1. Community
  2. Skin and nails
  3. Hidradenitis Suppurativa

acne inversa for the last two years...nothing is working .Can any one tell me something to improve t

Posted , 7 users are following.

MB1969
MB1969

acne inversa .severe pain. please help

 

0 likes, 11 replies

11 Replies

  • Debbon
    Debbon MB1969

    Posted

    Hi sorry to hear that your suffering. My daughter has hs to what has helped her is to change her diet she had food and alergie test done and he can't eat dairy so as long as she's dairy free and follows a paelo diet she's almost hs free .I hope this helps.

  • Valerie19955
    Valerie19955 MB1969

    Posted

    Different remedies work for different people, it is really trial and error. there are quite a few posts on here that give a variety of diets.  Are you getting medical advice?

     

    • Debbon
      Debbon Valerie19955

      Posted

      I took her to a natraupathic and she had food and alergie test done. She's on prov biotics and magnesium to build up her amune system. She's feeling a lot better and her hs is definitely better .

    • Valerie19955
      Valerie19955 Debbon

      Posted

      Pleased to hear her HS has improved, dont often hear that, but is she seeing a specialist in HS.

       

    • Debbon
      Debbon Valerie19955

      Posted

      Yes she did see a specialist who put her on antibiotics for 3mths but they didn't work. It was seeing the natraupath that helped .

    • Valerie19955
      Valerie19955 Debbon

      Posted

      What sort of specialist, not all dermatology specialist are completely ofay with HS

       

    • Debbon
      Debbon Valerie19955

      Posted

      It was a skin specialist in East Sussex who new what it was straight away . It does seem very different for everyone.
  • francesuk
    francesuk MB1969

    Posted

    Hi

    I'm sorry to hear you've been suffering this for 2 years. As a long term sufferer myself (8yrs) you have my sympathy. Luckily, I've been generally 'symptom free' for the past 6 months.

    I was on lymecycline for almost 4 years on & off (mostly on!) but I really disliked the idea of being on long term antibiotics & the side effects so I came off & started to try various things... diets, creams, natural/alternative.... nothing helped. Then, my new GP (while referring me to dermatology) suggested I try Chlorhexidine wash while I waited for my dermatology appointment.

    It worked brilliantly within a month.

    I went to see dermatologist & he offered steroid injection directly into a problem area if it filled up again but for now, I'm sticking to the chlorhexidine (Aka: Hibiscrub) and despite some scarring, remain clear.

    Hope this helps...

    Good luck

    X

  • Meta8
    Meta8 MB1969

    Posted

    Sorry for your pain. I would recommend a nightshade elimination diet, chances are good your just allergic to them.
  • britany82223
    britany82223 MB1969

    Posted

    Hello I was diagnosed with HS in 11th grade. I am now in my first year of college and I believe I have my HS under control. Like a lot of people I take turmeric capsules everyday to keep inflammation down, eat a vegetarian/vegan diet, and wash the area with antibacterial soap (Dial) and 10% benzoyl peroxide acne wash (PanOxyl). I believe the most beneficial thing (that I haven't seen anyone talk about) I do though is massaging the area with those two products. Seriously, I think that the rubbing and massaging of the skin, boils, scar tissue, etc. helps to keep the HS from flaring up, and if it does flare up, it helps it to heal much quicker than if I did not massage the area. I do this in the shower everyday with each product. I believe rubbing the area with any sort of lubrication you have in the shower helps wonders, from coconut oil to acne wash. I just want to reiterate again that this seriously has helped me so much and I just want everyone to know about it because this disease sucks so much. Massaging the area with a good amount of pressure and some product helps so much!!! Try it!!! Good luck!!!

  • britany82223
    britany82223 MB1969

    Posted

    Hello I was diagnosed with HS in 11th grade. I am now in my first year of college and I believe I have my HS under control. Like a lot of people I take turmeric capsules everyday to keep inflammation down, eat a vegetarian/vegan diet, and wash the area with antibacterial soap (Dial) and 10% benzoyl peroxide acne wash (PanOxyl). I believe the most beneficial thing (that I haven't seen anyone talk about) I do though is massaging the area with those two products. Seriously, I think that the rubbing and massaging of the skin, boils, scar tissue, etc. helps to keep the HS from flaring up, and if it does flare up, it helps it to heal much quicker than if I did not massage the area. I do this in the shower everyday with each product. I believe rubbing the area with any sort of lubrication you have in the shower helps wonders, from coconut oil to acne wash. I just want to reiterate again that this seriously has helped me so much and I just want everyone to know about it because this disease sucks so much. Massaging the area with a good amount of pressure and some product helps so much!!! Try it!!! Good luck!!!

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.