Aching arms and wrists
Posted , 14 users are following.
I was diagnosed with Polymyalgia last November, and my doctor started me on 15mg. of prednisilone. This was wonderful as I had no more aching arms and wrists. I saw a rheumatologist a couple of months ago who asked me to go down slowly to 10mg which I did, but now have the pain back in my arms and wrists. I told him that I was very lethargic, and he said that could be due to the steroids. I have no energy at all, and have lots of hot flushes.
Has anyone else felt like this?
1 like, 34 replies
carolk muirkelsi
Posted
hi i am 3years on taking 7mg pred i would like to blast some of the myth re pmr a you get pain with pmr and wh en you start on pred it does not disappear it just gets bearable so forget the miracle cure this just damps down the inflamation,b some of us are not text book i was never able to reduce in large doses its just been slow small steps and now its a snail pace !!!! c quite a few drs do not understand pmr and see it as a failure if you are not coming off steroids ,no one wants to be on them but we have no choice ,d fatigue does not go away its part of this condition and you have to create a lifestyle that accomadates the muscle fatigue when your legs and arms feel like lead .e we have to understand that often we do not look ill so people do not always understand its up to us to tell them what its like .this is a long haul thats difficult and frustrating but its not life threatening and it will go away carolk
marykay62062 carolk
Posted
escot carolk
Posted
I also suffer with COPD, which is under control with medication which is working. I have regular check ups. However with PMR the checkups have never been consistant, only if I ask for them I told my GP that my achy arms have returned, and was told that this is because of my reducing of the steroids, and if that bad try taking paracetamol, so if this is the case, why was I told to go on steroids in the first place, could have avoided weight gain,and withdrawal aches, seems I am back to square one, and on top of all this now being told you dont have PMR as you dont get pain with PMR, Fibromyalgia more like it, but nothing offered in the way of help
MrsO-UK_Surrey escot
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escot MrsO-UK_Surrey
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I can only lay on by back in bed, cant lay on my side as my arms are painfuk,,,, etc.
MrsO-UK_Surrey escot
Posted
If you can remember at which dose you last felt comfortable, then if it were me I would return there for a few days - if your pains improve, then you will have an answer.
Nefret muirkelsi
Posted
Of course patients with PMR have pain and that Rheumy just hadn't a clue. Why does he think we all gather in the surgeries asking for pain relief? Ask your doctor for a second opinion - you have the right to do this - and tell them why. Steroids are not a painkiller, what they do is dampen down the inflammation which causes the pain. I have never found any conventional painkiller effective for PMR.
Fibromyalgia is a completely different type of pain - well, mine is and the stiffness which accompanies the pain in PMR doesn't happen. There are some treatments out there for Fibro, but that is a very indvidual thing - some find one type helps, the next person another. If he thought you had Fibro, why didn't he offer any of the usual solutions?
EileenH Nefret
Posted
Moderators - I assume it is too late to do anything but this format STINKS! You just about killed this group a couple of years ago - now you are having another go. It is an absolute pain having to reply to specific people when you want to join in a discussion.
New improved my foot!
muirkelsi EileenH
Posted
I completely agree with you.
Is there anywhere on this site where people can join as a group, and then anyone can join in discussions?
Definitely something wrong with the way that it is at the moment!!
Emis_Moderator EileenH
Posted
The reason the forums were changed to this style with nested comments was because of the way the conversations sometimes flowed. A lot of the threads in the forums have hundreds if not thousands of replies (not necessarily PMR) as users keep posting in the same discussions rather than starting a new discussion. This means that in the middle of a discussion someone would ask something else that took the initial discussion down a different route. If there were several posts after this and someone wanted to reply to the post for example, 10 posts earlier, the actual reply was "out of place". Having the nested comments allows for "sub-discussions" within the main thread and we have had postive feedback about this.
As there was no general "Reply" button at the bottom of each page this was causing confusion and the thought you had to reply to an individual user to join in the discussion which was not the case. The way it was you could have replied to the initial post at the top of the page to put your comment in the main thread (and still can). Due to feedback there was a release yesterday which has reinstated the "Reply to xxx's discussion" at the bottom of the page ("Reply to muirkelsi's discussion" on this page for example). This will take you to the reply box at the top of the page but will put your reply at the end of the thread as it did previously. If you need to view the last post while typing your reply, you can sort by "Latest" and the last reply in the main thread will be under the reply box.
Sorting by "Latest" will only sort the main thread replies by reverse date order as it always has. The nested comments under the main replies will always be in time/date order, oldest first.
We have also added a "Start your own discussion" button to try and encourage users to post separately rather than keep posting in the same discussion.
Regarding taking longer to read - there is the Notification link in the user panel at the top right. This contains links to all replies etc as you receive in your emails which will take you directly to each comment. As part of the release yeterday there is a page in your profile here https://patient.info/forums/me/notifications which lists all of these.
I hope this helps and as Philip has said I am feeding back all comments about the site good or bad. I will be writing a guide to using the forums when I get time but as I always say, if any user has any issues or needs to ask any questions please use the Message facility to let me know directly or post in here https://patient.info/forums/discuss/new-style-forums-196496 I will be updating that discussion with details of other things in the release yesterday. There will be another release, probably this afternoon, which will fix some issues we have noticed over the last few days.
I will remove this post and the few in this nested thread once I have updated the discussion linked above so this discussion is back on topic.
Regards,
Alan
Emis Moderator
escot Nefret
Posted
From the first consulatation I had with him,I did not like his attutude,as I have a hearing problem, my Husband came with me, and he too was gobsmacked as to how this guy spoke,,,,I was going to cancel the appointment that I had on the 13th of May with him, but we had some family problems,and I never got round to it,anyway I wanted to see if my ESR has risen, which it had...because of the reduction,
What I did not like this time, was his Tutting when I asked him to repeat something to me, and him saying, obviously you had not been listening to me first time, as I would not have to repeat to you,
I have to say that I too deal with the public, and yes sometimes it can be hard, but I am never rude to them....and if I have to repeat or explain something again to them,I just do.
twigjean escot
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EileenH Emis_Moderator
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EileenH twigjean
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arlene71637 muirkelsi
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EileenH arlene71637
Posted