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Cushing's Syndrome

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  • Adrenal adenoma surprise and suspected cushing's

    Hello, everyone.  I have a question.  Was anybody taking medicine before surgery to block cortisol from affecting you? If yes, what medicine? I'm asking because I was in process of changing insurance when found  out about adenoma last week and pretty sure it will take some time for...

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  • Adrenalectomy

    Was just wondering peoples post surgery experiences having had adrenalectomy... when did u start to notice changes in weight, blood pressure, pains, swellness, acne? An when could u start to do activities like the gym, socialise an back to work? 

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  • Buffalo hump is it Cushing's?

    Hey guys I have been super worried latley I have not had a proper period in 1 year. I got worried the doctor said it's possible it's pcos but they checked and I don't have cysts on my overies. I came across Cushing's when reaserch what's wrong with me.i realised 3 days ago I have...

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  • Surgery Finally!

    Afternoon All!  FINALLY I have my surgery date for the 4th March! its been a long time coming although I appreciate some of you folks on here have had to wait a lot longer than I have, albeit as we all know the wait always seems to be forever!  I have many hospital appointments before the...

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  • Weight loss after surgery

    I have just recently been diagnosed and they are almost positive that its a tumor in my pituitary gland but an MRI will confirm or deny. I'm curious about anyone's weight loss experiences after the removal of the tumor? That has been the hardest thing for me to deal with truthfully.

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  • Adolescent who may have Cushing's

    My 11 y/o daughter has had significant weight gain over the past three years. She has the moon face & large abdomen along with other signs and symptoms. Her cardiologist recently referred her to an endocrinologist who ordered a series of test to check her for Cushing's. We did 24 hr urine test...

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  • help with diagnosis

    Current Symptoms: Continued head rushes (see below) – 2 or 3 an hour. Worse when under stress or focusing on a task. Can feel a build up to a rush and relief after it passes (1-2 seconds). More frequent at night and even when turning while sleeping. Night sweats – soaking wet in the middle of night....

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  • Question

    Hi everyone! I have a question for all of you ladies or gentlemen that have suffered. I have a pituitary microadenoma that appears to be measuring 2mm. Does anyone know if surgery is performed for such a small microadenoma? Let me give you some of my background I'm currently doing all of my studies...

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  • Update

    Evening everyone, Its me again, writing this late at night to update you all and try and get a little bit of advise as once again the internet has very little to offer. I saw my surgeon last week who went through the whole procedure and said i should be having surgery thjs month (thank god), expected...

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  • Acth test

    I went to the endocrinologist And because i have low cortisol he Wants to do acth test Because I think I may have a pituitary tumor I don't think I will because I don't want my tumor to grow Anyways Comments are welcome

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  • Finally waiting for diagnosis after 2 years of suffering

    Hi Can I ask how many of you had all the symptoms of Cushing's?  I've been unwell for 2 years and after an adrenal adenoma was found over a year ago I have gone up 4 dress sizes.  The operation to remove the adrenal gland was already in the pipeline but after having swelling in my...

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  • Could I have Cushing's?

    I am a 21 year old female and have had a lot of odd symptoms for over a year.  My last period was in October, but I am not sexually active so I know that I can't be pregnant.  I always had regular periods beforehand, so I'm not sure what's going on.  Also, I've been steadily...

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  • IPSS Cushing’s

    Hi all, me again! I’m having an IPSS before i have the surgery and I’m VERY nervous about it as I have a fear of needles!!  Has anyone else had one (where they put the needles/wires up through the arteries in your legs and up through your neck and into your brain...?!)  Would love to know your...

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  • Just been diagnosed with Cushing's

    Hi all,  I'm totally new to all this but I was diagnosed with Cushing's disease last Sunday and am now awaiting a date to have a few more tests and then to have the tumour on my pituitary gland removed. I'm 28 years old and I think I've had it a while (3yrs maybe?) but didn't...

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  • Trying to figure out if my daughter has Cushings?

    I wanted to get advice from your group on whether or not my daughter has Cushings.  I want to give you a little background of her history. She is currently 18 years old. When she was 11 she was diagnosed  with Tourette's Syndrome. TS's. cause vocal an motor tics. At age 14 she developed...

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  • advise needed

    Afternoon All,  Looking for a little advise, my last update on here I explained how I had the IPPS test and was now awaiting surgery date. Well the test was over a month ago now and the hospital have had two MDT meetings since. I am yet to receive a date for surgery as I'm sure you are all...

