................Bertman……………………………………………..

2 likes, 9 replies

9 Replies

  • jim79476
    jim79476 Bertman

    Posted

    Bergman,

    Yes dealing with Meniere’s is very hard on the suffer, but I have a wonderful supportive wife and friends. She has to deal with Meniere’s also. Driving me to appointments, helping me get to the bathroom when I am really sick and giving me the emotional support when I get really down. I hope we all have people in our lives that we do and should thank for their support. I am thankful for the people I have around me and I try not to take them for granted. 

    Best set to all.

    Jim

  • mary16977
    mary16977 Bertman

    Posted

    I agree Bertman! And this group is part of that support! It's a real blessing.

    All my best wishes to my fellow MD sufferers too! Hang tough, never give up.

    ~Mary

  • christina91807
    christina91807 Bertman

    Posted

    hey again, Bertman!

    Did you get a chance to check out that Facebook group I sent to you? I would love your feedback and thoughts on it. 

    Christina 

    • Bertman
      Bertman christina91807

      Posted

      Hello Christina, I have requested permission to join the group, still pending at this time. I will let you know what I think when i get in and familiarize myself with the group. Bertman 
  • louise98846
    louise98846 Bertman

    Posted

    Hi Bertman,  Your kind words are an encouragement to us all!  Thank you!  It’s so difficult to explain to others what it feels like to have Menieres.  Yesterday, I hosted a dinner party and it took everything out of me.  I look at others and they seem to have so much energy to socialize!  I feel best in the morning but when 3 pm hits I need to lie down! I took up Tai Chi and I find this helps a lot in many ways.  We must be kind and patient with ourselves in areas of our lives that are now affected by this.  My goal is to make it to a support group which is not close by but would be great to actually meet people and speak to them in person.  Will aim for that!  Take care everyone!  
    • Bertman
      Bertman louise98846

      Posted

      Hello Louise, Thank you for your comment, You are correct, Most people have not even heard of meniere's disease, and they have no idea to the effects of the meniere's syndrome. This forces a meniere's patient to become an educator as well. You have a great idea to find a support group that meets in lieu of the disease. I have spoken a few times at the local hospital in behalf of the patients of meniere's, but that's the closest I have came to a support group setting. I used to meet with an ACOA group years ago and I found that to be very beneficial in that situation. I agree, being able to see the individuals that battle this disease would be both rewarding and informative. This is one of these reasons I posted a picture on my profile, that people could put a name to the comments. I am hoping that one of these days others will join me in posting a photo so that we can put a face with the name. I understand your struggles, this disease has took a toll on my social life  I can get out and go but it's not like it was before. When I became confined to wheelchair is was amazed at how many places are not designed to accommodate an individual requiring a wheelchair to ambulate. I have even found difficulty in getting in and out of some of the clinics I visit as a patient. I never really to my shame, thought about handicap people struggling to gain access to a specific facility

      Most all clinics have handicap parking, however the entry door remains a struggle. I have to say also, that sometimes when you park in a handicap parking spot and return to your car you will find that someone has encroached your grid area and can no longer enter the vehicle on that specific side. So as a solution to this problem, both doors on my van can be accessed from either side. I would much rather be a solution, as to be part of my own problem. Anyway forgive me for my keyboard rambling, I am a true motor mouth Lol I am wishing you the best with your daily activities and my the angel of health visit you daily until you are well. 

      Bertman      

  • louise98846
    louise98846 Bertman

    Posted

    Hi Bertman

    Thanks for your message!  I’m sorry that you require a wheelchair but you seem very positive in light of all the struggles.  Yes, you are right about people having never heard of Menieres.  I usually get a blank stare which is fine as I never knew about it either until I had it!  Many also think it’s something you get and then it goes away.  I have a Bicros hearing aid.  The Audiologist told me that I was his first Menieres patient in his 40 years of practice.  It seems to help me, as I’ve lost most hearing in right ear.  My main challenge is fatigue but I guess that’s a given and knowing ones limits is key.  Fatigue and\or stress are a real precursor to dizziness, for me.  And it seems to take double the time to recover from a tiring day.  I had to retire from my job as a R.N. as I could not cope with the demands anymore.  This was very difficult to do, as I loved my job.  I was approaching retirement anyway, so that made it a little easier to bear. May attend support group in March.  Looking forward to that!  Take care.

    • Bertman
      Bertman louise98846

      Posted

      Hello Louise, You are right, I am thankful for my wheelchair, this device enables me to travel safely. I have a manual chair for outside adventures and a power chair for inside. I hope you can find and attend a support meeting, sounds like an excellent plan. I understand you having to leave your career because of meniere's. I owned and operated a computer repair company and had to shut it down, no longer being able to make and keep appointments. I had a bad attack at a customer's residence and it scared her and me both. Anyway, you take care of yourself. Bertman

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