accepting it’s ebv and nothing else

Posted , 8 users are following.

hi everyone. its me yet again lol. im 19 female and. on month 14 of this virus. continuous reactivations when ever im stressed. my symtpoms are blurry vision, white tongue, extreme fatigue, bone and joint pain, nerve pain, gum bleeding and pain, anxiety, painful lymph nodes all the way to groin, tmj, on and off appettie, weight gain and trouble losing, weakness, stiff joints etc. anyways, i have always had health anxiety and ocd and 5 months after i got mono, i found out my ex cheated on me unprotected with a sex worker. long story short, we have been broke up since june and i have been tested obsessively (3 times) for all stds. my ebv panels are all high and thats it! even though i had these ebv symtpoms before i get scared that i have hiv that isnt being picked up. classic health anxiety. i also fear MS and lymphoma, but more hiv because my ex put me at a serious risk. but with 3 negative tests and a postive ebv panel you think i would be assured!!! im so young going through this. on top of extreme anxiety, i feel like crap too. which fuels the anxiety. can anyone give me some reassurance? and tell me your symtpoms 😦

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20 Replies

  • Posted

    ibteresting to hear youve had weight gain as most people lose weight and i have gained more than 20lbs ! eventhough eat healthy and have no appetite . so sorry youre going through all that what a nightmare . you need to ditch the boyfriend and concebtrate on getting better and lose the people who cause you stress!

    im in month 10 and also have very sensitive teeth amongst the other things like terrible fatigue anxiety you name it .

    hope you can rest and more importantly rest your mind.

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  • Posted

    I have multiple symptoms despite of been tested for hiv more than eight times antigen and antibodies test after risky exposure happened 2 years before.my symptoms are white tongue,sore throat,terrible rashes , athlete's foot ,headache,earache and temperature of my body is changed I am feeling hot in my toes .I am still thinking that I have hiv but elisa or finger prick test can't able to detect or my body can't able to produce antibodies.

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  • Posted

    8 times ! and youre still worrying ?

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    • Posted

      Because I have aids symptoms.I have persistent sore throat,white tongue,athlete's foot on and off for year now.I can't sleep well I had stomach issues but now my stomach is fine.I don't feel any acid in my mouth but doctor gave medicine for acid reflux and medicine didn't give me relief.sometimes I got big rashes on different areas on my body .I don't know how about elisa test is it reliable or not but I took it from high reputed hospital .

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    • Posted

      One thing I wanna mention here I tested for thrush or oral candidiasis,syphilis,hepatitis a to c,urine analysis,chest x Ray,cbc,vitamin b ,liver test,Thyroid test and x Ray ,blood culture and eye sight test because I had blurry vision.

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  • Posted

    I've been tested for HIV also.....you have to trust the results and not your own mind. The thoughts in your head can run away with you sometimes And we fear the worse. You're not alone in thinking like this because we are all having trouble to understand why we are both getting better as fast as we like and everyone around us is living a normal life. All the symptoms listed are common for EBV. It's true they match other viruses too, but you have to trust the lab technicians who test your blood. HIV is a serious disease and not something that is likely to be missed...intact it was one of the first things my hospital wanted to test. If I had it, I probably would of found out very shortly after giving blood. Easier said than done, but just try to keep your mind on your immune system is fighting EBV only and one day your body will win and you can start to progress with your life.

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    • Posted

      no idea what i would do without all of you. in my mind i think high risk+symtpoms=hiv. but negative tests is what really tells the truth. thank you for calming me down

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    • Posted

      Very wise words indeed Dodge, absolutely totally agree. Nicole and you and everyone on here is going to get through this and get better. I hope you have had a settled weekend and are feeling okay at the moment Dodge - still thinking about you and rooting for you.

      Craig

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  • Posted

    Hello Nicole,

    I definitely want to reassure you with respect to EBV, that it can be unfortunately be normal for some people that the virus causes such horrible ill effects for as long as it has for you, and in no way does it mean that anything else is wrong or the matter. You have been wise and did all the right things getting tested for other things with the concerns regarding your ex, but please take heart and reassurance from those tests that it is the mono and nothing else causing these symptoms.

    I know that doesn't make things any easier to cope with, but the thing I really want to highlight is that there is hope and there is recovery even after being unwell with these symptoms for such a long period with mono. The second year it seems for some is much better but for others still quite an up and down period, and for some it just seems to take a little longer for their bodies to get to full grips with the virus and kick it out for good - but it will do that Nicole - I've read LOTS of people who maybe struggled quite badly up until the 18 month point or around that time but then saw a major change and went on to make a full recovery. Caroline was one of the people on the site I remember specifically who had a turnaround around that period if I remember rightly.

    And the other encouraging thing to remember Nicole is that a major breakthrough or step forward can happen quite quickly or in a short space of time with this. Sometimes it can be the case it feels like it stays the same or nothing changes for months and months on end, then all of a sudden a big step forward comes in a short space of time. That is a strange thing but something that does seem to happen with mono a lot, so remember that because things have been tough or not changed much for a while now it doesn't mean to say that a major breakthrough can't or won't happen in the future.