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  • Last resort

    Posting here as a bit of a last resort. I’ll preface this with the fact that I know I caused this myself and am amazed at my own Capacity to ruin my body. About a year ago after massive depression I did a round of steroids for physical purposes. After about a month I stopped taking them I started to...

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  • I have been advised to post my results here. Analysis Needed.

    Can anyone analyse my results? So I have had a 30-minute short synachten test, a 60-minute synachetn test, a 24h cortisol collection and numerous other tests done. On my recent SST I got weird results, we were originally investigating for addisons but tbh my doctors here are clueless about this sort...

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  • update

    Evening all,  Me again...  So I had a call from the hospital this morning and the IPSS test came back inconclusive again as well as the CRH test that come back! Albeit they did say that they saw from the test that the tumour in my pituitary gland is now "very large" so surgery...

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  • CushingRant

    Its me again, I have no one really to rant to this about other than you helpful bunch on here. My family, partner and friends understand to some degree but of course I don't think anyone can truly understand until they go through what we all have and still are...  The last post was that I was...

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  • Steroid Tapering

    Can anyone tell me... Im down to 5 mg daily of cortef after pituitary surgery. I have body aches but other than that can function well. My endo says my adranals are sluggish. I get that but is it a good sign that I can function daily on 5 mg. Would it be fair to say my body is producing some corrisol...

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  • Vertigo

    Im 5 months out from surgery. Im reducing steroid. Down to 7.5mg. I have bad muscle aches but everything seems to be going well until this morning. Woke up with bad vertigo. Having it all day. Went to doctor but they have no idea. Anyone else experience this?

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  • More Tests!

    Evening all!  So another update on what seems to be something that has been going on forever, I recently moved from Nottingham to Birmingham so had to change consultants and have a fresh appointment over here just to confirm what we already know! Cushing disease caused by a macro pituitary tumour....

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  • Cushing ‘s Syndrome

    My Son has been seeing a doctor about 8 months & has been diagnosed with Cushing’s Syndrome.  He has been on koralym & still doesn’t feel any better.  Cannot stay awake!  He is getting very frustrated as he is not able to work.  Does anyone know if he would be eligible for...

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  • 4 years on from Cushings op and still suffering problems!

    My wife was diagnosed with Cushings 4 years ago and had op to remove benign pituitary gland tumour. Initial progress following op was good - weight loss, disappearance of hump and excess body hair etc. Currently on 20mg hydrocortisone: 10mg on waking, 5mg midday, 5mg evening plus 100mg daily of levothyroxene....

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  • Could I Have Cushing Syndrome?

    Hello all i have been in and out of the doctors lately and no one has figured out my problems. 4 years ago i started having facial flushing aswell as acne. My stomach started to have constant pain with diarhhea/constapitstion. 2 years ago the flushing spread to my chest knees and shoulders. I started...

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  • Normal cortisol levels?

    Hi again, I previously posted a discussion talking about whether I should be tested for Cushing's based on the symptoms I had stated (in that discussion) that I am experiencing.  I received my blood test results and my serum cortisol levels came back normal. I was also tested for a few other...

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  • Should I be tested for cushings? If not what should I do?

    Hi all I'm new here I just wanted some opinions on whether I should ask to be tested for cushings, especially since it's quite a rare thing to be diagnosed with.  So I'll tell you a little about myself, I'm 16 and 73kg, 5'0 - 5'2 in height, I am usually an active person...

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  • Cushings- put on hold

    For so many of us with Cushing's- Though I'm still undiagnosed We have to wait for a doctor to clue in Before we get diagnosed. I mean if i didn't spend hours researching about health, i would have no idea what is going on right now Right now, i can hardly move my neck because of this...

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  • Cushing Disease

    Hi All,  Sorry but yet again another rant and a few questions I'm hoping some of you may be able to answer for me! I have finally received some more news about going forward for my surgery to have my tumour removed... I'm being referred to a specialist in Birmingham so I'm currently...

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  • me again!

    Hi All Me again, coming in for yet another rant!  Still really suffering with stomach problems, anything I eat now no matter how little is causing me pain (although I have found yoghurt is ok). I get instant wind/cramps and Its becoming so painful and annoying!  I have taken BUSCOPAN, Tums...

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