Acquired nystagmus with oscillopsia and ballade problems
Posted , 5 users are following.
I was sitting in an emergency out of hours doctors when all of a sudden my eyes started moving like crazy and I lost my balance it was like someone poured 15 pints of alcohol down me well that was 17th October 2015 I've seen everyone at Northampton general hospital then the eye specialist referred to ta professor in Leicester royal infirmary I've had all the test there and they came up with the name of the condition I have I've now been discharged from them because untill they find the cause they can't treat it so they have now referred me to the neurological specialist in Northampton again in on maximum dosage of gabepentin but the headaches are the worst I've ever had cant leave the house on my own in case I have a seizure when out on my own I'm desperate for answers and don't know how much more of this I can take.
0 likes, 18 replies
Sochima822 kev76338
Posted
Sorry Kev, that you're going through such an awful time. The neurologist needs to find where the problem lies. Wondering is the gabapentin causing you headaches?
kev76338 Sochima822
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kev76338
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I've also been registered visually impaired and because I don't know when the seizures are coming on and are so frequent they have now taken my independence away from me, ie my driving licence
johnnynotdizzy kev76338
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What were you diagnosed with? Was it BPPV?
I had BPPV for 7 years until they cured it with a very simple treatment.
J.
kev76338 johnnynotdizzy
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johnnynotdizzy kev76338
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Do me a favour mate. Google BPPV and see if the symptoms are the same as yours. I had this condition for 7 years - it was a nightmare. Eventually I was diagnosed with BPPV and they fixed it in 30 minutes.
I was continuously dizzy, had jumping vision. It was like looking at the world through someone else eyes.
The test they do for BPPV is very simple - and involves seeing if your eyes wobble quickly when your head is tilted in a certain position.
Have a look on-line and see what you think.
I live in Derby - and saw a specialist at a private hospital in Leicester. He diagnosed and fixed it after 7 years of misery mate.
kev76338 johnnynotdizzy
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johnnynotdizzy kev76338
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They did a couple of physio exercises. One is called the Epley Manouvre. Remember when you were a kid, and you had one of those puzzles where you had to move the ballbearing around a maze to get it in the middle? It's a bit like that. The crystals in the ear that control balance had slipped out from where they should be - the Manouvre puts them back.
The test they do is called a caloric test- if you have BPPV (I.e. the crystals are free floating) the eyeballs wobble very fast and they use a special camera to measure and record it. To be clear - I was constantly dizzy/light headed for 7 years. It NEVER totally went away - some days were better than others, but it was always there.
Google it mate - I had every test known to man before it was diagnosed. I had bloods, MRI's, X-rays the works. Turned out to be something very simple - but it took me 7 years to find someone who knew what it was and how to fix it.
J.
kev76338 johnnynotdizzy
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I've seen the ears nose n throat at Northampton and apart from my hearing loss everything else was ok but I will ask.
Sochima822 kev76338
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kev76338 Sochima822
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Yes I have impaired vision as I've already said they have taken my driving licence off me
Sochima822 kev76338
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kev76338 Sochima822
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Yes I'm 51
Sochima822 kev76338
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kev76338 Sochima822
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Sochima822 kev76338
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kev76338 Sochima822
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I take wat they gave me and that's it.