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Restless Legs Syndrome

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  • Pinned

    Things I have tried and how they went.

    I suggest a discussion where we limit ourselves to as brief as possible statement of "I did this and the result was...."   the reader can then look up other discussions a sort of brief index or summary.   It might be good if the forum administrator can pin it to the top...

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  • Severe RLS, med works only at night

    I take Pramipexole 1 mg every evening.  I’ve had RLS since being pregnant with my daughter 27 years ago.  I’ve taken the med for quite some time, but have been suffering for the last five or more years with symptoms during the day.  Sitting or relaxing is almost unbearable.  Flying...

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  • Fava beans

    So interesting - my father died from Parkinson's and clearly I have a dopamine-related issue in my RLS.  I also cannot lose weight because even after I eat, I am hungry.  The unusual and difficult to satisfy appetite keeps me above my normal BMI and will power does not seem to be the answer....

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  • Searching for a solution

    I posted earlier this month about having rls since I am in my 20's.  I am now 77.  I am on Ropinirole .05 mg 3 times a day.  I will have symptoms during the day only when confined to a restricted position, such as in a car, plane, movie. etc.  If I ask my gp to change the dosage...

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  • Rls relief what works best ??

    Hey all I have severe Rls for over 15 years been working with my doctor and neurologist to come up with diff types of medications and to be honest I think I’ve tried everything it doesn’t go away albeit  I do have good results when starting a new med but wears of in time, I’ve hade mirapex ropinorole...

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  • Connections.....

    i deal with both rls - and psoriasis.  perhaps one promotes the other, or they react similarly from a deficiency in my body - or escalated by stress.   i just know that both are technically incurable, and i find this sort of sad.....

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  • Nightmares Nearly Every Night

    i've been dealing with RLS for about 25 years.  Recently, in the last 4-5 years, i've been having terrible dreams, the kind that are really strange, goofy.  I read that this can be caused by RLS.   Anyone else dealing with this, and if so, any suggestions ?   I do...

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  • Heart Monitor

    I suffer from RLS and have found relief with Neupro (Rotigotine) 3mg patches. On Wednesday I was fitted with a 24 hour heart monitor by my Doctor. On Wednesday  night whilst wearing the monitor  I was back to square one with the RLS and my legs were quite mad! The monitor was removed on Thursday...

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  • Is this RLS?

    I have been having tingling in my legs for the last 6 weeks.  It never stops.  It's slight enough that I can't feel it when I'm moving but if I'm still, regardless of whether I'm sitting, standing or laying, I feel it.  It never stops, day or night.  I might get...

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  • rls awareness

    I follow all the discussions on RLS.    Last night was a bad night for me even with medication.   It was a full moon.   Does anyone else think the two are related!    At one stage I thought I was sleepwalking only on a full moon but it hasn't happened...

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  • Do Gabapentin withdrawals really happen?

    So, a few months ago, I had restless legs and had to go to the ER because I was sleep deprived and needed relief.  They gave me Gabapentin, 1 X 300mg at night.  I took it for awhile and the RLS went away.  Then it came back about 10 days ago, and its getting more frequent.  So....my...

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  • RLS Guru experience

    My 53rd birthday is tomorrow and I've had RLS  my whole life.   I thought everybody had it.  Four out of my five siblings have RLS.  It explains a lot of my life that I didn't realize until only the last few years.   I used to drink alcohol to go to sleep sometimes.  It's...

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  • Restless leg syndrome tips

    When I was pregnant I suffered with RLS every night which is horrible as its when you're most tired and really need to relax.  I found the iron supplements floradix or spatone helped over time but for fast relief soaking my feet in a bowl of really hot water helped a lot , I mean as hot as you...

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  • At witts end

    I really don’t know what more to do. I have attempted to follow all suggestions to little or no help. I am HIV+ and do know that studies show approx. 33% of poz patents become RLS. I don’t know whether this is based simply on the infection or rather an end result of the meds involved. If it was a side...

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  • Headache from requip

    I have to take very low dose of requip (repinol (sp) as anything more than about.25 I end up with a nasty headache and the muscles across mid back begin to ache.  Think gabapentin is also giving me headaches.  Low dose of requip I seem ok but had to take requip and 100 mg of gabapentin for...

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  • Restless legs right ham strings and back pain

    Having suffered restless leg syndrome for nearly thirty years and reading all the posts on this forum I'm wondering if anyone else with the condition also suffers back pain radiating down over buttocks and thighs. The other thing I have is tight hamstrings and am supposed to do exercises for these....

