acceptance? (sorry its a bit of an epic one)
Posted , 11 users are following.
Im relatively new to the fibro diagnoses, despite having syptoms for around 7 years. My GP has been swapping and changing all my medications recently to try to find the combination that works for me.
(I know the medication debate is a big one but thats for another time.)
I am currently taking amitriptyline 2x10mg at night along with pregabalin 300mg twice a day, tramadol modified release tablets 100mg twice a day and have recently swapped sertraline 200mg for Mirtazapine 15mg. The amitriptyline and mirtazapine (which is taken at night) seem to have helped loads with my sleep problem, although its still not perfect, but the pain i am feeling on a daily basis is horrendous. In the morning I firstly struggle to get out of bed, once I have managed that dressing myself is another struggle, it usually ends with my hubby having to help me.
What i want to know is at what point do we accept or come to terms with the fact that we cant do things we used to? I am only 36 years old and having to be helped to dress, in the shower and with other things that I took for granted before is degrading to say the least. I know every day wont be like this but I am really having a hard time with this at the moment. I've been off work sick for the first time with it because its so bad at the moment.
This is contributing to depression and anxiety which in turn, as you know makes everything else worse. Any words of wisdom would be hugely appreciated
0 likes, 30 replies
andrea03046 CrazyDaisy88
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CrazyDaisy88 andrea03046
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andrea03046 CrazyDaisy88
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kari0801 CrazyDaisy88
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CrazyDaisy88 kari0801
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im just feeling fed up at the moment, I'll get over it and continue as I usually do xx
andrea03046 CrazyDaisy88
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alig39 CrazyDaisy88
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Ive seen a lot of people on these discussions saying that they are taking Pregabalin and Amitriptyline. My own gp and other specialists have tried me on both these and other similar pills but they only make me feel worse. whyme when all i see is positive results for others here. my gp said that her other Fibro patients seem to do ok with the Amitripyline. am i just one of a kind...lol. I have an app on Tuesday tosee gp so will discuss then.
apart from that i would like to say that when i was first diagnosed i was a total mess, the thought of having to live like this for the rest of my life and it possibly getting worse made my Bipolar really kick in. I wouldnt see anyone or go anywhere for weeks. just wanted to stay in bed and hide and sleep but even that was impossible. It took some weeks for me to comes to terms with things and even now some days im really down with the pain but i know its not going to improve and just do my absolute best each day. I know how much i can and cant do on a daily basis. i would say just to take things one day at a time and please dont push yourself. if you cant do certain things anymre then just dont. you have your family to help out. i must be honest i rarely go out anymore and spend most days in my pjs so as not too antagonise the pain. I must be honest and say that contibuting to these forums have been helping a lot, not with the pain but with keeping my mind occupied. I didnt realise how many people there are out there who suffer from Fibro.
Take care hun, i hope i have helped even just a little
xxxx
CrazyDaisy88 alig39
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i think I still have to come to terms with the fact that I can't always do what I'd like to, and even on the days I can I should pace myself. Hopefully this will come with time.
im currently looking at reducing my hours at work, I don't want to give it up altogether if I can help it, as I'm not sure that would do me good mentally, but I worry there will come a time when work will want rid of me, there are only so many sick days they will tolerate I'm sure.
i do find these sites helpful for the most part as you say it helps keep the mind occupied.
xxxx
joy47826 alig39
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I work with all supps and KNOW magnesium is so critical and that Thyroid, and sadly MOST docs miss it and just don't know what the old time docs knew before those crazy labs and numbers.....I went 10 years with a sluggish thyroid and doc going with the numbers..... Many with supposedly normal numbers need HELP... I was one of them 10 long miserable years before my osteopath put me on armour, no labs nothing...he just knew.....life changed big time once on the thyroid help.....
nitropilot CrazyDaisy88
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When you accept what is, you will find yourself making mini goals. It's much healthier to be excited about a successful grocery trip than agonizing over how you used to be.
Get out of your head. Never think of a problem as a barrier. Say 'challenge accepted', take control and search for a solution or an answer. Like you just did by posting here.
When my mind plays a list of my problems I keep saying "If I cannot or will not do anything about it RIGHT NOW then I'm not allowed to think about it. Really helps at bedtime.
Let the strong part of you take care of the sick part of you. I treat myself like I would treat my child if he had fibro.
