Achalasia
Posted , 21 users are following.
who has Achalasia ? and pains do you get.
0 likes, 43 replies
Posted , 21 users are following.
who has Achalasia ? and pains do you get.
0 likes, 43 replies
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val0406
Posted
Anyone have any info that can help me? Anyone else having the same problems? I love to eat but the thought of eating makes me "sick"
Mish221 val0406
Posted
amy56547 Guest
Posted
Mish221 amy56547
Posted
pauline1981 Guest
Posted
Because of my work I don't get to eat dinner till late- and since I have to end up eating quickly, is say I end up regurgitating half of it. And if I eat late at night I end up waking up with chest pains. When I am in such agony the thought of eating fills me with dread :-(
Mish221 pauline1981
Posted
pauline1981 Mish221
Posted
Thanks for your reply. Do you mean you take the Nifedipine whenever you get your chest pains? How often can that be? I didn't think you could take it long term. I had awful chest pains last Tuesday which lasted 4 hours and nausea which lasted until Friday- was so worried about eating in case I regurgitated it up. Would you ever consider having the myotomy again? I had a dilitation in 2011, it worked for a while, but it's lost all effectiveness now.
How I wish I could just easily eat instead of contorting my face and thumping my chest during meals!!
Mish221 pauline1981
Posted
pauline1981 Mish221
Posted
Thanks for the quick reply!! I have taken Nifedipine in the past- I was prescribed it after my diagnosis and before my operation. I remember I had to take it 30mins or so before every meal. I too have low blood pressure and I remember it making my legs go bright red!! I guess from all the blood pumping round my veins quickly. I'm visiting my GP tomorrow so may ask her to prescribe some. When lathe pain gets so bad I think I'd prefer childbirth (I have 3 kids) over this, at least you have something to show at the end of the pain!!
Out of curiosity- are you in the UK?
Pauline
Mish221 pauline1981
Posted
I live in Florida, US. I found the site while looking to see if there was anything new out there to help us. I'm starting to really get tired of fhe pain that I hAve been living with for 10 years and was hoping to find something new. No such luck, but I forgot how nice it is to see that there are others out there like me.....its so hard to explain the condition to people, especially in the middle of pain
pauline1981 Mish221
Posted
I find that having water sometimes makes it worse. I've read other people swear by ice cold water- I have to drink warm/hot water as the coldness is too much of a shock to my oesophagas.
The pain is just unbearable, like extreme pressure in your chest.
When I was pregnant, but unaware, with my 3rd I was prescribed a spray which was specifically for
angina patients. Although it provided the relief from the chest pains, I was violently sick and nauseous after using it- needless to say I didn't carry on with it.
I have also read other people say eating a banana helps with the spasms. Surely if the food is stuck, then the banana would too? When I'm in pain the last thing I want to do is eat.
I do think since my op my condition has improved remarkably- I used to be sick 20+ times a day, to the point I wouldn't go near food as I knew it wouldn't stay down- to having chest pains maybe 3-4 times a month and being sick 6-8 times a month. Though recently it has become more frequent. I'm just hoping the effects of the myotomy doesn't wear off over time.
Would you ever consider having the op again? Are you quite careful what/when you eat? Sorry for all the questions- we just seem to have very similar experiences.
Pauline
Mish221 pauline1981
Posted
carla95203 Mish221
Posted
This is the first time I've joined a group chat before, but I've read the thred with interest, hoping someone would have some advice on dealing with the chest pain. It's 5 am and I've been suffering for 3 hours already today.
I'm 32 and had a Hellers myotomy a couple of years ago. My swallowing has improved greatly but the chest pains are horrific when they occur.
Mish, did you have any joy with the GI you were seeing?
I just feel it's pointless going back to my consultant when he sees the operation as a "success", in a way I guess it was insofar as the swallowing of food, but I am blighted by the pain caused by food just sitting in my chest and it's so hard to make others understand how crippling it is.
Sorry to bang on, the pain and tiredness is really getting to me this morning.
didragon pauline1981
Posted
03jduffy Guest
Posted