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Acoustic Neuroma symptoms but clear CT scan

Posted , 4 users are following.

kelly35712
kelly35712

I am unable to have an MRI due to a nerve stimulator . I had a clear CT scan in January but my symptoms have got worse. 2 months ago I woke with no hearing in one ear, the hearing has slowly come back but still feels blocked. Doctor says my ears are fine when he looks. I have awful noises in that same ear now, especially at night in bed, it can sound like a fax machine to a throbbing base sound . I have high blood pressure and horrible headaches and neck aches. Tired all the time and just want to sleep. I have my eyes checked and this was also clear. If anybody could share their symptoms and stories I would be grateful

0 likes, 4 replies

4 Replies

  • hanb
    hanb kelly35712

    Posted

    Hello Kelly,

    May I ask if you have been referred to an ENT Specialist, and what other tests, if any, you have had please?

    Do you know if your high blood pressure coincided with the ear problem onset? The noise (or lack of hearing) could be enough to raise your blood pressure, but equally some of the throbbing you hear could be down to your blood pressure.

    Also, I'm hopefully assuming that your doctor has looked at you as 'a whole person', looking at all of the symptoms you have together, as opposed to viewing them as separate issues?

    If you haven't had a referral, and are UK based, your GP is not legally permitted to refuse your request for the appropriate specialist referral.

    Kind regards,

    hanb

  • delphine85169
    delphine85169 kelly35712

    Posted

    Yes, I agree with Hanb, you should have referral, there must be other tests you can have.

  • christina96841
    christina96841 kelly35712

    Posted

    I have now had two MRI scans.  The first one was on the ear canals and brain, but nothing was found;  I was diagnosed with possible Trigeminal Neuralgia and took medication for 5 months.  I have since seen a neurologist who said it wasn't TN, so I had blood tests done and a second MRI which was a more indepth one.  I am awaiting the results.  Got a letter today, to say that I will be discussed at the neuro MTD.  No date and no reason given.  Worried - definitely.  Mine started with what I described as a deep rooted ear infection in one ear.  It then went to pins and needles in the same side of my face.  I still have the deep rooted pain in my ear, and my face kills and the hair follicles on the top of my head tingle!  My GP thought it was AN in November 2014, so if it is, I will be upset that it has gone misdiagnosed! 
  • delphine85169
    delphine85169 kelly35712

    Posted

    I have a confirmed acoustic neuroma and I have none of the symptoms you describe. I have no hearing in one ear and the side of the tumour is decreasing gradually. Don't know what your problem is but this might help. Also my AN showed up on first scan and then had second scan with contrast .
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