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Actemra 162mg once a week 1 mg predsone a day

Posted , 10 users are following.

mjhollywood
mjhollywood

I am down to 1 mg of pred. And been on a Actamara for 6 months. I thinks its working.   I am still stiff when getting up in the morning and when sitting to long in the evening when i get back up.  But I will deal with the stuffness then be on pred!!!! I hoping one day I wake up with no stiffness. !!! 

0 likes, 7 replies

7 Replies

  • mjhollywood
    mjhollywood

    Posted

    Question.  When people say flares.  I don’t understand.? I have stiffness every morning and late at night after laying or sitting to long. ?
    • Michdonn
      Michdonn mjhollywood

      Posted

      Hi mjhollywood, we are all different, but I now know where the PMR pain strike me in my legs, arms and shoulders. If I have been out riding the bicycle and have pain in my butt that not PMR pain, but cycling pain. The same thing is true for shoulder pain, if I have been doing something that could cause shoulder pain, my first thing is to take ibuprofen. I try to think of what I have done that could have caused the pain. I been mostly PMR pain free since last June, with the exception of a few minor flares. I stay very active and positive, eat an anti-inflammatory diet, which I think all helps. Good luck on your PMR journey. And smile! ☺️
    • EileenH
      EileenH mjhollywood

      Posted

      A flare is a return of symptoms as you had at the beginning - it can either be due to reducing your dose of pred too far or too fast or it can be due to an increase in the activity of the underlying autoimmune disorder.

      Stiffness in the morning is normal to some extent since the body sheds a new batch of inflammatory substances every morning about 4am - until the pred takes effect you will be stiff and probably sore. For some people it is so bad they split their pred and take some later in the day to carry over its effect to the morning. Stiffness after being inactive for any length of time is also a symptom in PMR - sometimes it remains despite the dose but it should be improved when you are on the correct dose of pred.

    • jeannecatlover
      jeannecatlover Michdonn

      Posted

      I have heard people speak of an anti-inflammatory diet.  What exactly is that?  Can you point me toward an article or site that gives details?

      Thanks!

    • ptolemy
      ptolemy jeannecatlover

      Posted

      Type in anti inflammatory diet into Google and you should get lots of info. There are also books on diets too if you go to Amazon to check.
    • Michdonn
      Michdonn jeannecatlover

      Posted

      Hi jeannecatlover, I think you will find a wealth of information on the internet. My wife and I started with all organic and wild caught fish. No chicken, eggs or dairy, she has modified our diets over the past year to fit our life style. It all started for us because she suffered with debilitating migraines. Three days after starting the diet her migraines stopped. Has the diet helped me, I don't know, my I am PMR pain free doing DSNS taper and not going off the diet to find out. If you want more specific information send me a private message. Good luck, stay active rode my bike 23.8 miles yesterday, positive and try to smile. ??

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