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Achalasia, your experiences and my story.

Posted , 14 users are following.

elfie90
elfie90

Hi, new here. I have been suffering with sickness, extreme dysphagia, weight loss and chest pains for 12 years. I am 27 years old. I have had repeated endoscopies over the years which never showed anything significant, however the one I had this week shows probable achalasia. My weight has plummeted to 7.5st. I seem to struggle with all food and liquids other than water. I have to drink several glasses of water whenever I eat to 'push' the food down. I can be sick anywhere between 5 and 20 times per meal. It has been extremely distressing for me to have faced frequent accusations of being bulimic or this being all in my head. I even wake up vomiting in the middle of the night. I feel like this condition has taken over my life. 

Im interested in hearing your stories. Is there hope yet? 

1 like, 36 replies

36 Replies

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  • GlamC
    GlamC elfie90

    Posted

    I was diagnosed at the age of 30 in 1983. My weight had dropped by 4 stone and I too had been thought to have bulimia before diagnosis. My condition was diagnosed following a barium swall and follow through on X-ray. I had a Hellers op which in those days was a far bigger operation. This was very successful and I went back to normal life for the next 30 years after all the distressing symptoms.

    wish you good luck.

     

  • quantumq4
    quantumq4 elfie90

    Posted

    As I'm soon to have POEM I'm writing about my experience which Will include post-op pain/swelling and weight gain.

    It can be found here;

    Achalasia and POEM treatment in UK

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