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Restless Legs Syndrome

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  • Severe RLS, passing out from spasms

    Hi, I'm new to this forum. I have several health issues, one I'm working on right now too hopefully resolve or get relief from is my RLS. I have been experiencing RLS symptoms most of my life, even as a child waking up with leg pains Etc. This past 2 years it has gotten very severe, I will …

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  • RLS or growing pains?

    Hi guys,  I've had pain in my legs at night for a couple years now. It doesn't happen constantly, maybe one or twice a month, sometimes i won't have it for a while but then it'll come back. I don't know how to describe the pain, it feels like maybe pressure. I just thought …

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  • Pragabalin

    Hi Has anybody withdrew from ropinorole to pragabalin?  I have been advised to do this by my consultant and was wondering did it work? How was it? I am Nervous but need to try it.  Lucy 

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  • Restless legs

    Hi I have suffered with restless legs for the past 20 years.  I am 53 and the last couple of years it has been worst.  My doctor just gives me pramipexitone and has increased the dosage but it hasn’t helped. He says that’s the best on the market and there is nothing else they can do.   …

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  • Help!!!

    Hello fellow sufferers!! I am really at my wits end with this I can’t cope no more.  I take ropinorole and have done for a while however it’s augamented and I’m really struggling.  It’s making me cry and get angry where I want to cause pain to myself.  Please can somebody give me …

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  • rls help

    Does anybody with RLS suffer from a condition where they feel water droplets on their skin from time to time

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  • Iron and RLS

    Hello. I've had RLS for 30 years or more. A recent blood test revealed my Ferritin to be 8. That is very low. Their is apparently a link between RLS and Anaemia. I've been taken Ferrous Sulphate and improved my diet to include iron rich foods. As a result my RLS has significantly improved. …

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  • TV documentary

    Hi all. I’m new to the group, but have a request to make. Please message via FB messenger.  Having suffered rls for some 55yrs.it has by degree increased in severity quite substantially over the past 2-3years. I’ve heard it said that this can be accosiated with age, in that, the older we get, …

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  • Very young with RLS. HELP!!

    I've been battling this for two years now, and I've been on medication for a little over a year. I started taking only Mirapex at first, but found that raising the dosage made me extremely sick. My doctor now has me on a small dose of Mirapex as well as Klonopin at night. Being so young, I&# …

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  • How I overcame my PLMD

    For about 2 year, I had difficulty going and staying asleep that consisted of Hypnic Jerks and a sleep study that diagnosed me with having PLMD. My neuro prescribed me with Gabapentin,that I decided not to start, after reading the many horror stories on-line about how it can change your mood and …

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  • Doc laughed when I told him I think I have RLS..

    Hey I’m new to this group. I remember the first night I got the crawling sensation about 5 years ago. It was the night before I moved away to college and I was nervous so naturally I assumed it was related to my anxiety. Then I started noticing it come back every few months, sometimes for a few …

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  • restless leg

    I told my DR. that i thought i might have restless leg. She gave ripinrole to take.Without bothering to see if it was something else. the pills make me sick and they interact badly with Paxil a drug a take for depression. if i take them within an hour  I turn in to a B----h!. it frightens me …

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  • Antacid exacerbates RLS

    I'd like to share my personal experiences with antacid, PPIs, or histamine 2 blockers.  Everytime I take either Omeprazole, or Zantac, or Pepcid, my RLS acts up like crazy even after only 2 to 3 days of taking them.  I have consulted with a RLS specialist about the effects of antacid …

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  • RLS

    Hi, I'm new to the group so be nice haha... Anyway - after suffering R. L. S (on and off) for about a year now.... I went to my G. P yesterday and was prescribed PRAMIPEXOLE (0.088mg) tablet (ONE at Night) It made absolutely no difference last night so hopefully better luck tonight!! X

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  • Restless legs

    Hi I’m new to this so hope not to bore anyone but can anyone help me. I hav restless legs is there anything I can take doctors say there’s noting please help there driving me crazy 

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  • Nightwalkers Magazine from RLS Foundation.

    Just a heads up for those who are not aware.  The RLS Foundation sends out a quarterly news magazine (Nightwalkers).  Dues to belong to organization are $35 a year.  Best money you will spend.  It covers all kinds of info - new treatments, research being done, RLS centers …

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  • RLS and antihistamines cold/ flu meds without antihistamines?

    I have had RLS for 5 years and take 2 mg ropinirole. Last winter I found antihistamines made my RLS more severe, no sleep or laying down at all. I need an OTC or prescription med that I can suggest to my doctor for future colds. Research found Claritin and Mucinex (guafenacin) have the lowest …

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  • Concern about knee surgery with RLS

    I'm new to the forum. I thought I'd asked this a few days ago but don't see anything on the discussion page. So here goes again. My husband has been taking meds for about 2 years now for RLS. He's 74 and the RLS started about 3 years ago. He's taking about 2 mg of Ropinerole, …

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  • Physician heal thyself

    I suggested some little while ago that a week of complete abstinence of food other than the most basic to see if your conditions improved, no one as I can see from the posting have tried, they would rather take drugs that have no real track record for their condition from doctors who admit they …

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  • Possible RLS

    I am new to this forum. I wanted to know if RLS can cause muscles twitches for days? It started out with bad cramping and now the twitching in my legs and feet are driving me crazy. When I am active I am not aware of them. Suggestions please?

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  • Possible reason for R.L.S

    We are led to believe that the reason for R.L.S is a medical condition, but my experience through being a Coeliac sufferer leads me to a different outlook. It took nearly 2 years to diagnose it back in the day, now it is quicker. I was on the right track for self diagnoses but never quite made it, …

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  • Is this RLS?

    I have been having tingling in my legs for the last 6 weeks.  It never stops.  It's slight enough that I can't feel it when I'm moving but if I'm still, regardless of whether I'm sitting, standing or laying, I feel it.  It never stops, day or night.  I might …

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  • RLS? Or worse?? Help

    Hey guys!  Today is day two of pain in my calf. Today the pain became unbearable around 2pm! I went to the hospital obviously very concerned I had a clot! Now they took blood from me, blood pressure, temperate, measured my calves, had a look for discolouration etc. However the doctor said she …

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  • Suffered from RLS for 8 years now

    Pramipexol has been my salvation for the last 8 years. Luckly I seem to have a mild case and I don't usually feel the symptoms during the day, except sometimes on weekends when I'm chilling at home. But I've had to increase the dosage three times during these years. Apparently I may …

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  • Restless legs

    Have had restless leg for 45 years at least. Had tried everything over counter plus perscriptions last 15 yrs have been on Requip. Than last year I was up to 2 a day. Sometimes it would make the systems start instead of keeping them aray. Finally, decided to talk to my Dr. about what was happening. …

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  • RLS nightmare

    Hello all, I have had RLS for a few years now and it drives me mad. My gp won't do anything even though feeling sorry for me! Just lately it has got worse and is now in the arms too! Any advice would be grateful 

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  • Something That Works

    I had RSS and was nearly at a point of doing something stupid, I saw 11 doctors and none could fix the problem then I thought about trying 2 medications at the same time and it worked. I now take once daily: Sifrol 125 mg Lyrica 75 mg. I now never have the problem.

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  • Could I have restless leg syndrome?

    I'm a 20 year old female. I have been experiencing a dull ache in groin it's not always there just sometimes. Also my thighs feel like they have sun burn/prickly heat and they feel extra senative to light touch. I have been extremely stressed/anxious (recently gone through a breakup also …

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