Smiler1981 nitropilot
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Smiler1981 CrazyDaisy88
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Acceptance is a dangerous word. I have Bipolar Disorder and Fibromyalgia, and it's a word I've heard a lot over the years. It has seemed to me over the years that 'acceptance' can mean 'giving up', even just a little. And I know, I can hear the keyboards whipping themselves up in to a frenzy already, but I honestly believe this is the hard truth.
The first time I heard it was from a Psychiatrist on the day I was diagnosed with Bipolar. "You need to accept that things are different now" as I was handed forms for various benefits. No I don't need to 'accept' that. I work full time as a teacher, with various senior responsiblities.
I heard it it again in a mental institution, shortly before I checked myself out. "You need to accept that you are different from other people and will need additional help." Acctually what they wanted me to have was a six month stay, when I could get myself better (and back to my career).
I've heard it countless times, from medical professionals and others suffering from chronic illnesses. Always with the subtext that even a tiny part will be giving in. I refuse to do that. And I know what people are thinking, but yes I have been suicidial, in agony, as low as it is possible to go.
I've made some allowances, sure. I walk with a stick when I need to. I rest when I need to. But that's about it. At all other times I push myself constantly even when my mind and body are screaming for me to stop. Why? For my career? Sure. To see the world? Sure (I'm currently waiting to see if I've got a job in China). For my family? Absolutely. But not really. Because I refuse to be a victim. I refuse. I believe my life is a precious gift. And I will not waste it. I haven't been given any more than I can cope with, even though I question that on a daily basis.
I'm sorry if that seems unsupportive or controversial. It's not, not really. We are all stronger than we give ourselves credit for. Even when it really, really hurts.
Figure out ways to work with it. But don't let it dictate to you what your life should be. That's my advice. Your strength is immeasurable. I promise.
joy47826 Smiler1981
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Recently we've been discussing the over calcium dosing so MANY people take......I've known this for years but it's more and more out there....mag is needed more than calcium in many ways. Vit K is needed for the D3 to be helping the bones.....
We have good conversations on the Alternative Group and this one has been a big one...
I thought I'd have a better life with a hip replacement which I did in 2010, that trauma to my body really has done me in....no groin pain, but nerve damage and other crap......sick of the hurting world, but keep on until it's no more...and I prefer to be as healthy as I can be to my end......other stuff doesn't matter, it's all about managing my health. J
Smiler1981 joy47826
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joy47826 Smiler1981
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I've felt this way for a long time with Words and I'm much older than most of you with dealing with FM....it did not hit me until 61....I had worked and done tons of life prior to this trauma to my body, nervous system.....emotional trauma as horrific as physical trauma.....
tiswas24537 Smiler1981
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so i have to find ways around the mood swings and sleep disturbences it can be tough at times , but sometimes life socks it to you and you just have to suck it up or go under . glad i am not alone in feeling that acceptence is a negative word.
Smiler1981 tiswas24537
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tiswas24537 Smiler1981
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when i was growing up my parents and teachers used to have a saying .
theres no such word as cant. we was never pamperd like kids are today
if we cut our knee it was iodin that stung like hell not bugs bunny plasters .so i suppose i learnt to get tough .
kari0801 tiswas24537
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tiswas24537 kari0801
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just give up !
diane65123 Smiler1981
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Smiler1981 diane65123
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tiswas24537 diane65123
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i always said if someone said standing in a bucket of horses droppings would cure me i would give it a go, i hope you have found your solution .
i shall be starting on the programme in the next couple of weeks just got to get the spare room sorted so i have some where with out interuptions to do it. so i think good luck to us both ,and lets rock on hun to better health
nitropilot diane65123
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nitropilot Smiler1981
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Don't think it really matters. It boils down to each person and what motivates them. I accept it's there...for now, but refuse to let it destroy me. I'm motivated by that. Denying that it exists and putting stress on myself to be a non-fibro person is counterproductive for me. Others may be different, using the 'fake it till you make it' approach.
As long as we are actively working toward a good & healthy life, it's just terminology.
joy47826 nitropilot
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I have been in Science of Mind philosophy since the 80's....and it's all about mind change.....whatever works, but too many struggle, In some denial...
Oh, I'm no expert but know what works in my life. Joy 76 US
nitropilot tiswas24537
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I just signed up for that. The first few chapters are free which is nice. And the rest is a money back guarantee.
I also just saw something about DNRS. Going to research that too.
Smiler1981 nitropilot
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tiswas24537 nitropilot
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nitropilot Smiler1981
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