Abnormal Brain MRI - hoping for reassurance

Posted , 3 users are following.

Hi,

As the title suggests, I have recently had a brain scan which showed some abnormalities. I am having a repeat scan next month but no one from Neurology has directly spoken to me. I am getting conflicting information and am feeling really low.

I was admitted to hospital a couple of months ago with severe abdominal pain. It turned out I had a bile stone lodged in my bile duct, even though I had my gallbladder out 3 years ago, I have all the luck lol.

This developed into a severe infection and I was really poorly and bright yellow from jaundice. Whilst this was going on, I developed a crushing headache, pretty much across my forehead. Then I lost part of my vision, which terrified me. It was like parts of words were disappearing.

I was seen at the Eye Hospital and they said my eyes were fine. Then I had a brain MRI with and without contrast.

I pestered the doctors for my results but they were all Gastro specialists and said they weren't as familiar with the report.

One doctor said it showed something pressing on my brain. Ashamed to say that this sent me in to a massive panic. Assumed he meant a tumour and I got myself in to a state. No one has mentioned this to me, though.

I was so upset and confused that I asked another doctor who said it showed inflammation pressing on the optic nerve. They said they were going to give me high doses of Prednisone introveniously for three days. Shorty after this I then had my operation to remove the bile stone. Following this the jaundice settled and my eyesight returned and has been fine since and no more headaches. I have never really suffered with headaches in the past.

Whilst in hospital a different doctor told me that the scan showed potential signs of demyelination and a lesion. He told me not to Google it but as soon as my sight returned, I did and of course it brought up MS as a possibility.

Then my GP rang, when I was home and said nothing was definite and it just showed pale patches.

Apologies for the long and rambling post but feel so down and alone. I am not normally a worrier but just frightened for the future and the effect on my children.

Before my op I was really ill and the the operation itself did not go smoothly and turned in to major surgery and then I got an additional infection.

After all my rambling on, I suppose main thing I am wondering about is, could the lesion and demyelination have been caused by some thing else? Does anyone have experience of this?

I also have psoriasis and have been recently referred to a rheumatologist as I have had some joint pain. in my back, ankle and hip.

My second scan is a month away but feels like an eternity. The sensible part of me says to accept the waiting game. The other part is already coming to conclusions.

Been thinking about posting this for a few days but been too scared to admit to myself how I am feeling. Also feeling scared about potential responses, I am such a mess today. I have re-read this and I sound neurotic making such a fuss

Thanks in advance, in case anyone can offer reassurance. Sending best wishes and positive thoughts to all.

0 likes, 3 replies

3 Replies

  • Posted

    i was diagnosed with MS a year and a half ago. i had a horrible horrible headache and my vision was horrible one morning in FEB of 2017. . Went to ER they gave me a MRI with contrast. they found 1 lesion. i was in the hospital for 3 days getting steroids thru my IV. They ended up giving me a spinal tap to test for Ms bands in my spinal fluid. i had to wait 5 weeks for the results and a definate diagnoses. Those 5 weeks were a eternity and so scary. i am a mom of 4 so i was so worried about my kids too. My spinal tap came back positive for MS bands and i was officially diagnosed March of 2017. Since then my neurologist put me on injections 3 times a week and i have not had any problems since my hospital visit in Feb 2017. Ms is not a death sentence. Also Ms is so different for everyone. Do you get any weakness or electric shock like feelings in your arms legs or hands? Thats what happens to me sometimes. You are not alone!

    • Posted

      i forgot to add when i was in the hospital the doctors thought i had a stroke. Until a neurologist looked at my scan and said she thinks it was MS. i was discharged from the hospital as a stroke patient.

    • Posted

      Hi Jaime57007

      Thank you so much for your reply, that makes me feel better. Just feeling so scared for the future.

      I have not had any weakness or electric shock sensations. Going to try and cam down and think positively now until I know for definite what is ahead.

      Take care .

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.