achalsia/Hellers op

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I have had the Hellers op for achalsia on 2 Jan 2008

I had the condition for 18 months, worsening every month

Today it is 13th Jan and I am starting to eat sloppy foods with ease and drink easily. Main prob is stomach has shrunk over the time and will not let me have the meal I want

This I can get used to

I had shingles two years ago also, but many have this, and A. only occurs in about 1 in 100-200,000 people. It is still not proven, and there is not a lot you can do about it anyway. I suppose it's nice to blame something...

A very miserable, inconvenient and debilitating condition, tho not life-threatening as such (except the desire to finish it sometimes)

It is early days yet, but if anyone wants to chat about the condition (many GP, and specialists are in the dark), or about the op please do

I have had two dilations and two botoxes before I finally had the op. It took three hours, and he did not puncture the mucosa

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4 Replies

  • Posted

    :D my 15yr old daughter has the condition and had the hellers and fundoplication op last july. it was like a miracle cure. she is eating lots now and very really complains of reflux and only has the odd pain. her weight is going on nicely and we are a lot happier in our house apart from her getting her teenage attitude back lol. [/quote]
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    • Posted

      Hi landylara,

      I'm a mom in your shoes. I've a 15 year old daughter with Achalasia. Hope your daughter is continually doing well. I hope I can talk to you.

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  • Posted

    Where did you have your ops? Was it on the NHS?

    Did you have to wait long? Glad your both getting better. :D

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  • Posted

    my daughter had it done in nottingham under the NHS the surgeon and her consultant were excellent. the surgeon had the adult surgeon with him as it was rare for a child to have achalasia but everything went to plan. once fully diagnosed she didnt wait long as her weight had plummeted and she couldnt keep her feed tube down due to her vomiting everytime she ate.
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