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  3. Polymyalgia Rheumatica and GCA

Aches and pains

Posted , 8 users are following.

anne28129
anne28129

I have suddenly gained a headache and my neck is really stiff!

My arms and shoulders are also really uncomfortable! Just ironing or carrying long got objects and my arms and shoulders ache! Not sure why! My pain is usually in my legs! That’s gone! 

0 likes, 7 replies

7 Replies

  • anne28129
    anne28129

    Posted

    I meant to say carrying light objects 
  • ptolemy
    ptolemy anne28129

    Posted

    Have you seen a doctor to diagnose the problem? PMR is bilateral in shoulders and / or legs, but there are other things that could be the cause too.
  • EileenH
    EileenH anne28129

    Posted

    You are aware of the potential for PMR to progess to GCA? The headache does concern me a bit. Especially in tandem with what sounds like a flare of PMR.
    • anne28129
      anne28129 EileenH

      Posted

      I have PMR and GCA

      Both we’re diagnosed last November 😟

      live struggled to reduce the steroids but haven’t had headaches for quite a while!

      I’m on 7mg do you think I need to up them?

    • EileenH
      EileenH anne28129

      Posted

      Possibly - but you DO need to speak to your doctor about the return of the headaches. It could also be a touch of poor adrenal function - and if that is the case trying to wait it out might be better as if you raise the dose again the adrenals won't need to wake up until next time you reduce the dose - you will face that side sooner or later.

    • EileenH
      EileenH

      Posted

      Forgot to say - you probably DON'T need to return to a really high dose but going back to where you had no symptoms and reducing slowly again might be needed. Hence why I say speak to your doctor. 

  • Mrs_Hobbles
    Mrs_Hobbles anne28129

    Posted

    Yes, it looks like you do need to increase in your dosage! If it were only a flare up if PMR, a few mgs would probably work for the aches and pains but as you've also had a bad headache, this concerns me. Would you say its the same as when you were diagnosed with GCA? If so, you'll need to increase to at least 60mgs to deal with it and not take any chances. Can you get to see your doctor/rhumy quickly?

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