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Hi, I’ve suffered with Achalasia since 1984 although I wasn’t diagnosed until 1989. I had open abdominal surgery in 89 but, difficulty in swallowing started to worsen again in 1991. I had a dilatation procedure but, sadly that was unsuccessful. I was then put under the care of a professor who was more familiar with the desease and, I required a second surgery, more aggressive approach to basically anialate the sphincter muscle. Again this was open surgery, this time literally cut in half, Hellers procedure I believe it’s called. Now it can be done laparoscopically. So I’ve basically had reflux for 28 years but, 4 years ago my swallowing began to worsen again and, symptoms are much worse. I had the usual barium swallow, the ph swallow monitoring and, endoscopy and, the results were that my oesophagus had no function whatsoever and, was beginning to look baggy. The consultant told me that I was in a very difficult situation as I’d had two previous open surgeries and, that further surgery would be very difficult. I was basically a knightmare. My symptoms have worsened considerably to the point where I’m choking in my sleep and, even fluid is a difficult one to manoeuvre. I’ve recently had the barium and, Ph study just before Christmas and, I will be having another endoscopy on 11th Jan. The two results I’ve had back show that my oesophagus is in bad shape and, a lot of narrowing, I havnt even got gravity on my side any longer as everything is just sitting in my gullet. The surgeon spoke to me about an oesophagetomy on the basis of my results from 3 years ago. I’m so worried, how bad can this be? The previous surgery’s have intended to destroy the sphincter in order to stop my oesophagus from narrowing again. I saw the barium and, even the radiographer said it was radically worse since the last test. Has anybody been through similar situation or, can advise on life after the oesophagus has been replaced
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