About 4 months postop - Still a LOT of pain
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Had my rotator cuff surgery June 13th. Since I have be introduced into " phase 3" which is strengthening, the shoulder hurts/aches all the time. Do not have my full range of motion yet. At about 142 degrees arm lift, 45 degrees to the side. I am just so overwhelmed with the pain and would like someone to tell me when I ought to expect it to diminish. Still have to sleep in recliner. I move into bed after wife gets up at 5AM. Sometimes I stay in bed till 9AM, but the longer I stay in bed the more things hurt. If I sleep on opposite side, it aggravates that shoulder. On my back causes pain all across shoulder , back and neck. Just would like info about when pain starts to get better and when sleeping can approve. Thank you.
0 likes, 28 replies
peter10582 bill49757
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I had rotator cuff surgery in August 2017. I slept on a recliner for 12 weeks too. Even after returning to my bed, I still had pain while sleeping. I would place large pillows under my arm to keep my arm elevated. That did help with the pain. Unfortunately, I developed a frozen shoulder which lasted for a very long time. I was just released from my Physical therapy in August of this year. Yes, one year. And finally I am pain free. Sounds like you are much more ahead of schedule than I was. Make sure you are doing your own part of the physical therapy. That is very important to do EVERYDAY. I also turned to this forum for help. You are not alone. This is a long process for recovery. Make sure you ice your shoulder after PT and exercise. Also, I bought "BioFreeze", which is over the counter. Really helped out. Unfortunately I did need to be on pain meds until the 16th week to help me sleep. This will take time but you will be fine!
Susan1942 bill49757
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I was disheartened and felt my surgery had possibly failed. My surgeon had warned me that due to the condition of the cuff and bone it may not be successful. I have not done anything that would jeopardize it.
I am sleeping sitting upright in bed. Supported by 1 V pillow and further 3 pillows. I found it difficult to sleep upright but I am now used to it.
Have you cut back on the exercise ? I have been told if it is painful I should stop or pull it back.
I am pretty pain free at night. My movements is pretty good but I am lacking strength I am not able to lift the iron not been lifting the kettle for more than 18 months. I am seeing my Surgeon 10th October Still trying to remain positive BUT
Hope your situation improves What is your surgeon saying about it ? Sue
jule93059 bill49757
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Susan1942 bill49757
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bill49757
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jule93059 bill49757
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Susan1942 bill49757
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She has given me 3 new exercises which I can manage In fact at the end of my session I felt I was managing and with reduced pain. I am seeing my surgeon next Wednesday 10th and see what he has to say.
I am encouraged and positive again
Good luck Sue
Ella888 bill49757
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Hi Bill. When pain diminishes differs with each patient. I have taken 1.5 years to heal from my last shoulder surgery and still have 24/7 chronic pain and flare ups I need steroid injections and meds for despite having had two sets of shoulder surgeries between 2015 and 2016 ....we are now of course almost at the end of 2018! Give yourself time to heal, and lot's of it! Keep expectations low even though you want to get back into living a productive life as soon as possible . Don't look too much on the internet for recovery times and symptoms and listen to your doctors, as you will only get frustrated by trying to set time gauges for yourself. Often times for any surgery, it says 6 weeks to 6 months recovery, but so far, I have not known anyone to recover quickly from shoulder surgeries! Most are 6 months and up to 1 year from what I have heard from other patients, (including myself) equally frustrated by seeing much lower recovery times offered by doctors and on-line. Mine was much, much longer and I am still struggling day to day. Often times, people re-injure so it is important to be extremely careful with what you do in recovery as well as do all the physical therapy and report any complications immediately to your supervising physician. Here is my story: My first shoulder surgery was in Dec. 2015. It was a SLAP tear repair ( because the labrum was completely torn from the bone, causing my shoulder to wobble all over the place, further injuring tendons and muscle) , debridement, clavicectomy, bone spur removal and acromial decompression. My second surgery was due to the first one failing ( re-torn the labrum after just 4 months post-op lifting only 5-10 lbs of paperwork and books from a recently deceased parents' home- had to do what I had to do and my doctor said I should be able to lift that much- Nope! I ruined my first repair that way! ). also had two torn rotator cuffs, which were already there before my first surgery, but for some reason, my first surgeon did not repair them! Go figure on that one! Lol! So, I had 1 of the 2 cuffs repaired as well as a biceps tenodesis on my upper arm ( relocation of the biceps muscle- something surgeons do when a SLAP tear fails or a patient is older), plus removed more bone spurs that had developed since the first surgery. My second surgeon also did a second decompression and debridement.... Anyhoo, I was not one of the lucky ones. After two sets