Acid reflux, gerd, help I have no idea??

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Back again I have gone from thinking I have uclers, to hernia to gerd I have no idea, for the past 3 months now, I have been having upper middle  stomach pain, goes to chest . sometimes in neck, heart burn, bad indeigestion, feeling sick, feels like pain in my ribs, mostly after eating but sometimes when not eating, Feels like something is stuck in my chest area for a while then settles, pain n my breat all over chest area really, cant get comfty, so tired as not sleeping with it, had blood test, endoscopy, barium swallow water test all normal, recently been put on laporazole,been on then 2 weeks, not helping, can someone please help me, doctors have not said whet it is, they think it could be gerd but not said, I have also been constipated a lot and do have ibs, dotors are not helping any adive please.

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  • Posted

    Hi there!

    Not sure I have much advice, but I sure can sympathize with all you are going through! I, too, am experiencing many strange symptoms!

    Interestingly enough, mine STARTED following a colonoscopy and upper GI that they did when they found occult blood in my stool sample. Prior to these procedures I was FINE!

    First of all, the preparation for the colonoscopy REALLY, REALLY irritated my stomach! I usually avoid citrus, so this time I used the cherry flavor, thinking it would be better. It wasn't better! Also, I am very careful to watch the amount of sodium I ingest because it makes me feel really bloated and increases my blood pressure. The prep REALLY was causing me LOTS of discomfort in my stomach but also in my whole upper GI tract.

    Think "the cure is worse than the disease" old saying!

    Anyway, I'm thinking that the prep for the procedure plus MAYBE some roughness by the doctor DURING the procedure MAY be causing the discomfort I am feeling NOW.

    I get the heavy phlegm, the need to clear my throat OF that phlegm, burning, at times about halfway down inside my chest (esophagus?), a bloated feeling at times, pains in my stomach like I ate something BAD, two, sometimes three bowel movements a day which occur after eating, occasionally fast trips to the bathroom of diarrhea, pain in my gut which sometimes disappears after a bowel movement but not always.

    Since I'm not confident of the doctor situation, I have not been back to see him. With the large number of people in his waiting room, I have this suspicion that the prep and subsequent procedures just MAY be providing him more patients which, in turn, may be providing him with more MONEY! My gut feelings are usually right, so I am trying to deal with my symptoms myself for now.

    Hearing you tell of all your tests taken and them all coming back negative YET you still not feeling well further underlies my suspicion that it maybe is the PREP and PROCEDURES DONE that keep us feeling poorly and not just issues that are taking place in our bodies!

    You didn't mention your age. I am 64 and recently had two total knee replacements (last June and October). I had been feeling really good UNTIL May when I had my colonoscopy and upper GI. Not lo g after that I had severe knee pain which took me back to my surgeon and then the two knee surgeries. This stomach thing started several weeks ago and felt a lot like a stomach virus and intestinal flu. My husband also had similar symptoms, so I thought MAYBE food poisoning or some food-related issue.

    As you can see, I am all over the place with this!

    I stopped drinking coffee yesterday, had oatmeal with yogurt and hot tea for breakfast, and had soup for lunch. I had a sandwich and a chocolate Frosty for dinner. I felt a bit better yesterday. I am going to have oatmeal and yogurt again today. I have heard both are very good for the GI tract.

    I am going to stay away from coffee, tomato-based foods, soda, and any greasy food that may be causing issues.

    When needed, I take antacids, and I am trying to drink more water.

    I will let you know how it goes!

    Wishing us BOTH some answers AND hoping we can figure this out very soon!

    Stay in touch, OK?

    • Posted

      At the moment I am tying different foods, I dont know what to do if I am honest cant seem to lead a normal life, Im 47 by the way but a single mum so it is very hard for me , thanks for your advice
    • Posted

      From what I have been able to gather, finding offending foods is a big help. Also, I have heard that WATER, with or without ice, can be a huge help to lessen that acid burn.

      Paul brought up a good point about TRYING to stay calm, too! I know that when I am feeling bad I tend to get worried that I will soon feel worse. Then I DO feel worse! Trying to relax and getting my mind off my issues DOES help!

      Take care! Looking forward to solving this with you!

