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I have had swallowing problems (both solid food and liquids), severe chest pain, throwing up, dilations, etc., over the last year. I have had three dilations in one year, each time when I have been unable to swallow food and liquids for 3-4 weeks. I dropped 30 pounds the first two months this started happening.
I had a modified barium swallow test done, with results that led the radiologist to suggest it may be beginning achalasia. The doctor that ordered that test ignored the comment, and said he didn't know what to do, and basically to just live with it.
I am now on my 5th doctor, who actually gave me hope when he said he was sure it was achalasia, and bullied me into a manometry test (which I had tried twice before but pulled the tube out before they could even get a measurement). I got through it but the results said only 4 out of 10 swallows showed problems, so the doc said just continue to follow the GERD diet and sort of kicked me to the curb. I've been following the GERD diet for 6 months with no change.
Has anyone had achalasia-type symptoms but found they did not have achalasia? If so, were you able to find anything that helped? (I do know that drinking water helps greatly to mitigate the chest pain when it occurs.)
And does anyone have advice on how to address the fact that doctors who can't figure it out seem to just refer you to the GERD diet? (I do have GERD, but it is controlled with medication.)
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