Actually, separate topics - here goes!

Posted , 3 users are following.

Comments welcome!

1) Which iron tests have you found most helpful - my ferritin is normal.  Yet, I've read that I could still benefit from oral or IV iron supplementation.  Has this helped anyone?

2) I recently started the Neupro patch (1 mg).  I seem to have worse augmentation, and upset stomach, and balance.  Anyone have this experience?  I quit the patch almost right away.

3) Why would the FODMAP diet help?  (My degree is clinical nutrition.)  I don't see this referenced anywhere in the RLS Foundation literature, and it seems they would promote if it were effective.

4) Since I just joined the RLS Foundation, I realize they have helpful information, but too funny, they recommend getting more sleep to help with symptoms!  Uh huh.  Obviously, whoever wrote their patient brochure doesn't have RLS!  LOL

0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    Hi Ratfancy, know that name from another forum(?)

    1. I raised my ferritin to nearer 100 than the normal 50ish but got no gains. Still augmented easily on DA's. Am also interested if I can do anything else with iron.

    2. Don't understand your comment on augmenting on Neupro if you weren't on it for long. If you came directly from augmenting on another DA then it is not surprising. You would need a complete break between.

    3. I haven't gone to extent of FODMAP diet but know that diet is a major trigger for me. Spicy food, big meals, eating late, sugary foods, potatoes are triggers for me and some others but not for everybody. I think we all need to make a diary to identify diet to RLS triggers.

    4. Love the sleep advice. I read one article that started RLS was irritating!

    Report / Delete Reply
    • Posted

      Thank you so much for your thoughtful reply.  I went from augmenting on ropinirole to the patch - hence a continuation of problems, I'm thinking.  I'll try to pay attention to food relationships.  My friends says sweets at night bother her.  I think I'll try a higher protein diet again.  Today I visited my neurologist, and I'll try ferrous sulfate pills 325 mg twice a day.  Probably won't help.  Codeine sulfate does work - for now.  I feel so much empathy for those who find relief and then it fades.  This is a tough syndrome.

      Report / Delete Reply
    • Posted

      Why would you take ferrous sulphate rather than Ferrochel or haem iron? Have you looked at the mtiochondria situation and considered carnitine?

      My serum ferritin was measured in April as 130 μg/L and I take 90 mg of Ferrochel a day. It has not stopped my RLS (so far), but I think it has reduced some of the worst symptoms – a shuddering I had.

      Report / Delete Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up