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  • B12 deficiency

    Hi all I have recently been told I have this and was put on b12 and iron supplements I also have restless leg syndrome and since being on these supplements my symptoms for my restless leg syndrome has improved,it is a complication of this so any one with restless leg syndrome this may help. Hope anyone...

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  • RLS nightmare

    Hello all, I have had RLS for a few years now and it drives me mad. My gp won't do anything even though feeling sorry for me! Just lately it has got worse and is now in the arms too! Any advice would be grateful 

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  • Current medicine not working

    I am 77 and have had restless legs since in my early 20's.  Managed to go without prescription medicine, using alternative methods, until about 1 year ago.  I am currently taking Ropinirole, 0.25 mg, 3 times a day.  I suffer my symptoms mostly at night.  This regimen is no longer...

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  • Help I am losing my mind!

    This is my third night in a row that I can't even go to bed my legs are driving me crazy! It's so difficult trying to explain to people the complexities of RLS.  No one understands. My husband says just come to bed and you can just lie down and maybe you will drift off to sleep. If only...

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  • Are the veins on my legs normal?

    Are the veins on my leg normal? I am working in a patrol station and i am on my feet all day walking. And because i have stomach issues i went from 68kg to 54kg my height is 168cm , and this is how my feet looks like now , i was hoping to get an advice if this is normal or should i go check it out on...

    Posted
  • Tired and achy legs at night

    I am 28 years old and I have had this problem as long as I remember. The lower part of my legs (calves to ankle) feels tired and achy all the time but i feel it more at night. Compressing them helps a lot. Very hard compression or making someone stand on my legs feels really good. The pleasure i get...

    Posted
  • Restless leg

    Just wanted to share that after battling rls for years, every night, taking supplements ruining holidays and dreading to try sleep,taking 900 nueronin which all did nothing. My therapist randomly gave me buspar for anxiety. While it did nothing for anxiety, it completely eradicated my rls. Gone, haven't...

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  • Exercising

    I have been great taking sifrol, sleeping well, however the last few weeks I have been doing hamstring exercises three times a day for a bad knee problem, which is working fine, but seem to be waking with restless legs during the night and my sleep pattern is different.    Previously I...

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  • Cause or contribution factor to RLS

    Has anyone seen any research or scientific information regarding why RLS hits during resting or trying to go to sleep.  I've read that dopamine (a brain chemical)  is a contributor to RLS.  Just don't know how or why.  I have no problems as long as I am up and moving - no...

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  • Antacid exacerbates RLS

    I'd like to share my personal experiences with antacid, PPIs, or histamine 2 blockers.  Everytime I take either Omeprazole, or Zantac, or Pepcid, my RLS acts up like crazy even after only 2 to 3 days of taking them.  I have consulted with a RLS specialist about the effects of antacid on...

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  • The dreaded restless legs syndrome

    So guys you will see me pop up all over these forums as I have so many different health issues, however, the Restless Legs is enough to drive a person crazy.  I have had this since I was a child (I am now 58).  In the last 18 months it has gone beserk.  I currently work full time and the...

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  • Occasional RLS and supplements

    I am a 49 year old woman who is very active and fit.  I run long distance regularly and lift weights 2-3 times a week.  I very occasionally suffer from bad RLS and night cramps, and I have learned to anticipate when an episode will occur.  (I can feel it coming on in the evening as I am...

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  • Headaches from meds

    I notice many people take  ropinirole in doseages of larger mgs 1, 2 3, etc.  I have found from the beginning of using this med (we call it Requip) that  I always end up with a headache every morning when I wake up.  Had the same result only 100 times worse with Neupro patch - stopped...

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  • Will Lyrica help me I failed Neurontin?

    hi, I am new here.  I am suffering from severe restless leg syndrome which renders me sleepless every night.  I have tried a numerous medications including xanax, neurontine, trizodone, klonopin---etc to no avail.  As my last straw I want to try Lyrica which belongs to the same family...

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  • I found the solution to my Restless legs Syndrome.

    So I am 55 years old female and have been suffering with RLS for two years . I am 5,8 tall and weigh 85 kg. I have back problems and I was thinking that the problem was back related. Now i think not. So recently I discovered Biotin for my thinning hair and brittle nails. And wow , after 2 months...

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  • Coping with RLS

    I've suffered RLS for 30 years and it appears to be deteriorating. I'm 66. I've been assessed by a Consultant Neurologist who has confirmed RLS and nothing more sinister. I take pramapexole x4 each day. Nothing else seems to help. I'm now suffering quite severe sleep deprivation. I've...

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