RLS driving me mad

Posted , 10 users are following.

I've had RLS as long as I remember but I can't cope with it any more. Any time I sit down it comes on bad and no hope of falling asleep. I have been trying to sleep for 3 hours now but I cannot keep still and the jerking and stretching doesn't stop for a second. Desperate for relief..

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9 Replies

  • Posted

    Hello Blewbird

    I use pramipexole it's used for Parkinson's, but it works for RLS

    your doctor will decide whether to start you on a small dose, but a quick release one or maybe the larger dose but slow release.

    Good luck

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  • Posted

    Ropinirole tablets or rotigotine patches are the most usual solution when the problem gets as bad as yours. We'll have to trust your doctor knows which is best for you.

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  • Posted

    A lot of medication used to treat restless legs...but it differs from one to another....you should consult a neurological disorders doctor and make all the analysis to detect if your rls primary and secondary then the doctor will give u tha right med....and you will get better....dont give up....your sleep will improve....
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  • Posted

    Hi there had rls for 10yrs now tried everything but this seems to

    Work to my relief tried to calm my anxiety by telling myself to relax

    and calm down and it works mind over matter sort of thing,so I

    tried it on my rls situation it worked I just simply said to myself

    When the legs would start up " calm legs" over and over as you

    relax your mind it also relaxes the signals to your legs.

    You'll feel yourself relaxing you and your mind thus not sending

    any anxious stress messages from your brain to all over your body

    including your rls please give this a serious try it works...

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  • Posted

    I am fairly new to the RLS community but I have already found that a consistent bed time routine is essential. I have had RLS for years but have only resorted to medication a few months ago. Up until then cold showers on my legs or keeping my legs elevated for 30mins would stop m twitches.

    Suggest you join a meditation class and pester your GP to make sure you get an effective medication.

    Good luck

    Nic

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  • Posted

    Your GP is unlikely to be an expert and hopefully he may refer you to a specialist. They should be able to check for any deficiencies e.g. Iron or magnesium which would be an easy fix. You will need to become your own expert ( that's what specialist told me!). Read the book RLS by Buchfuhrer, Hening etc and use these forums. If some nights are worse than others look for what your triggers are: stress, food, bedtimes, medication. Are you on any medication for anything else - often a source of RLS. Try to reduce triggers. Gp will be able to prescribe dopamine agonists, painkillers etc and you will find relief. Good luck!

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  • Posted

    I've suffered rls for 26 years. Been on meds 16 years..clonazepam 0.5 mg 2 at night. This works for me. Occasionally I'll wake in the night with the symptoms and need either more clonazepam or one co codamol which are prescription strength for a back problem. I sometimes think rls and lower back pain are related. Maybe I'll start a new question on the subject. Hope you find some relief ..don't give up.

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  • Posted

    I definitely feel your frustration and echo the advice to ask for a specialist or neurologist referral. Mild stretching can help me (stand in front of a wall with feet flat, hands out on wall and lean forward/put one foot back at a time, to stretch the calves.) Omitting sugar or sweeteners helps me too, and Rx for flare ups. Everyone is different and it may take trial and error, but there is relief out there. Good luck! 
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  • Posted

    As beagle says it is important to check both your blood iron and ferritin levels. My RLS became so much worse over several months until tests showed very low levels of ferritin. It was easily treated with a course of Ferrous Fumarate (210mg). It didn't cure my RLS of course, but it is more manageable now.

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