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I have recently been diagnosed with a PE - muliple clots on the lungs where I have been hospitlised for three weeks over two separate occassions.
I had a chest infection in early February that was treated with antibiotics and steriods didn't get any better so another course of steriods and antibiotics at the same time due to my asthma I was having to sit up at night time in bed. After over two and half weeks and not getting better and my asthma going from being managed to acute I was taken into hospital with exacerbated asthma which I was treated for over two weeks and then discharged. However on returning home I still was not getting better and was still having to sit up at night time due to my asthma. So after nine days at home I was readmitted to hospital again with excaterbated asthma and a few days later after a CT scan was found to have multiple clots.
After another 10 days in hospital I was discharged.
I am still having problems with my asthma and on nebuliser daily
I still am unable to lay down flat due to feeling like I am drowning, and unable to breath due to asthma.
I also suffer from severe ME and also have a chronic pain, I do consider myself lucky as if I hadn't had the asthma problems due to my other conditions giving so many symptoms that I would have ignored any odd pains and not gone to the GP and therefore not found the PE
However I am wondering if anyone else who has had a PE suffers from asthma and if so has it changed in its severity.
My peak flow is around 100-140 and only increases after I have done a nebuliser treatment and then will drop back down again again later.
I have been on steriods for about 10 weeks now but am just about to stop after a long reducing dose withdrawl period. So will be interested to know how I cope when I stop taking them.
I know they say you can get breathless with a PE but breathless and asthma are very different.
I feel that I amonly working on a very small capacity of my lungs and wonder if this may do long term damage to my lungs.
I also wonder why I got a PE in the first place.
Did the chest infection cause it ? Did the asthma cause it as I have found that there has been a link between severe asthma and PE ?
I know my recovery will be slow because of my other medical problems and I am just taking one day at a time. I am on warfarin so now that I can't do anymore other than ride it out, for the forseeable future. I would though love to be able to snuggle up in bed under the duvet instead of sitting up on the sofa sleeping!! I long for that.
Any comments from anyone on this forum would be greatly welcomed.
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