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Pituitary tumours. Complications due to large tumour

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laura37766
laura37766

Hi all. I've recently, finally got my diagnosis of ACTH dependant Cushing's Disease and i have a 12mm macroadenoma in my pituitary gland. I'm currently awaiting surgery. Its been delayed slightly due to high blood sugar levels but i think ive had it since 2016. My symptoms are pretty severe. My self loathing is horrific. I have a really good consultant who has got me under one of the best neurosurgeons in the UK so i'm hopeful all will go well but he's warned me that as my tumour is larger than normal, it may be complicated and he may need to go in more than once in the hope of getting it all. If not i may need future treatment after. Possibly radiotherapy. I was wondering if anyone else has had a similar experience? I'll be honest, i'm pretty scared about it all!

Laura

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