of surgeries and over 2 years later from my second shoulder surgery, I still have 24/7 bad chronic pain in my shoulder and sometimes excruciating flares from both inflammation and repeated impingements. I can no longer work at a job and have to limit use of my dominant arm/hand to only daily living tasks that involve no reaching up over my head, and no more than 3-5 lbs of lifting and only when absolutely necessary, no house work where I have lift/drag/push/carry more than 2-3 lbs for only seconds, or press down hard, no handwriting ( it's terrible now!) and no more than about an hour typing or texting per day and not even every day at that, since when I am in flare, doing so is almost impossible! Surgery only resolved about 30-50% of my issues and pain was not a big part of this relief at all, much to my disappointment, but hey, I can wash my hair myself and my shoulder is at least a little more stable, but that other torn cuff is still not repaired. I was told that I can get it repaired with a 3rd surgery at any time, but given my bad experience so far with the results of 2 surgeries on one shoulder, I am not exactly keen on going under the knife again, with a declining success rate with each successive surgery. Something to understand: surgeons consider surgery a "success" at 50% improvement of functionality. We as patients always expect more than that and we want guaranteed relief from pain. Surgeons are there to cut and repair, not solve all of our pain issues. I learned this the hard way. There is no guarantee your pain, other than perhaps the most severe of post-operative pain, will go away as it differs for each person, which is why surgery is a last resort, not first line of treatment, even for rotator cuff tears. Sad, but all this is the truth. Just go easy on yourself! Like yourself, my pain goes all the way through my back, neck, arm and even my hand... and that's on the shoulder I have had all the surgery on. I have issues of impingement also with my non-dominant shoulder as well. What might be helpful, if you have not done so already, is to get an MRI of your cervical spine to rule out a neck issue. Same goes for follow-up MRI to see if your repair has been compromised. Keep in close communication with your doctors and explain how this is negatively impacting your day to day functionality. If you cannot sleep ( yeah, my sleep gets all messed up too) then ask for more pain meds and a sleep aid from your doctor. I have found that medical cannabis also helps a lot for sleeping through pain as well as being more effective for nerve pain than anything else. Hope you heal swiftly and your pain goes away fast as well! Best of luck!
bill49757 Ella888
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Susan1942 bill49757
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I do hope that with time your situation might still improve I think that you may have been very very unfortunate.
I am still optimistic that I have time for further improvement
Seeing my surgeon tomorrow
Good luck to you Sue
bill49757 Susan1942
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Susan1942
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Bill saw my Consultant and I think he is disappointing with my progress.
My right arms shoulder are considerably weaker .
I am to carry on with my Physio and he wants me to have a scan.
He will see me again after that. I am in the UK and with the NHS probably a few weeks wait. I am not concerned by this as I am working with Physio in the meantime.
leobonham Ella888
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Hi Elle, did you got a follow-up MRI to check the labrum?
are you sure that didn't failed again?
are the pain worst now then before the first surgery?
Susan1942 bill49757
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Bill I have picked myself up again Today
I had my scan on Friday 9th and much as I expected my repair has not held
The Rotator Cuff has got 4 parts The first and second are just fine 3 rd area not great but the 4th oart which is where the repair was carried out The Radiologist sbowed me where the line was but I have a great big gap where the repair has torn again. He will write to my surgeon I will receive a further appt in due course
still having Physio but I was so down I gave myself a break over the weekend
Started again this am. I was warned that the quality of the Cuff was poor so not a huge surprise given my ongoing symptoms.
sorry news is not more positive but I have dusted myself down and just getting on with it. Sue
bill49757 Susan1942
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Sorry to hear the news Sue. I am praying for you that things ultimately improve. I am to see both my shoulder surgeon and a hand surgeon this week. I am still not happy with my ROM, pain level and strength. Complicating things are the hand and wrist on same arm with pain and swelling. Thus the hand surgeon that thinks i need ulnar nerve surgery.
Susan1942 bill49757
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Thanks Bill. I think you are in a worse situation than I am. I have got a good range of movement Some with a degree of pain Strength and pain are my main problems. I don't see that there is anything further that can be done. This was why I was being extra careful but to no avail I think when I started to use the tension banda I experienced an increase in pain I stopped this and the Physio agreed
i suffer from.neuropathic pain and I have a spinal implant as well as this I take a concoction of medication which has always masked the severity of my shoulder pain
I hope your consultations this week prove enlightening and they can plan a way forward in your treatment
I will no doubt see my consultant when he receives the Radiologist report
good luck Sue