Activity level

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I am writing again to ask about activity levels of some of you. Do you find you can go about many of your daily activities? Much less? I am scared of what I am facing.😒. I went to the gym today and did fine although I had to drag myself there. I notice that every late afternoon I get very tired and when possible I take a nap.

I am very sad 🌐 that I may never travel again. Even if not on oxygen. I would appreciate any thoughts and and ideas/examples. I know it depends on what stage you are at. But even at mikd I don't know that I could travel easily.

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  • Posted

    Hi again ,do you mind me asking your age ??
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    • Posted

      Every one is different ,but if it helps ,I was diagnosed at 46 ,I'm now 69 ,I've got ,Chronic asthma ,Bronchietis ,emphasyma ,food,I also have under active thyroid, high blood pressure and brittle bones ,I've had a numerous chest infections,and pneumonia several times  ,I've been admitted to hospital on many occasions, and had a spell in ICU with septasyma ,,,,and I'm still here ,and live a full life ,this should put your mind at rest a little, I hope so,
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  • Posted

    everybody is different and yes depends on the stage ive been told that i cant fly but i do go on holiday like normal and do my daily tasks as best has i can 

    if your worried talk to your gp or specialist 

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  • Posted

    Hi mild means mild and there is no reason why with healthy living you can't live a normal life albeit maybe a bit slower.  That's it.   Any symptons are minor and very manageable at this stage.  

    You will probably never reach the oxygen stage and you can certainly carry on travelling as usual for many years. 

    You are not going to go from mild to severe overnight and if you ever do get to that stage (which you probably won't) you have got many years of healthy left.   I was diagnosed with mild around 6 years ago at 54.   I was worried sick  about it as you are but he told me that something else would get me first ie old age and I don't plan to live longer than 100!  Do you?

    You are worrying needlessly and if you are not careful you will worry yourself into a early grave with anxiety!     

    Just get on with life and live it to the full as normal.  x

     

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    • Posted

      totally agree hypercat with me i was diagnosed with stage 3 (severe) straight away so my symptoms are different from the mild stage and im trying to do things has normally has possible
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  • Posted

    You can live your life normally ,,,,but if you keep worrying about what could happen you'll never go anywhere or do anything ,get on with your life and stop waiting for something to happen, eat well ,moderate exersise, and take your medication and keep healthy ie; no severe chest infections and you will live a long and full life,best wishes 
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  • Posted

    You don't say how old you are but you may be suffering from lack of energy simply because  of getting older or maybe vitamin deficiency or some other fairly simple explanation. By doing the things we all know we should do - i.e. eat healthily, take vitamins, stay away from crowds etc - you should be able to carry on as normal. The thing is, try to forget any diagnosis and remember how you were before you knew you had a "complaint". The best thing is to exercise and keep going as much as possible. If you are overweight, even slightly, try to lose that weight and you should find your energy levels improve. This has worked for me and I wish you the very best of luck.
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    • Posted

      I am 58., I am too worried for sure. Since I had a lapse and then quit smoking my breathing is worse. I am not overweight, so that is not a problem., I thought quitting again I would feel better but I feel worse.

      Ism going to watch my diet and exercise. Thank you.

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    • Posted

      starting and quitting smoking isnt going to help but the main factor is that your worrying about minor things im sorry if thats harsh but maybe thats what you need to hear like i said im stage 3 and younger than you and if i let everything get to me i would give up and thats not me
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    • Posted

      Maryterese, I went on a local selling site (USA) called Craigs List and purchased me a high quality, but used, Recumbent Stationary Bike, and it is presently sitting in my living room. I think they use this type of bike in rehabs for people with COPD, because when we spin the bike wheels, the area that gets exercised the most are our respiratory muscles. I always feel so much stronger and breath better too, after using the bike. I spin it at a slower pace, with no resistance, for about twenty minutes per day.

      When I purchased it, it was only four years old, and is a Schwinn. I LOVE it...it has high quality.

      I got it for a steal on Craigs list. The people were moving back to the country they originated from. If you can, anywhere, find a place where you can purchase exercise equipment cheaper, I highly recommend doing so, since why pay sky high prices when you get an exercise bike for a steal price? Also, we don't watch tv much, so we are trying to add exercise equipment one at a time in the living room, and turning it into an exercise room. So far, so good...my son just added a very high quality tread mill at a great price from Craigs list too. I can't use all the equipment, but the recumbent bike really works great for me! :-)

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    • Posted

      You are welcome Maryterese, I can't walk far, so the recumbent bike is about the only thing, unless something else has seating, that I can exercise on. But, exercise makes me feel wonderful! 
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    • Posted

      Hi ,try the sit to stand for two minutes ,and step ups for two minutes and 100metre walk a couple of times. These are some of the exersise see do at pulmary rehab that would cost you nothing ,
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    • Posted

      I can do the six minute walk, plus sit to stand. I have been in rehab and have done them, but nothing compares to sitting on a bike and exercising your respiratory muscles some each day, at least for me. Also, the bike I got did not cost much. I cant walk as easily as you mentioned, so thats out. If I walk it will have to be shorter distance too.Thanks, I may try to add them additionally with the bike included in my daily exercise plan.
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    • Posted

      Well done ,we should be proud of ourselves for getting off our backsides and doing as much as our body allows ,yes our illness on the whole was self inflicted,,,,,but at least we are not sitting about moaning about the things we CAN 'T DO ,,,,,but being positive about the future and the things we can do ,

      good luck ,and best wishes 

       

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    • Posted

      Nanny, so true, and thank you so much for the encouragement!

      It is so difficult when we feel so tired all the time, but you are right, since the exercise does make us feel energized...thank you again!

      Also, Good luck and best wishes to you also! (smiles)

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