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Hi, I was diagnosed with Achalasia after a long time of bring up food undigested. Nothing worse than being taken out to dinner and making a fool of yourself in the restaurant by vomiting your dinner as you are eating it. It got so bad that I could get no food into my stomach, not even liquid and I was throwing up in my sleep even though I banked myself up on pillows. I lost a horrendous amount of weight very quickly. Dr sent me to hospital where I had all the tests and Achalasia was diagnosed. I had the Heller Myotomy operation on 10th March and was not given any information whatsoever so I am trying to muddle though. In the hospital 14 hours after the operation at 4.45am , I woke up in the middle of the night in so much pain I cried. I couldn't breathe as each time I breathed in I felt like i was being stabbed. I called a nurse who told me she needed to get a dr quickly. An hour later I called for the nurse again to be told that she needed to get a dr quickly !!! I was left in this pain until 8.30am when the ward round happened. They said I may have a blood clot on my lung and needed to do a scan urgently (I had been like this for over 4 hours). Thankfully it was air on my lung after the operation and they hoped it would disperse itself. I hadn't even been told that there would be several incisions for this operation. For food in hospital, I was given roast dinner, baked potatoe etc iimmediately despite the fact that I was supposed to be on clear fluids though I didnt know this as I was on morpheine and didnt know my own name. I found out I was not supposed to eat what they gave me when a nurse asked my why I was eating a baked potato when I had 2 mouthfulls left and informed I was supposed to having only clear fluids. Obviously the pure apple juice they were giving me was a no no also. This treatment continued until I was discharged a week later. My discharge letter says I had had physiotherapy for my lung which I didnt and the surgeon at the ward round told me I would be seeing a nutritionist so I would know what I can and cannot eat when I went home. This also did not happen. I was supposed to have a follow up appt with the surgeon 6 weeks after the surgery but that did not happen either. I am not a happy bunny to say the least.
It is now 8 weeks after the operation and I am still having a lot of trouble with food and wondered if anyone else has found the same thing? i dont know if its because I was given no information and perhaps what I was trying to eat set me back in recovery? I have learned though experience that if I eat little and often I dont get into as much discomfort but there are only so many bowls of jelly and toasted ham sandwiches a person can eat before you feel sick just thinking of them!!!! What should I be able to eat by this stage? One good thing is that I have not brought a single thing back up when I have eaten which is wonderful. Where food is concerned, there are so many things I cannot eat like cheese, fish, salads, eggs and I cannot drink milk except for a little in tea.
I tend to have pain in my chest just under my breats bone most of the time. Its not so bad if I just sit but as soon as I try to move around back it comes. Its a deep pain that drains me. Is this happening to you also?
I also suffer from IBS and since the operation, each time I eat the food goes straight through me immediately. I am thinking its because of the operation and that it will settle at some point. Anyone else had this problem?
If anyone has had this surgery, please could you help me?
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