Posted , 11 users are following.
Hi All, my 9 year old son has been diagnosed with oesophaeal Achalasia and yesterday after the endoscopy, a surgery seems to be the next step. We have been looked after a doctor in Bristol Children hospital and the paediatric surgeon who is going to do the heller Myotomy said based on the fact that this is a rare condition - especially in children - he has operated on 3 children so far and suggested that he either does the surgery with two of his paediatric colleagues for which he can potentally offer us a date in the next couple of months or the option would be to pull in a more experienced adult surgeon however the complications that come with this may delay the date to an unforseen future. there was no indication as to how long this delay might be and considering that after 2 years of chasing the doctors to get an appointment to check his condition, I was worried to miss the opportunity and agreed that he does the surgery. However knowing that it is very important to have an expert on board, I am now worrried even more that i may have done the wrong thing by 'rushing' into it and perhaps end up with complications afterwards. If anybosy has had experience and knows doctors who have performed this on children, please do let me know, I dont want my son suffer any longer and but then I dont want to cause him even more pain and longer term damage. please help! thank you!
0 likes, 22 replies