Anxiety, depression, coping skills. Tapering process.

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Did anyone deal with anxiety, depression, hopelessness, crying, poor coping skills. What helped? Will things get better after steroids? Was anyone given meds for these issues. How was your tapering process only physical symptoms any mental? How long did it for you to taper and get off? I was diagnose with Cushing's Jan 2019 for adrenal tumor major anxiety and emotional instability feelings suddenly among all the other issues we go through. I had the adrenalectomy and have been on steroids for over a year now on 15 mg a day. Its been an emotional roller coaster. Unfortunately now a Pituitary tumor Prolactinoma taking new meds started this year 2020. Cabergoline/Bromocriptine to shrink and reduce hormone levels prolactin and growth hormone. To top all that off menopausal with estrogen/progesterone and Hypothyroid. Basicially a hormonal mess and alot of that can cause mental health symptoms to include PTSD, which can occur. Days vary. Does anyone relate to this or have any advice with all of this? Hoping to hang in there while figuring out what is causing what symptoms, whats normal, and what I have to do for quality of life. Thank you.

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2 Replies

  • Posted

    Having read your comments re Cushings Syndrome I can relate to the problems you are experiencing. I was diagnosed with Cushings seven years ago and I had a benign tumour removed from the pituitary gland at Kings College Hospital in London a year later. Since then I have been taking daily Hydrocortisone and Levothyroxene. Whilst the medication does help relieve the symptoms, I still suffer from episodes of extreme anxiety for no apparent reason and this was not something I suffered from prior to the Cushings diagnosis. I have an annual check-up with blood tests but with no major changes in treatment. I guess this is something I am going to have to live with!

  • Posted

    You poor dear! I don't know where you live, but if you have any ability at all to contact the National Institutes of Health in Bethesda MD, they have experts that can help. The Cushing's Support and Research Foundation held an excellent patient education conference last October in Atlanta and several of the presenters were from NIH. The presentations are on the CSRF website. Dr. Lynette Nieman was the expert endocrinologist from NIH. And that's what you need, an expert endo that understands all the ramifications of Cushing's and the ability to treat both the clinical numbers and the quality of life issues. Good luck!

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