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Cushing's Syndrome

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  • Finally waiting for diagnosis after 2 years of suffering

    Hi Can I ask how many of you had all the symptoms of Cushing's?  I've been unwell for 2 years and after an adrenal adenoma was found over a year ago I have gone up 4 dress sizes.  The operation to remove the adrenal gland was already in the pipeline but after having swelling in my...

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  • Weight loss after surgery

    I have just recently been diagnosed and they are almost positive that its a tumor in my pituitary gland but an MRI will confirm or deny. I'm curious about anyone's weight loss experiences after the removal of the tumor? That has been the hardest thing for me to deal with truthfully.

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  • Adrenal Ademoma & Cushings?

    I have a appointment with a Endocrinologist this month.  I had a Incidental adrenal adenoma show up on a CT.  However, they say it is nothing to worry about.  I have been gaining a lot of weight, acne, muscle spasms and weakness, urinating a lot--Get up around 4 to 10 times a night, depression...

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  • Do you think my child has Cushings?

    My 14 year old daughter has had symptoms for the past year or so, ever since she began menstruation. Her symptoms are: heavy prolonged menstruation, unexplained weight gain, extreme tiredness and fatigue and can barely get up in the mornings, cold hands and feet, tingling pins and needles sensation in...

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  • Ayahuasca

    Having doubts about Ayahuasca ceremony. One of the contraindications for aya is high blood pressure and medication reducing HBP. Does anyone here have experience taking Aya while having confirmed Cushing's?

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  • Possible Cushing's?

    Hi everyone, I'm a 28 year old female and I'm having some symptoms that are making me concerned. I have gained 50-60 lbs in the last 9 or so months and have recently noticed a "buffalo hump" on my back. I am also starting to grow more hair on my chin and neck. I've always been petite...

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  • after pituatry microadenoma surgery

    hi  i have been undergone to endoscopic micoadenoma removal , but now I am suffernig from pain , flu symptoms , and I feel like alot of spice in my nose ... is it normal ?

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  • Moles and flashes

    Does anyone have an increase in the number of moles with Cushing’s or see any  streak or a specks of light?  Could they be the sign of Cushing’s ?

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  • Blood test result

    Hi I had a blood test for cushings disease, I have to wait to be told the result via post, although I was told this by a nurse the blood test result was: 170-500 nmol-metre Reference  If anyone knows what this means as I will wait forever for the letter  Thanks

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  • Looking for a bit of advice.

    Hello, everyone! I've slowly been accumulating strange symptoms over the past five years that have lead me to believe that I might need medical treatment for Cushing's, but I thought it would be a better Idea that I come here and talk to patients with Cushing's before I haul off and spend...

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  • cushings fsh?

    hi so i have two questions.. - how high does cortisol need to be to be diagnosed with cushings - can cushings cause high fsh?

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  • Surgery Finally!

    Afternoon All!  FINALLY I have my surgery date for the 4th March! its been a long time coming although I appreciate some of you folks on here have had to wait a lot longer than I have, albeit as we all know the wait always seems to be forever!  I have many hospital appointments before the...

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  • dizziness

    Is there anyone out there who has experienced passing out and or dizziness with Cushings diagnosis.  

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  • Adrenal adenoma surprise and suspected cushing's

    Hello, everyone.  I have a question.  Was anybody taking medicine before surgery to block cortisol from affecting you? If yes, what medicine? I'm asking because I was in process of changing insurance when found  out about adenoma last week and pretty sure it will take some time for...

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  • Adrenalectomy

    Was just wondering peoples post surgery experiences having had adrenalectomy... when did u start to notice changes in weight, blood pressure, pains, swellness, acne? An when could u start to do activities like the gym, socialise an back to work? 

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  • Buffalo hump is it Cushing's?

    Hey guys I have been super worried latley I have not had a proper period in 1 year. I got worried the doctor said it's possible it's pcos but they checked and I don't have cysts on my overies. I came across Cushing's when reaserch what's wrong with me.i realised 3 days ago I have...

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  • Adolescent who may have Cushing's

    My 11 y/o daughter has had significant weight gain over the past three years. She has the moon face & large abdomen along with other signs and symptoms. Her cardiologist recently referred her to an endocrinologist who ordered a series of test to check her for Cushing's. We did 24 hr urine test...

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  • help with diagnosis

    Current Symptoms: Continued head rushes (see below) – 2 or 3 an hour. Worse when under stress or focusing on a task. Can feel a build up to a rush and relief after it passes (1-2 seconds). More frequent at night and even when turning while sleeping. Night sweats – soaking wet in the middle of night....

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  • Question

    Hi everyone! I have a question for all of you ladies or gentlemen that have suffered. I have a pituitary microadenoma that appears to be measuring 2mm. Does anyone know if surgery is performed for such a small microadenoma? Let me give you some of my background I'm currently doing all of my studies...

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  • Update

    Evening everyone, Its me again, writing this late at night to update you all and try and get a little bit of advise as once again the internet has very little to offer. I saw my surgeon last week who went through the whole procedure and said i should be having surgery thjs month (thank god), expected...

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  • Acth test

    I went to the endocrinologist And because i have low cortisol he Wants to do acth test Because I think I may have a pituitary tumor I don't think I will because I don't want my tumor to grow Anyways Comments are welcome

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  • Could I have Cushing's?

    I am a 21 year old female and have had a lot of odd symptoms for over a year.  My last period was in October, but I am not sexually active so I know that I can't be pregnant.  I always had regular periods beforehand, so I'm not sure what's going on.  Also, I've been steadily...

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  • IPSS Cushing’s

    Hi all, me again! I’m having an IPSS before i have the surgery and I’m VERY nervous about it as I have a fear of needles!!  Has anyone else had one (where they put the needles/wires up through the arteries in your legs and up through your neck and into your brain...?!)  Would love to know your...

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  • Just been diagnosed with Cushing's

    Hi all,  I'm totally new to all this but I was diagnosed with Cushing's disease last Sunday and am now awaiting a date to have a few more tests and then to have the tumour on my pituitary gland removed. I'm 28 years old and I think I've had it a while (3yrs maybe?) but didn't...

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  • Trying to figure out if my daughter has Cushings?

    I wanted to get advice from your group on whether or not my daughter has Cushings.  I want to give you a little background of her history. She is currently 18 years old. When she was 11 she was diagnosed  with Tourette's Syndrome. TS's. cause vocal an motor tics. At age 14 she developed...

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  • advise needed

    Afternoon All,  Looking for a little advise, my last update on here I explained how I had the IPPS test and was now awaiting surgery date. Well the test was over a month ago now and the hospital have had two MDT meetings since. I am yet to receive a date for surgery as I'm sure you are all...

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  • Last resort

    Posting here as a bit of a last resort. I’ll preface this with the fact that I know I caused this myself and am amazed at my own Capacity to ruin my body. About a year ago after massive depression I did a round of steroids for physical purposes. After about a month I stopped taking them I started to...

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  • I have been advised to post my results here. Analysis Needed.

    Can anyone analyse my results? So I have had a 30-minute short synachten test, a 60-minute synachetn test, a 24h cortisol collection and numerous other tests done. On my recent SST I got weird results, we were originally investigating for addisons but tbh my doctors here are clueless about this sort...

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  • update

    Evening all,  Me again...  So I had a call from the hospital this morning and the IPSS test came back inconclusive again as well as the CRH test that come back! Albeit they did say that they saw from the test that the tumour in my pituitary gland is now "very large" so surgery...

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