    I still believe you are going to get fully better Nicole, just so sorry you've been dealing with such an awful time in your life. You are young and I really hope and pray and believe you have lots of healthy and happy times ahead in your 20s - I have faith in God and believe He is working on your situation and that this year is going to be a year that gets better for you as time goes on. Thinking about you and will keep you in my prayers. You keep looking after yourself and just don't put lots of pressure or expectations on yourself right now, just cope with each day as it comes and remember you ARE going to get better.

    Craig

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    • Posted

      Thanks for your kind words Nicole, it really is because I know how much I struggled and needed SO much help and encouragement to get through this virus that it's good for me to come on here and let you and others know that there is hope and recovery from this thing, even when feeling in the darkest moments and when it seems like it is never ending.

      It's so hard not to panic and not let your mind go to some frightening places as Dodge says, but definitely Nicole I'm still believing that God has great plans ahead for you and has a hope and a future and that you are going to get through this - and you know what you are going to be a much stronger person for having went through this when you're through it (which will happen). Hoping for a good and settled day today for you and thinking of you!

      Craig

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  • Posted

    EBV does some odd things to our bodies to say the least. If was told what would happen to me i would not even believed it. I am now just over a year...right now i am maybe 80% back. I am currently in a cold and my symtoms are back somewhat. Last month my arms were itching like crazy and now that has gone and now have athletes foot. Never before have i had that so this damn ebv just keeps letting you know its here. THE best thing for everyone is just accept this and let it run its course. We can worry about the possible worst diseases dr google says we could have and stress and make this linger on or we can just say to ourselves these things that are going on are just ebv pestering us again and take control of our thoughts and not stress about it. I too worried the first 6 months and made it worse as i am sure we all did. hang tough it will get better

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    • Posted

      I have mild thrush too .last year it was heavy at the same time I told the doctor it is thrush he repeatedly denied and I requested him to test for oral candidiasis and he did it result came back negative.Doctor told me that we can easily diagnose thrush by observing it or seeing it by naked eyes it doesn't look like thrush.my main issue is with throat I have sore throat,white tongue and it's persistent.if you'll get appointment with doctor I am sure he will told you it's not thrush .

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    • Posted

      i had that too! my infectious disease dr looked in my mouth and told me i had candida . i have done a cleanse before that really works its no meat no dairy no sugar no wheat for one week .

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    • Posted

      Wise words Cjay, it's definitely the best thing if you can (hard as it is) to have patience and accept that sometimes it can take extended time unfortunately with this thing for many people to get over it but that most definitely you will get over it with time! And to reduce stress as much as possible too, but again I know all this is easier said than done given the virus in itself and the horrible symptoms causes so much distress, pain and worry.

      My experience Cjay was that the second year was SO much better than the first one, a real year of breakthrough and steps towards full recovery. I'm glad you are feeling somewhat on the way to recovery, I was in a similar position after a year but things continued to get stronger and stronger into that second year Cjay so hang in there and believing that this is going to be your year of full recovery. Continue to take care and look after yourself though and just take things each day at a time as it sounds like you have been doing!

      Craig

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    • Posted

      Hi Ravi,

      Was just wondering how you have been doing, just wanted to let you know was thinking about you as I know from your previous messages you have been going through such a tough time lately.

      As mentioned to Cjay there it really can be the case that the second year is really a year of recovery and breakthrough with this thing, it's not at all easy to go through a day let alone a month or a year with this thing, but just want to encourage you that there is hope and that things will get better for you, I believe that and will keep you in my thoughts / prayers.

      Craig

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    • Posted

      good words Clide-

      i too am freaking out,im at 6mos mark-

      tested positive for EpV at month four

      over night my life changed

      i got hit hard-acute-fever muscles burning-throbbing-fatigue-low back-leg pain

      the works

      a trip to the depths of hell i tell u

      this is horrific just stessful!

      my symptoms are the same ,some have stuck some have come and gone-

      but dealing with changes and new ones! face skin /all over dry hurts tingling? dr google says its MS?!? ugh

      THE ANXIETY is insane!!!!

      i wish there was an easy button for this....

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    • Posted

      Oh Starr I do empathise with the horrible cycle of googling symptoms and it making you panic and feel even worse when you are desperately seeking some words of hope and reassurance.

      Please be assured that what you're going through is (unfortunately) a very normal experience for this virus, and in no way that fact that different or new symptoms have developed or that you are still feeling unwell after 6 months does it mean that anything else or sinister is going on - this is CLASSIC course for mono the symptoms you describe and it DOES get better. Of course it's always wise to discuss any new symptoms / concerns with the doctor, and very much hoping they can offer some reassurance / encouragement too.

      Hang in there - God is the great healer!

      Craig

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