AchalAsia type 111

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Hi I was recently diagnosed AchalAsia type 111 but also have gerd and really bad bloating and stomach spasms .i can totally relate to doctors not listening . 

My gastro was no help after diagnosis told me to google it and he didn’t have time to talk about my stomach issues until 8 weeks later when he wants me Back.  He didn’t bother telling me I had hernia until I read the report at home . He decided not to do  24 hr ph test at the time of motility test ev though I have all the symptoms of gerd, regurgitation and severe nausea

.i won’t be going back to him 

Has anyone else got type 111? 

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8 Replies

  • Posted

    There are 3 types of A 

    I,2,3 

    Not sure on 3 but my other half has 2 which responds well to surgery 

    Get yourself to Queens Medical Centre in Nottingham Dr Ian Beckingham he’s your man. He knows all about A 

    As GP to refer you 

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    • Posted

      Thanks I live in Australia and will definitely think about surgery as soon as I cannot afford it 
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  • Posted

    Hi, please forgive my ignorance but, I don’t understand what Achalasia type 111 is. I’m also suffering from extreme abdominal distension but, I’ve had Achalasia since 1985. I’m awaiting CT scan results to see what is causing the distension.
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  • Posted

    What is type 111?  I have had achalasia for 23 years and have never heard of type 111.  I have severe spasms still - just recently started after having 2 hellers myotomies 20 years ago.  I am having more tests since they have found a bulge at the lower end of my esophagus now.
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  • Posted

    The different types of achalasia can be confusing, and I am not confident about this.   Some doctors do not find it helpful to differentiate the types into 1,2 and 3.   But to the best of my knowledge:

    ?Classical, type 1;  means that there is no peristalsis (ie no muscles contracting to propel the food through the oesophagus;  and the lower oesophageal sphincter -LOS, the valve into the stomach, does not relax)

    ?Compression, Type 2:   means that there are problems involving the pressurisation within the oesophagus (ineffective, uncoordinated peristalsis and lack of LOS relaxation).   The pressure measurement relates to how well the muscles work to propel the food down.

    Vigorous, Type 3:  means that there is chest pain (high amplitude pressure spikes, and uncoordinated vigorous contractions, with lack of LOS relaxation).

    ?I am not sure whether they are necessarily steps of progression in seriousness from type 1 to type 3.   Nor am I sure that painful spasms only occur with Type 3.

    What I would say is that if the doctor says you have Type 3, you will certainly know about the pain if it.   It will depend on what exactly causes the spasms, which sometimes can be reflux.

    ?I think it would be possible to repair a hiatus hernia surgically at the same time as performing a Heller's myotomy, which would also involve a wrap round the base of your oesophagus with the top of your stomach (or, alternatively, a POEM procedure which may not solve the reflux issue), but it would need careful study beforehand by the surgeons to make sure that they got the procedure as near to the optimum best result they could.   It helps them to plan surgery best if they have all the results of manometry and pH monitoring to hand, because it is important to judge exactly how far to cut the muscles that are causing  the achalasia problems.

    ?This really is a specialist area and you need to be going to an experienced specialist Upper GI surgeon

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  • Posted

    Hi Kerry, I’m presently suffering from extreme abdominal distension. I’ve had Achalasia since 1985 and, am awaiting surgery for an oesopegetomy but, this distension has puzzled the consultants. I had a CT scan over a year ago and, it showed I had a small hernia that I was not aware of. I have recently had another CT scan to find out what is causing the distension but, I have been huge for almost 10 weeks now. And, so painful when I swallow anything 
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    • Posted

      Thanks Nettie

      Good lunch with the ct.. let u know how u go

       I’m going to see my Dr ask for ct .

      Feels like swallow razor blades sometimes and the nausea is so bad 

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