    • Posted

      I have the same thing. It is worse after I did the test. In the report it said that my stomach is normal but they still take biopsy. It getting worse after I had endoscopy. I agree with you about MONEY. Now I dont know if I can trust docs. This is not the first time I did it but the first time in public hospital. I was so worried that I want to go to Public for the Specialist can make arrangement quicker for me. If I wait to the end of that month, then I can have private practice. The public hospital saves me 2,000.00 bucks so off I go and suffer. I used to go another one he is very good. I went back to him asking for another endoscopy to clarify my problems of Z line( I forget to tell you that I have Zline irregular but they dont take sample of that.) He refused saying that probably he would find nothing. The Public hospital destroy my organ. I will go for Ph study test. I am scare that it will make my food pipe become thinner and causes more trouble. Since my old specialist refuse to do another endoscopy  I am thinking of going back to VN and do it there, cheaper and safer.
    • Posted

      It is really hard to know what to do when trust issues get in the way!

      Meanwhile, my oatmeal with fresh blueberries, staying away from coffee, no tomato anything, yogurt, plenty of water and hot tea have seemed to help these last two days.

      I hope that you get some issues solved, too! Figuring everything out just EXHAUSTS me after having gone through TWO TOTAL KNEE REPLACEMENTS just a few months ago. Somehow you THINK you can finally catch a break, but that doesn't always happen.

    • Posted

      I know how you feel. I hope your knees will get better each day. Some says Oat is not good for it is full of histamine and so it will cause heartburn. I now only drink soya milk the ones for Toddler for breakfast. it costs me a lot for breakfast. I am nearlycome to retirement age and I do want to stop work but with the costs of living it makes me think twice. I have a little bit problem with my knee. I dont know whether Nexium will make it worse. I try Bi-carb but it seems causing my arm joint pain. Well life is hard and harder for elderly people. I have a friend have the same problem with you but he is walking fine now. So dont be worry it takes time.  Sometimes I dont know what to eat or should I eat now. I work shift work makes things harder. I wish you all the  best Cheryl. I feel depressed for not having trust to doctor nowadays. it is just a matter of luck when it comes to Professional. Sad isnt it. It is modern thing now. Just hope for the best.
    • Posted

      Thanks for your kind words!

      My knees are doing good. I just had hoped to ENJOY them a bit before a new health issue reared its ugly head!

      So far oatmeal is pretty good in my stomach. I added blueberries today, and still things were good. From what I can tell so far, COFFEE seems to be what REALLY sets off my stomach issues. This never used to be the case. Maybe it was the combination of some Mexican food I had on Sunday. I LOVE Mexican food! Never had any trouble with it. As we age, more and more foods seem to cause issues. I had hoped not to have that problem for a long while.

      I hope you figure out foods that help you and learn which are trouble makers. It sure takes time to regulate everything!

      I've never tried Nexium. I DO get relief from Pepcid. Bi-Carb is hard for me to get down. I think Alka-Seltzer is the same thing. Those two and Scotch all taste like sea water to me. Pass on all three!

      Let me know if you find any other tips or good foods for the stomach. I'll keep experimenting!

  • Posted

    Hello Ashwhisper,

    So sorry you are suffering. All that you describe, save for neck-pain, has been and is at times all that I experience with gastritis. That your various tests have not shown anything obviously nasty is good, though of course this does not end the awful difficulties you are experiencing.

    To become naturally stressed and anxious through the pain and discomfort of these types of illnesses also adds its force to make the illness worse, so that a vicious circle ensues. So firstly do all that you can to cultivate calmness.

    Over two years I have wrestled with my trouble, developing and learning through trial and error what harms and helps, and there has been improvement. But it is still a work in progress with variations of discomfort and setbacks, and will likely to be an issue life-long now. But who knows?

    The measures I adhere to are below, and maybe you will gain some improvemennt as well if you try them. You can also read the ways and tips of other sufferers and Barretts' suggestions at the Down With Acid site. But time, patience and calmness are needed, for there aren't really any quick fixes for these troubles, except when they are due to things which can be put right by antibiotics, surgery, etc. I wish you well.

    Several small/medium meals per day (I have seven medium, one every two hours or so), rather than fewer bigger ones, so you don't overfill your stomach. Eat relaxed, chew well. Be sat upright for and after meals, not bent or reclining, so you don't squash your stomach and press its contents upwards.

    Fried foods, high-fat foods/meats, dairy, high-salt foods, spicy-hot foods, tomatoes, carbonated drinks, caffeine, alcohol and chocolate can all impact on stomach and reflux troubles for some people, so personal experimentation is key. Minty foods relax the lower oesophageal muscle which can let acid up easier, so they are bad. I use a fruity toothpaste, and strawberry gaviscon tablest for the now only occasional acid burn.

