Achalasia
Posted , 21 users are following.
who has Achalasia ? and pains do you get.
0 likes, 43 replies
Posted , 21 users are following.
who has Achalasia ? and pains do you get.
0 likes, 43 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
s.g
Posted
i have achalasia and had open myotomy 3 years ago and 2 months prev to that i had the balloon dilation which obviusly only worked for a short time.
i have found this site because to this day i still get really bad pains and i mean bad to the point where i have to sip water which limits the pain till it goes. the pains can last for any where to a minute or two up to a few hours and god help if i dont have anything to drink immediatly im in agony.
i still cant really find anything on the internet about pains after the operation so thought i'd reply to your experience in the hope that others will share thiers to, i was starting to think that maybe it was caused by something else but the doctor just said its to do with spasms due to the achalasia. not very helpful.
salviemia s.g
Posted
I just wanted to ask you if you have found out anymore about the chest pains you get? my doctor also said it was spasms,
sipping water does help.
The pains are so severe and sometimes feels like the pain travels do you get this?
xLMck salviemia
Posted
Guest
Posted
xLMck Guest
Posted
It's spasms caused by the throat and they can be horrendous! For years I was told it was heart burn and/or panic attacks but finally got to a specialist and he confirmed that it was spasms caused by the achalasia - prescribed me a GTN spray (usually used for angina) and it worked wonders!
Get in touch with your doctor and ask about getting your son one (or a few - I used to have one everywhere just incase)
Hope this helps!
salviemia xLMck
Posted
thank you
Guest
Posted
Guest
Posted
i was diagnosed with achalsia feb 07. It came on quite quickly and got progressively worse. I've had one balloon dilation, which worked very well for the first six months. It has now started to get worse and my Dr's are considering a heilers myotomy. I want to avoid this as long as possible. As long as i can keep some food down i'm happy.
I suffer from lots of pain, and it's nice to hear that i'm not the only one. I thought it was just me. I to can experience it for a few mintues- to few hours. I take water with me everywhere as it's the only thing that seems to alleviate the pain. I also use a hot water bottle/wheat bag (when indoors!!), and place it betwen my shoulder blades. It's like a muscle is in spasm, but no one knows why!!. Am glad to hear it's not me going crazy
janet710821
Posted
you have experienced it can you? Hope you feel better soon x x
Guest
Posted
Cole
Posted
xLMck
Posted
SMcG
Posted
Guest
Posted
my story..
IM AN ACHALASIA SUFFERER.
I was diagnosed after my third child 3 years ago. I had the hellers myotomy op with fundoplication, September 2008.. i have suffered chronic pain ever since, 24/7. i was prescribed TRAMADOL in hospital and decided in jan 2009 to stop it as id stopped the df118 and pain settled a bit so thought i could stop cold turkey.WRONG.IT WAS HELL..
During the four months on it.i couldnt drive, work, as pain was really bad. I thought i was just recovering from operation and that something had gone wrong, although consultants and g.p. was no help to me at all.
I stopped the Tram.. and ended up in casualty as pain was excrutiating, but instantly i felt a cloud had lifted so new they hadnt been good for me. Anyway i read about tram,came across the website and realised I was hooked on them. doctors dont believe they are addictive..I know different. I restarted then and began a long weaning process, the hell was worse coming off them and i suffered for another two months.
They escalate the pain so you need more and then your hooked..We are limited to our presciption doses in england, but americans etc are on whopping doses.
I had that to deal with as well as the achalasia. My swallowing improved but the pain continued, across my chest and diaphragm.It was made worse by driving, cycling and didnt relate it to swallowing.
I got a second consultant opinion but they are baffled.
Where im at now...my pain has settled again. I stopped paracetamol and ibuprofen 6 weeks ago..Ive been taken them every day since the op. I have had to start drinking a lot of water again and have recently vomited for the first time since my op. im back to where i was before the op, with pain.
my consultant wants to do a dilation. I think not, couldnt go through any more.
This operation has blighted my life for the past 16 months, made worse by tramadol and the ignorance of doctors.Without that drug .I think, in fact i know my recovery would have been quicker and so differnt..Be very careful.
Guest
Posted