RLS

What scans have you had.  If you have read my posts I have been through everything as the mri showed inflammation in my neck and back but not a lot so that they tell me maybe ms.  Loads more tests but inconclusive.  I take prefabs long but they do  not have any effect so trying to get off them.  Have zimovane to help me sleep. The burning is my legs from foot to past my knees but the left I'd the worst.  I try leg exercise which help a bit.  The burning I'd when I rest and worst in  bed 

 I am not got a clue about the cause keys hope some one can help us.  Good luck  

Hi David

Have you tried a body and emotion code practitioner.They are very good at finding the problem.

Some people have gone here and then back to the doctors so they can prescribe the correct meds.

In the mean while you can also massage that part of the foot that is burning as well as look up to which area in the body it refers to

Look on a reflexology chart.

I use to get this burning sensation in my foot around 2am and then massaged it till it went away.It was when my bloodsugar went down.Did help a little.everybody is different so there is no harm in trying it.

Hope this helps

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Hi David,

My husband ,Gerald (86) has had RLS for about 5 years and it is getting worse. Like you, he is ok during the day moving around, but in the evening as soon as he sits down in front of the TV or in the cinema etc. it starts immediately. Like you, he has had scans, and been prescribed Ropinorole - it had bad side effects , did no good, and he had to stop it. He has been prescribed another drug, but is postponing taking it. Most of the drugs used for RLS are strong, and they affect people differently. Gerald is now trying alternative therapies e.g. Reflexology.

There is evidence from a small patient study done in 2011 that certain kinds of exercise ("positional release manipulation" (counterstrain) can be effective in lessening the symptoms of RLS, and I believe a larger university study is under way to test this more widely. They say it offers a new approach, eliminating the need for drugs, but it is at a very early stage.

Gerald is about to arrange sessions with an osteopath to try it out. But with RLS, what works for one person doesn't necessarily work for another. We will post news of anything positive from these treatments. Exercise does seem to be helpful for quite a few people, but too much of the wrong kind makes RLS worse (apparently).

I do hope you find something soon that helps. I assume you've had your iron levels checked? (Low levels are linked to RLS). Also, if sleep is a problem, it's best to avoid caffeine and anything else (like using a laptop in the bedroom) that interferes with 'winding down'. Best wishes, Cynthia.

Hello David 65065. I take Pramapexole. It does seem to help. I take it about 17.30 and by the time I go to bed it seems to have kicked in and I'm able to sleep. Thats not always the case though. Sometimes I'm up all night unable to control my RLS. It sems to take about an hour or two to take effect. I wonder if your giving it enough time.

you might think this is a stupid thing to try but a lot of people are getting all night relief by having an Orgasm. i had RLS in legs arms and started iron capsules and it helped but my suggestion is the only thing thing that helped bad RLS nights. it releases dopamine. there is research online I don't take their prescribed drugs for me it was to scary but tried everything after months of no sleep

good luck

hi David, for me i use a magnesium spray. After reading some reviews about mainly sports people using it and even in one case his grandma using it for arthritis and working, i decided to give it a try. it definitely worked for about 3 months but now have to keep stopping it for a short while before it will work again but its the best thing ive ever used. Hope you get some relief too. just spray a few sprays all over your legs then massage in and after about fifteen mins or so the restlessness should completely disappear for a few hours.