Actinomycosis

Me neither, but am going to ask the question of Fizzyjam, 

Where you diagnosed with Osteporosis?

Have you actually been taking Risedronate for 9 years?

If so you should have had a medical review at 5 years...............have you read up on it on the National Osteoporosis site. https://nos.org.uk/about-osteoporosis/treating-osteoporosis/osteoporosis-drugs/risedronate-actonel.

I am nosey and interested......................

Thankyou Eileen both for your reply and also for taking the trouble to look it up.I too had a look today,and that was the information I gleaned.

I have not been offered anything,just “wait and see how you are in July at your next appointment”.If I notice any changes in the scar tissue I am to contact them.

I was initially told by the consultant that it was nothing to worry about,however now that I have a name for the infection and having looked it up on line,it seems a little more complicated than I thought.

I have an appointment with my GP next week to discuss PMRdrugs etc. I shall ask her advice.

thank you again Eileen.

Hi Lodger UKNE

I was diagnosed with PMR in Nov 2016. initially I was prescribed Allendronic Acid by the Rheumatologist,which had an agonizing reaction..truly ..I was in a standing  position for five hours unable to step forward or move..unforgettable. 

I was asked if I would consider trying Risedronate as an alternative,to see if I could tolerate it,and was on it till Jan2018.Instead of a weekly dose I had smaller amounts daily at my GP’s  suggestion.

 I hadn’t had a bone exray for nine years which then showed normal for my age, 67yrs old.I asked for a TScan which showed no change. I didn’t have osteoporosis,just some normal slight thinning for my age. Encouraged by  this information I asked my GP if I might have a rest from Risedronate.I am hoping for at least six months or more and will ask if I might have a further TScan to see how things are.

 Like many people here I do seem to react to these drugs,all sorts of weird side effects at times.if I can have a rest from any of them I am jolly grateful.😊

Thanks for your interest!

 

If your dexascan is OK I'd be refusing any more bisphosphonates - and that for many years to come! And requesting a second opinion on the actinomycosis. Maybe from a Dental Hospital?

I asked because I had GCA (one year older than you) for 5 years and had a bone scan within 6 months of starting on 60mg.   Bones fine at 97%.    2 years down the line..........another scan - bones still at 97%.  5 years remission and the last bone scan...........still at 97%.

I count myself fortunate with a good GP and a 2 good consultants who let me contribute and listened to me...............I stuck with pred and refused to take any of the 'in case' or 'sparing agents' after listening.

Nothing was plain sailing but with very good friends and good medics.

BTW, I am a medics nightmare.............with drugs .

Stay positive and follow your instincts, ask the questions with a smile.

Eileen I am so grateful for your reply..Re the actinomycosis,I was thinking of asking for a second test.My symptoms were described as atypical.It has even occurred to me that a mistake has been made.  

Yes I shall refuse more bisphosphonates..thank you for your thoughts and advice.It is so helpful to have another opinion.

Many many thanks...such a helpful letter.I have absorbed all the info..after reading both yours and Eileen’s letter I feel much clearer about the whole situation.

My GP is also a good listener,I shall cut Risedronate out permanently,and I know I will feel so much better if only on a damage limitation front..60 mg..my  word!! I started at 30 now on 6 and a half..sssslowly coming down.😁 What I didn’t mention is I also cut  Ranitidine out  too..it’s confesssion time next week! I have live yoghurt before my pred.

Brilliant..Thank You!