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A VERY strange IBS case...or something else. Very lost

Posted , 4 users are following.

crunchy360
crunchy360

I am feeling quite lost on how to handle my digestive issues. Some context: I am a healthy 21 year old female. I have had no digestion issues until about 2 years ago, when I went to the ER with EXTREME pain in my lower right abdomen. Like, screaming, sweating, crying pain. It was worse than dislocating my shoulder. It went away in 8 hours, and the ER gave me no answers as to what happened. I got an ultrasound and there were "floating masses" in my bladder. These have been largely ignored since then because apparently they did not show up on the next ultrasound...but I saw the first ones myself clear as day. Like dark bubbles floating around in an oval, clearly. No kidney stones, no appendicitis...So I was sent home, and the next morning, I went back with the same pain. This time it lasted 6 hours and I still had no answers when it subsided. Ever since then, I've had BAD stomach problems that come and go, but never go away or really improve.

I've never had that kind of extreme pain like I did then, but I do experience pain almost every time I eat anything, in cycles of 1-2 weeks about every other week, so 2/3 of the time. Could be a banana and some cucumbers or a deep-dish pizza, it's all painful during that 2/3. I am extremely bloated in the morning. I am woken up by pain and gas but I can't go to the bathroom until I've been active and upright for a while in the morning. After that I need to go to the bathroom 3-4 times before I even leave the house. I don't go on runs anymore that aren't on a treadmill near a bathroom. Throughout the day my appetite is normal but I still get sick when I eat unless I graze on tiny foods like a mouse ALL DAY, which is almost impossible to do with a busy job that's not always at a desk. Even then...I've had to change my lifestyle a lot. 

I eat a very healthy diet and exercise every day. I rarely drink, and I've tried many exclusion diets: gluten, dairy, etc. I've tried low FODMAP. I've had a colonoscopy, endoscopy, nuclear scan, CT scan, ultrasound, urology testing, blood panels galore...nothing. I feel like I've tried everything. 

My doctors and parents ignore it, but I sincerely think that 2 years ago when I went to the ER, something was messed up in my insides. I'm continuing my research and ignoring my latest doctors' advice to "keep a food journal and deal with it" because I found a decent amount blood in my stool this morning. Never happened before, but here we are. Again, I was tested for Crohn's, so...I'm drawing a blank. 

If ANYONE has even an IDEA or VAGUE SUGGESTION literally send it my way I'm leaving no stone unturned. 

Thanks a million 

0 likes, 5 replies

5 Replies

  • margaret22116
    margaret22116 crunchy360

    Posted

    Hi. I have an inflammatory bowel problem but it is not crohns. It is linked to auto immune disease. You seem ti have no other health problems going on though. I developed joint pain as well and other symptoms too though not all at once. When you say blood work was negative woukd you know if inflammatory markers were checked like esr crp or ana?
    • margaret22116
      margaret22116 crunchy360

      Posted

      Ok . It is a mystery then. The other thing I would want to query is h pylori but that may have been checked also. There is a simple breath test for it. It is an infection in the tummy which can cause bad symptoms and be undetected for long periods. Shows up in the breath test or with gatrroscopy. Have you had a gastroscopy? I had h pylori show up on an gastroscopy.
  • kim27383
    kim27383 crunchy360

    Posted

    I have diverticulitis and am in the hospital for it now. I have very low abdominal pain, right sided abdominal pain, and bloating/gas. When the diverticula of the intestines are I flamed or infected it causes horrible pain. I hurt everytime I eat. I am in here now because my sigmoid colon is very infected. I felt a strange pressure in my pelvis when I would urinate...the colon empties into that area. I have had this issue before as well. They saw the t this time in a CT scan with contrast. They can find it with a colonoscopy if you're having a flare up at that moment. I'm on tons of IV antibiotics right now and I'm waiting to see if they will let me go home later today. I also have IBS. They both suck.

  • Sloganlogo
    Sloganlogo crunchy360

    Posted

    It could be lots of different things including IBS.

    Blood in stoils is always something that needs further immidate investigation. This isnt a usual IBS symptoms but heemies do cause it.

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