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Achalasia cardia

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shehnaz5
shehnaz5

Hi, i have since 2016 i was treated in 2018 by POEM almost 3 year's now.I noticed one thing this disorder doesn't effect only body but also mental health.

I faced and still facing problem in making people understand why i can't swallow some foods Why i get spasms when i m in stress spasms are not just gas attack there are close to heart attacks.

I m looking for people with same disorder in india or Telangana to connect with me so we all can share our experience and stress related to Achalasia cardia

Thanks 👍

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1 Reply

  • Pepita933
    Pepita933 shehnaz5

    Posted

    I'm not in you area of the world, but i had a Heyer Myotomy fundoplication in 2014. I have to tell you based on my experience, explaining what we can eat and the difficulties we experience will not be understood, even by doctors! I had a general surgeon tell me he cures Achalasia with his surgery. I have a friend that I have gone to lunch with weekly for many years, until recently she just thought I was being a hypocondriac/diva. We went to the movies and she got popcorn and offered me some. I remember telling her I would love it, it was one of my favorite foods, but I couldn't eat it any more. That seemed to speak to her more than me telling her I couldn't eat salads etc.

    I seem to be having increasing problems with the Achalasia. I saw my Gastro. today, and he told me I seem to be on the down hill slide. That more surgeries don't get as good a result as the first surgery. more tests to come.

    So I would tell you to enjoy what you can, and not worry or explain your difficulties.

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