Acceptance

Posted , 5 users are following.

So I've decided to just accept what I can't change, I've been wearing nappies (hate calling them pads.. They are what they are) for a while now for daytime and nighttime wetting and I can't see the point of feeling down about it, it's really not a big issue....I used to be worried that people would notice that I was wearing them but tbh who wonders what your wearing under your clothes.

Embrace the nappies smile

2 likes, 10 replies

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10 Replies

  • Posted

    At least you are wearing something, but I do wish I had been told the truth about Polypropylene TVT's, as they have caused me nothing but pain, but to the MHRA the benefits outweigh the risks. Benefits are staying dry, but they certainly do not outweigh the risks of pain, infection and suffering.
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    • Posted

      I didn't know any of this controversy about TVT until I joined this group!

      I had it done about 5 years ago....to my knowledge I haven't had any of the side effects.....except maybe that my wee flow is a bit slower than it was, and I have to concentrate on emptying properly.

      Sorry to hear you have had nothing but trouble, Kathleen. sad

       

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    • Posted

      I get a lot of pain in the bladder at night and have the greatest dificulty passing urine. I have also noticed that it causes a rise in my BP and atrial fibrillation can then occurr. I also get sudden pain in my right groin and cannot put my foot to the ground. Heat causes plastic to go hard and once hard it becomes brittle and cracks so I imagine the pain is caused by a sharp piece of hard cracked plastic. I also had a VCMG where you have to arrive with a full bladder and then pass urine, but I couldn't so it had to be drawn off. As they drew it off the pain subsided in my back and groin until they started filling it up again and I could not pass anything until the tubes were taken out. It is more harmful to ones kidneys if one cannot pass urine.My TVT surgery was in 2003 and have suffered just after the op and things eased then downhill 14 months after and have suffered ever since.
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    • Posted

      I do manage to empty....I just have to not be in too much of a hurry to get off the loo! x

      You sound like you have suffered way too much. Is there any chance you can have the tape removed?

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    • Posted

      On top of the mesh problem I also suffer from Hypothyroidism which has been made worse. I have appointment in October with the Specialist who is one of two in England experianced in removing mesh. I had to cancel my last appointment with her as I was in too much pain to attempt the trip. I ask my GP if transport could be provided but was told that the NHS would not provide transport, but have now found out that this is wrong and that he should have filled in a form requesting transport to the London Hospital. If my appointment was today I would not attempt the trip on my own as my heart rate is haywire plus suffering pain. When things first went wrong 14months after surgery I was refused a referral and what is even worse is that about this time my records on the actual surgery details were sent into a warehouse which went up in flames the next year. What I would say is that if anyone contemplates this mesh surgery ask the specialist if he is experianced in removing it.
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    • Posted

      That is such a shame the transport got messed up and you couldn't make it! sad I had heard there were only two surgeons who could remove the tape. About time they taught a few more surgeons how to do it!).

      I hope you get somewhere soon. xx

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    • Posted

      Any surgeon who implants mesh should also be qualified to remove it. Both surgeons who are experiance in England are inundated with mesh removals so it shows how many patients have suffered. I was referred again in May and my appointment is not until October. The longer mesh is left in the harder it is to remove, and damage can get done in trying to remove it including the health problems it has caused makes surgery more risky. I have sent warnings to my local hospital not to intervene in trying to remove mine as in turn inexperianced surgeons can cause more problems in bungled attempts at removing it which makes it even harder for experianced surgeons to put right their errors.
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    • Posted

      Yes, I know they SHOULD be qualified, but it seems they arn't.

      Mine has been there for 5 years. Would like to think I am one of the few lucky ones.

      Let us know how you get on. Telling us the steps may help others along the way.

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  • Posted

    My sentiments entirely. My incontinence can't be cured and I was refered to the continence nurse and given tena maxi slips to wear at night and comfort extra pads for daytime use. I used to worry about being seen in nappies but I soon realised no one cares. I wear mine without shame now and just get on with life. It just isn't a big deal. Managed properly incontinence is only a minor hindrance infact hardly any problem at all. 
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