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I wanted to post this not only to clear my head, but on the slim chance anyone has experienced similar or has advise.
So around a year ago I started to get bad heartburn and what I would class as bloated gas burps after a night out. I would only get it for the next day and then it would then go and I could be fine for a week or so before the next "attack".
It got to april and became every weekend. At this point I went to the docs and they put me on PPI and said see how you get on. A few weeks in started to get it more often to the point of even having dinner at home would cause this onset of burping and gas (the burning was less I think due to the pills). I went back to the doctor and he scheduled a endoscopy which revealed a small hital hernia and inflamed stomach and esophagus. I was told that the hital hernia was only small and that majority of people have them. The best thing to do was to persist with the PPI pills and see how I got on giving stomach time to heal. Which I did. I had my bloods done and was told I was healthy with nothing wrong. They did a stool test for Hpylori which came back negative.
Roll on may at this point I started to get a extreme bloating and burning again. Went back and got referred to private specialist. He was quick to blame the hital hernia and said I needed a PH swallow and 24 hour test. Along with a ultrasound. Ultrasound was all clear and my PH test showed some upper reflux that wasn't normal but not extreme.
At this point the specialist advised as I seemed to have been getting worse on the PPI that I should start to come of them and see what happens. About a week and a half into this I got extreme burning in my upper abdomen above the belly button. All across. To the point I was in such pain I went to A&E to get looked at. Full bloods again, ECG and upper checst Xray all clear. They told me that burning could be acid after a discussion amongst themselves and it was wise to go back on PPI. They have now prescribed nexium. This was two weeks ago.
Since then I have had crazy bowl changes. All during the above I was normal with no real difference. Yet now I seem to be swapping between days of constipation to watery just like that. The upper burning has gone from my chest again and I am still bloating after food yet I now have this constant abdominal pain which just feels like a dull ache above my belly button constantly. Which I feel is worse when trying to sleep on my sides like normal (however I am not sure if it's because I am just more aware of it.)
This week I went to have a food allergy test which all was clear. However when speaking to the guy he said it sounded to him as though it could be chronic pancreatitis issue. As it would cause the dull ache and if it was producing enzymes correctly the food would cause bloating etc. I stupidly spent the night reading into it and got no sleep along with just breaking into tears constantly. I can honestly say I think my mind is just broke. Anyhow.. I went to the GP today and raised my concerns, to be told that my bloods have shown clear each time they have been done in the last three months so it couldn't be. I tried to explain I had read people's posts on this very forum of it not being detected in their bloods and was only picked up when it got to cancer or critical stages. Once again I was shot down.
The conversation then turned into.. it is most Likley IBS. I feared I would end up with this label. I do not mean to take anything away from anyone with IBS but I feel this is a nonsense diagnoses when they just don't know the answer. As I have read countless posts of people branded with IBS to only be something later down the road. Especially as up this this week my bowls had been fine!.. I hope fingures crossed it's something to do with being on nexium now and taken morphine sulfate for overall week while the burning eased of. Either that or I have stressed myself out to the point of it effecting my bowls if that is possible.
Anyhow I have another endoscopy set for tomorrow (17th august 2017). I hope they find something this time. But I have been told by doctors if they didn't see ulcers or gastritis before it's very unlikely I will have it now ( even with the change of symptoms).
Just to recap symptoms for tldr
- no odd bowl changes up until this week now a mkx to this week
- original heartburn seems ok on PPI
-constant dull ache in upper abdomen above the belly button area
-no being sick
-no rectal bleeding or previous BM issues
-bloating and gas burps shortly after meals.
I really don't know what to do next if they don't find anything. I literally went from a healthy 27 year old with no real stress on his life to constant abdominal pain and not even being able to enjoy dinner with his GF. Any advise greatly appreciated. Thankyou to anyone who takes the time to ready this even if they don't have any answers.
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