Abnormal Calprotectin Level ..... Could it be Crohns ?

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My 13 year old daughter has had an endoscopy & colonoscopy last year and we were told she didn't have Crohns.

Her symptoms have continued with random flare ups of severe abdominal pain, diahorrea, vomiting, lethargy,  and mouth ulcers. She has been hospitalised twice with pain.

A calprotectin stool sample test was done recently and the level has come back at 132 - which my gp says is abnormally high. Could this indicate Crohns or because of previous test results is that not possible ??

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  • Posted

    Hello Alison,

    I'm sorry that your daughter is going through this. I don't know the answer that you are looking for. When they admitted your daughter did they have any idea what was causing her symptoms? You might want to ask her GP to refer her to a GI Specialist so that they can review the test results as well as go through her prior history. Hopefully they would be able to offer some resolution. My 8 year old had an appendectomy recently and since has been getting mouth ulcers with periods of lethargy, digetive symptoms etc. We too are left without  an answer so I understand how frustrating it can be. I really hope she feels better and that you find some answers soon.

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  • Posted

    That's awful, I hope they figure out what's wrong soon. My calprotectin levels came back abnormal though not as high as your daughter's, but my doctor suggested possible ibs, colitis or Crohn's so maybe. The thing is its very difficult to diagnose these things so a lot of tests will be done. I hope they can help her soon, I know how disruptive it can be to your life (social, school etc) sadly.
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  • Posted

    Thankyou both for your comments - we see her consultant on Friday so will hopefully get some answers then.
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  • Posted

    Hey,

    I'm sorry to hear that. I understand how awful it could be. Watching your daughter go through this must be tough.

    I've had crohns for a while but recently diagnosed with colitis. It's been tough not gonna lie.

    I'm not a doctor so I can't say what's wrong or what's right but my gastroenterologist had always said that for a patient with crohns or colitis the stool sample results would be over 1000. So I'm not sure why your gp has said it's abnormal. It could be a case of ibs which is completely normal and those symptoms are similar to ibs however the mouth ulcers are usually related to crohns.

    If these symptoms persist try changing her diet a bit. Maybe give her foods which are high in iron. And maybe try less fibre. That's what a dietician would recommend for people with crohns. Or maybe start writing a food diary so you or your daughter can see what foods don't agree and what do. So then you can eliminate them from your meals.

    I hope this helped slightly. But like I said I'm not a doctor so I could be wrong. I'm just pointing out my experience.

    Any way I hope everything goes well on Friday and I wish you and your daughter all the best. I hope she comes out being fine.

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