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Acute Motor Axonal Neuropathy(AMAN)

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joanne47212
joanne47212

Hi . Is anyone   recovering from this condition? I was diagnosed with GBS 10 months ago. Following Nerve conduction studies... Oouch!!I was Diagnosed with AMAN. Would like to hear any if anyone else is in a similar situation to me??

0 likes, 6 replies

6 Replies

  • marey
    marey joanne47212

    Posted

    hi joanne

    i don't have this condition but let me re-assure you theres a lot you can do about it .

    please don't be intimidated by the name ...medics love to group symptoms together and to award you with a 'diagnosis'!!

    its related to guillain barry...a short term condition brought on by an infection and has to do with your bowel....the bowel is the second brain...hence your neuro symptoms...check out the GAPS protocol to start addressing your cure and take things into your own hands.

    may i suggest you contact dr sara jurnigan for a full set of remedies used to cure the tick disase...whats it called....my memory ...but you'll find help by constantly googling these boolian oprators...good luck !!

    • joanne47212
      joanne47212 marey

      Posted

      Thanks for the info. Yes being a nurse I know only too well about the Jargon. Its a slow recovery but definately getting there. Glad my drop foot is greatly improved. Still work to do though.
  • marey
    marey joanne47212

    Posted

    thats fantastic news joanne!

    what protocol are you following? if i encounter another sufferer may i put them in touch with you?

    • joanne47212
      joanne47212 marey

      Posted

      Thankyou. Yes of course, I would be happy to hear from other people...it all helps ones' recovery in some way.

      I continue to have weekly neurophysio which is excellant. Rest when  I need to and be grateful I could have been worse... I could still write a book of how my journey started and is continuing to improve.!

      From having paralysis in both feet , to being able to simply just about my some toes-one of so many things!! doctors and friends are pretty much amazed of my return to work... well we all need money!!.

      I am from a seaside village in the northwest and just wonder is anyone else out there similar area.

    • marey
      marey joanne47212

      Posted

      OH DO RECORD YOUR EXPERIENCES X

      i'm in swansea UK...a sea-side city!

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