    Wholewheat bread, cereals, bananas, hardboiled eggs are a few of the foods that suit me, but there are pulses, rice, various beans (not kidney beans apparently) and many other things to try. Chicken is one of the best meats due to its lower fat content, though even that can hit me and is not eaten lately.

    Stress, excercise and bending activity that pressure and squeeze the stomach are also to be avoided. Be as calm and stress-free as you can.

    Having your last meal a few hours before bed can prevent or lessen reflux at night, but I found that waiting to be too empty caused hunger discomfort and kept me awake. Because of this I lie-down about an hour and a half to two hours after last meal, and this is much better. I lie raised a bit on three pillows, on my right side, which is best for me, though the left side is usually recommended. Other people raise the bed-head itself about 6 to 8 inches.

    Another thing that helps me greatly is to not burp after ten minutes after eating, as this can bring acid up and cause heartburn.

    • Posted

      As I single mum I am always under stress which I have been told makes things worse, I am trying with foods, but I still dont know what to eat and what not to eat, some days our better then others, its driving me mad, I am just wondrring is it gerd as I do not know what it is 
    • Posted

      The stress will certainly play a part in either causing or worsening your issues, and as a single mum you will indeed be stressed. Even by itself stress can cause that lump feeling in your chest. You could perhaps read about stress and anxiety management online, or maybe get some booklets from your doctor. You can learn how the fight-flight mechanism works and so on, and perhaps benefit even a little. Grab any opportunity you can for relaxation. Read, if you're a reader. Become a reader if you're not, to give yourself quiet away-times for your mind. But I know it's hard even to think of such things presently. I had the worst year of my life last year on top of my illnesses, through devastating personal matters, so I'm talking from experience.

      The what-to-eat matter is a trial and error thing, but aiming for bland foods first, avoiding the common troublemakers, and then going from there over time is what I did, with simple wholewheat sandwhiches, hard-boiled eggs (3 a day), chicken pieces, bananas (3 a day) and wholewheat cereals as my main things, then adding or trying others one at a time. Even now my diet is mainly of these foods, but with certain fruits, honey, rice cakes, etc as well, for when you gain any improvement and lessening of pain/discomfort, you instinctively cling tightly to the foods that don't upset you. Having said that, overdoing one of my food trials set me back so that I lost six pounds of weight I'd gained. The dietician said I could try Fortisip nutrition drinks, so they are a tasty help to me too at the moment. It can be a slow process, Ash, a journey with one step at a time.

    • Posted

      I know. It's a life-changing experience when such illnesses effect us physically and mentally. It is a depressing loss of the persons we were - a state of grief - and takes some getting used to as with any severe loss. My spirit sank through the floor when this started and I realised it wasn't a thing that could be sorted quickly. My love of reading and other indoor interests died outright until bit by bit I came to terms with the trouble and tried to gain improvement. Try to take heart in that you're not alone in this, and that time should bring some ease. And you can post further queries or reports on how you're doing anytime. There'll always be someone, just like Cheryl above, to hear you and try to help or sympathise.
    • Posted

      You just made me cry here. We all wish to get our lives back to typical ones. As i try to take my mind off daily stress there were times that my acidity or reflux woukd trigger my anxiousness. I made peace with myself like a matter if acceptance knowing that i had a good life and time heals all wounds. Stress management is really the key. I try to eat light and follow my gp's advice. Never realizing now right at this moment as i wiped the tear in my eye i am in a public park and should be thankful that we are all still very lucky in the manner or in the way you see things.
    • Posted

      Hello 1diiamond owl. Your comment has moved me in return. Yes, it is an emotional matter for us, and hard going through the days when pain and discomfort are part of them; and it makes you appreciate even more whatever good things and people we still have, or any periods of ease from pain we might have. A sudden personal problem in late 2014 was more than enough to break the camel's back on top of this illness. It made my attempt to heal all the more difficult. It's been one terrible journey to this very moment, and so if anyone can make some improvement as I have from hearing my case, then it'll all have been worth it. Along with your wise stress management keep trying things to ease your reflux, different foods maybe. I didn't think I'd gain the amount of progress I have, even though it's far from perfect nor totally stable. It's like nursing a sick child that needs constant care and attention. Take care.
  • Posted

    Hi there,

    As a single Mum too I understand your stress level. My question is ater you do endoscopy then you do barrium test or vice versa? Thanks . The new specialist suggest me to do it if they found nothing on my PH test. I left him to go back to my old one.

    • Posted

      Dont be so stress and I hope you well soon. Take care.

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