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Acth test

Posted , 3 users are following.

courtnay26
courtnay26

I went to the endocrinologist

And because i have low cortisol he

Wants to do acth test

Because I think I may have a pituitary tumor

I don't think I will because

I don't want my tumor to grow

Anyways

Comments are welcome

0 likes, 9 replies

9 Replies

  • vicky61456
    vicky61456 courtnay26

    Posted

    Hi Courtnay,  I do understand you fears about all the tests that you need to discover what is wrong with you.  There is something called Addisons which is almost the opposite of Cushings.  My advice, having wasted 5 years trying to find out what was wrong with me, would be to give it a go, you can't lose anything.  Have you actually been diagnosed with a Pituitary Tumour or is that what you think you have?  Because it is so rare all the tests really are needed to get you on the road to recovery.  When you fell better you will be glad that you took the tests.  Let us know.

  • cycliccushings
    cycliccushings courtnay26

    Posted

    Courtney:

    It is VERY important that you do your ACTH test. Understand that excess ACTH being secreted into your system can cause many other medical issues

    besides the pituitary tumor. You need to know where that ACTH hormone is secreting from. I am the first person who was diangnosed with "cyclic" Cushings disease in the U.S. in 1989. I have had 2 pituitary surgeries, one on 1989 and one in 2016. I now have high ACTH and am doing testing to see where my tumor is thats secreting the ACTH..I had a Cat scan done with dye of my abdomen done on Thursday due to another med issue and they saw something on my kidney. It could be an ectopic tumor..which if it is, thats bad for me i only have one kidney. Im doing blood and saliva tests trying to pinpoint where the high ACTH is coming from as it may be on the kidney..or other organs. Please don't hesitate to do your tests.

    • vicky61456
      vicky61456 cycliccushings

      Posted

      Hi, just to say I do hope that everything will sort itself out for you very soon.  You seem to have had so many problems.  I am always grateful to hear your opinion.  Please take care.
    • courtnay26
      courtnay26 cycliccushings

      Posted

      hi cyclic cushings

      oh, that sounds tough

      I thought

      high acth and low cortisol

      meant Addisons

      maybe you have high acth and high cortisol

      I hope they find your tumor soon

  • courtnay26
    courtnay26

    Posted

    Hi

    Thank you for your comments

    I am generally fairly healthy

    Well, except fof this thing

    That could be Cushing's

    Or a tumor.

    I know I don't have Addison's

    But thank you for the reassurrance

  • courtnay26
    courtnay26

    Posted

    Hi

    I've thought about it and although I appreciate youf support , I am not willing to risk my life for a test

    Acth test's can really muck up your pituitary

    When you have a tumor

    Thanks

  • courtnay26
    courtnay26

    Posted

    Oh sorry

    It wasnt clear

    This is not the suppression test or

    The blood test

    This is when theh inject you with extra acth

  • courtnay26
    courtnay26

    Posted

    just to let you know

    I ended up doing just the

    blood (plasma) acth test

    going to see results in a week

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