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Achalasia and POEM treatment in UK

Posted , 13 users are following.

quantumq4
quantumq4

Hi all. I'm about to have POEM treatment for Achalasia and have been posting on other pages, but as there doesn't seem to be a 'blow by blow' account of anyones tests, treatment and results, so I thought I would put mine out there for everyone else who has to go through this crap, so they can get an idea of timescale.

I hope this helps.

0 likes, 52 replies

52 Replies

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  • d69818
    d69818 quantumq4

    Posted

     Wishing you the best outcome from POEM, and getting your life back.
  • maya2452
    maya2452 quantumq4

    Posted

    I live in the U.S. and have a POEM procedure scheduled for Dec. 7. I think you were lucky that they offered this to you. IMHO, it is your best shot at being able to eat more normally. I"m in the same situation as you--I can barely keep anything down. I've been dealing with this for 16 years but in the last year it has gotten so much worse.

    I wish you the best with your procedure. Please let us know how you are doing. I'd like to hear your follow-up.

  • k98276
    k98276 quantumq4

    Posted

    Thank you so much for this information! I am a 51 year old female who is newly diagnosed after having symptoms in varying degrees for five years. Have had an upper GI and will be having an endoscopy under anesthesia mid-December. I am in the states and keeping my fingers crossed that I will be able to have a POEM. I and my family are so ready for me to move beyond this, and your awesome words were exactly what I needed right now! Thanks again, and best wishes for a speedy recovery. 
  • phenix32316
    phenix32316 quantumq4

    Posted

    There is great forum in Facebook. Keep your spirits up, keep the stress down and find your triggers. One more thing, learn to sleep sitting up
    • quantumq4
      quantumq4 phenix32316

      Posted

      I've been through the sleeping sitting up phase. I don't get acid reflx so don't need sleep sitting up anymore. I'm miles better than I was.

  • asha28860
    asha28860 quantumq4

    Posted

    Hi,

    It sounds like you had a hard time, but you seemed to have manage very well. Hope you can continue your work soon, and hope the you keep recovering quickly. Good job.

    Your post has given me some strength...though I don't know what I have just yet.

    Good luck!

    Thank you.

    Asha

  • cherryflower
    cherryflower quantumq4

    Posted

    Thank you all for the information about POEM. I am thinking of having one in the new future. could anybody help me with the cost of doing POEM in the NHS or private? does it have to wait for a long time?

  • cherryflower
    cherryflower quantumq4

    Posted

    Did you do it in NHS or in pricate? do you still remember the cost ?

    • quantumq4
      quantumq4 cherryflower

      Posted

      Sorry for the long delay, I've not been on here for ages.

      I had my POEM on the NHS so I've no idea of the pivate costs.

    • adam78621
      adam78621 quantumq4

      Posted

      Ive followed this post after being diagnosed today - through the NHS after a 6 month intense period.

      How are you now? After some time has passed?

      Thanks,

      Adam

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