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Cushing's Syndrome

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  • What to do! I am starting to give up :(

    Hi guys, If you scan over my previous posts it might give you more info to my problem here. Im 16, going through a lot right now mainly these symptoms: - absent periods - insulin resistance  - incredible weight gain, mainly on abdominal area -purple/pinky red stretch marks on abdomen and a …

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  • What do you think!

    I have the buffalo hump, I have gained weight, have no energy. and my Dr. is testing me for cushing.  My cortisol came back 1.0, 1.2, and 1.6, I am on thyroid med b/c I have hashimoto disease. I also have a lump down below my ear on the left side and I know this might sound strange but I also …

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  • Advice on Cushings

    Hi, I am receieving some very strange results and wonder if I may have Cushings, I seem to have a lot of the symptoms.  Back last year I was feeling really ill, I put up with it till March and finally went to see my GP.  My blood tests came back very strange, I suffer uneractive thyroid …

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  • Recent adrenalectomy - problems with recovery

    Hi...my name is Karen... I am 3 weeks post op from adrenal surgery. -  having problems with pain and not feeling well. I’m hoping to connect with other’s through this forum who might have gone through a similar experience. .. To condense my story,  after many months of symptoms and …

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  • What were your UFC values?

    I’m curious as to what everyone’s 24 hour urine free cortisols were during the diagnosis stage. Mine are mildly elevated, like 56 with top range being 45. Is this likely to not be cushing’s?  I have no idea what is wrong with me but I’m getting worse by the week. Today I must have lost 800 …

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  • Can 24 hr UFC volume skew results?

    I got my 24 hr UFC results back last week (finally) and my levels were above normal (54 ug for cortisol and 214 ug for cortisone) although according to my endo, the volume of the sample that I turned in was also well above normal. At first my endo did not believe that I followed …

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  • Pseudo-Cushing’s - worried I’m being brushed off

    Yesterday I met with a pituitary and adrenal specialist. I sent her my labs from my previous endocrinologists, which were borderline high with the exception of one really high AM serum which i believe was due to my birth control. She seems to think I may have pseudo-cushing’s. We are waiting for …

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  • Feeling Discouraged about Diagnosis Process

    I am curious about peoples diagnosis experiences? Mine has been incredibly painstaking and it has me feeling incredibly frustrated and frankly very confused and in the dark. How did people cope with the lengthy process? I am finding myself become more and more depressed.  Heres my very …

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  • Testing while on birth control and Spironolactone

    I’m going to have a full pituitary blood panel done this Friday and between then and next Monday will be doing 2 24 hour urine tests, two saliva tests and taking dexamethasone and having bloods drawn next Monday. However, I’ve been on birth control since April and also Spironolactone as I was …

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  • Weight loss after surgery

    I have just recently been diagnosed and they are almost positive that its a tumor in my pituitary gland but an MRI will confirm or deny. I'm curious about anyone's weight loss experiences after the removal of the tumor? That has been the hardest thing for me to deal with truthfully.

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  • Confused and Worried - Cushing’s testing

    Hi, I’m about to start the process of testing my cortisol levels for, I guess, Cushing’s. I’ll be seeing an endo at the memorial Sloan Kettering center in NYC on July 3rd, but before then I have to complete my third 24 hour free cortisol test, a saliva test, a full pituitary blood workup, and the …

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  • Best Testing for diagnosis of Cushing's.

    Hi, I am going to be tested for Cushing's disease. I was wondering what is the most accurate or best way doctors can test a patient for Cushing's. I have a choice between a dexamethasone suppression test, and a 24 hour urine test. My morning blood cortisol had previously came back normal. …

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  • Intermittent Moon Face with Cushing's

    If anyone will listen if greatly appreciate it. I've been having this issue for almost the year. My symptoms have been intermittent ( muscle wasting, moon face, brain fog, flushing sensation, bad anxiety). I went to the endo and tested but I think I should have waited for a day where my face …

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  • Finally waiting for diagnosis after 2 years of suffering

    Hi Can I ask how many of you had all the symptoms of Cushing's?  I've been unwell for 2 years and after an adrenal adenoma was found over a year ago I have gone up 4 dress sizes.  The operation to remove the adrenal gland was already in the pipeline but after having swelling in …

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  • Adrenal Ademoma & Cushings?

    I have a appointment with a Endocrinologist this month.  I had a Incidental adrenal adenoma show up on a CT.  However, they say it is nothing to worry about.  I have been gaining a lot of weight, acne, muscle spasms and weakness, urinating a lot--Get up around 4 to 10 times a night, …

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  • Do you think my child has Cushings?

    My 14 year old daughter has had symptoms for the past year or so, ever since she began menstruation. Her symptoms are: heavy prolonged menstruation, unexplained weight gain, extreme tiredness and fatigue and can barely get up in the mornings, cold hands and feet, tingling pins and needles sensation …

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  • Ayahuasca

    Having doubts about Ayahuasca ceremony. One of the contraindications for aya is high blood pressure and medication reducing HBP. Does anyone here have experience taking Aya while having confirmed Cushing's?

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  • Possible Cushing's?

    Hi everyone, I'm a 28 year old female and I'm having some symptoms that are making me concerned. I have gained 50-60 lbs in the last 9 or so months and have recently noticed a "buffalo hump" on my back. I am also starting to grow more hair on my chin and neck. I've always been …

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  • after pituatry microadenoma surgery

    hi  i have been undergone to endoscopic micoadenoma removal , but now I am suffernig from pain , flu symptoms , and I feel like alot of spice in my nose ... is it normal ?

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  • Moles and flashes

    Does anyone have an increase in the number of moles with Cushing’s or see any  streak or a specks of light?  Could they be the sign of Cushing’s ?

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  • Blood test result

    Hi I had a blood test for cushings disease, I have to wait to be told the result via post, although I was told this by a nurse the blood test result was: 170-500 nmol-metre Reference  If anyone knows what this means as I will wait forever for the letter  Thanks

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  • Looking for a bit of advice.

    Hello, everyone! I've slowly been accumulating strange symptoms over the past five years that have lead me to believe that I might need medical treatment for Cushing's, but I thought it would be a better Idea that I come here and talk to patients with Cushing's before I haul off and …

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  • cushings fsh?

    hi so i have two questions.. - how high does cortisol need to be to be diagnosed with cushings - can cushings cause high fsh?

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  • Surgery Finally!

    Afternoon All!  FINALLY I have my surgery date for the 4th March! its been a long time coming although I appreciate some of you folks on here have had to wait a lot longer than I have, albeit as we all know the wait always seems to be forever!  I have many hospital appointments before …

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  • dizziness

    Is there anyone out there who has experienced passing out and or dizziness with Cushings diagnosis.  

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  • Adrenal adenoma surprise and suspected cushing's

    Hello, everyone.  I have a question.  Was anybody taking medicine before surgery to block cortisol from affecting you? If yes, what medicine? I'm asking because I was in process of changing insurance when found  out about adenoma last week and pretty sure it will take some time …

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  • Adrenalectomy

    Was just wondering peoples post surgery experiences having had adrenalectomy... when did u start to notice changes in weight, blood pressure, pains, swellness, acne? An when could u start to do activities like the gym, socialise an back to work? 

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