Acute urinary retention.... Need advice on options please.

Posted , 19 users are following.

Hello all,

My husband had a crisis on Saturday night with acute urinary retention, absolutely nothing coming out and left at the mercy of Aand E for several hours in agony. Now home with a catheter, awaiting test results ( PSa etc) and an appt. with a urologist. I am terrified it is cancer but trying not to think about that to much so now throwing myself into researching BPH and our options so we are well informed at our appt. I don't want to accept surgery or strong drugs forever if there are other options. 

I would bery very much appreciate any advice from you lovely gents on supporting my husband and any success with alternatives to avoid surgery ( saw palmetto, pumpkin oil etc) . 

Maybe be I should mention he is 54 ,in very good health generally but has a ' slow' flow in the mornings for a few years . I am 4 months pregnant with our first long awaited child and need someone to give me a kick up the bum to start thinking positive!!

many thanks in advance for any advice

Ali

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  • Posted

    Hi Ali - catching up. After my emergency trip and Foley catherer came out about a month ago, I still had urine retention. Thus self catherization ( initially Red job but now disposable Speedy cath) to preclude any bladder/kidney bad issues. Fast forward and PAE done less than two weeks ago - starting to see positive results. Know it will take time but my spouse and I believe PAE was the right choice for me - Dr Bagla did the procedure.

    My point is that once you get used to self catherizing, anxiety drops and you guys will have a clear mind to decide on what is the right procedure for your situation. Plenty choices out there but it is your call, not ours. Have read all postings and the pros and cons stated here on all procedures and no doubt all written with best of intentions. But like I did, ask those experienced with BPH issues about how they treated it and take what makes sense for your situation.

    Bottom line is that you guys make the final call on what to do next and by all means, avoid paralysis by analysis. Ask, listen, brainstorm with Hubby and decide. That goes with what doctors tell you as well. Best of luck...cheers.

    • Posted

      Self-cathing is an adjustment, but small compared to some situations and conditions. Cathing into a measuring cup (or plastic bottle pre-marked with gradations, my preference), will let you know just how much urine is NOT being peed out.  It IS important, as retaining large amounts can lead to UTIs and other complications.  Because of a "lazy bladder" (I just made that up--- it's too stretched from the history of retention, to return to its unstretched size.), I will likely always have to cath some, even though I can do it normally, if there's enough liquid in there to prompt the physical signals.  

      But yes, learning to cath gives you (collectively) control over the situation, which is WAY better than the alternative!  

  • Posted

    Hi all,

    i firslt wanted to say to say a massive Thankyou for the advice re self caths. Hubby had his catheter out today and they tried to give him rubber non lubed caths to bring home. He refused them thanks to the advice on here and has come home with pre lubed speedicaths.... Great smile 

    Can I ask if you think he needs the Tamsulosin now he is self cathing? Does the Tamsulosin help flow or is his bladder better off trying to ' retrain ' itself without drugs? 

    Thankyou ou all again for your fantastic support

    Ali

    • Posted

      Most of us would probably say 'it depends' and what it depends upon is can he pee on his own ?  If he can, or even if he can most of the day, but not at night, then do without the Tamsulosin.  Rely on the self-cath for output when he feels he needs to.  He may find after the worst effects of total retention wear off, he will be pretty good without anything at all.

      Tamsulosin (Flomax) is an alpha-blocker that relaxes the muscles in the prostate and bladder neck, making it easier to urinate.

      Tamsulosin may cause dizziness or fainting, especially when you first start taking it or when you start taking it again. Be careful if you drive or do anything that requires you to be alert. Avoid standing for long periods of time or becoming overheated during exercise and in hot weather. Avoid getting up too fast from a sitting or lying position, or you may feel dizzy.

      Tamsulosin can affect your pupils during cataract surgery. Tell your eye surgeon ahead of time that you are using this medication.

      Generally, I think it takes some time to start to work, and can be quite hard to tell if it does anything anyway. Sometimes you can only be sure it helps when you stop !

       

    • Posted

      5mg (one a day Cialis) helps the flow and has better side effect than Tamsulosin. Tamsulosin can also cause reduced sperm output and retro. 

      I once asked the nurse at my GP practice what was the most complained about drug, She said, Tamsulosin and that is by wifes!

       

    • Posted

      In terms of emptying the bladder and protecting the kidneys, self cathing does what Tamslosin was designed to do but does it much better in that self cathing completely empties the bladder any time you want. As far as "retraining" the bladder, I would go for an agressive self cathing program as discussed in the self cathing threads. Also, self cathing can be "passive" or "active". In other words, you can just put the catheter in and let it drain or you can help the process by pushing the urine out with the detrussor muscles. I believe the latter is a better idea in that it will help excercise them. 

      To your specific question, as another poster said, "it depends". While not really necessary there may be scenarios where your husband wants to decrease his cathing intervals by increasing his natural urination. More lifestyle choice I think,then what is good or not good for the bladder. But of course there are the side effects to contend with as well. 

      Personally I rehabilitated my bladder over the course of a couple of years to the point where I could almost stop. So then I introduced Daily Cialis to see if it could get me to the pont where I could stop self cathing completely. It almost did, but not quite, so I stopped taking it seeing no real benefit. 

      Got to experient with these things, we're all different. But right now, with your husband new to self cathing, best to just concentrate on the basics. Have him measure his urine output with a 500ml plastic cooking cup noting how much comes out naturally and how much comes out through the catheter. 

      If more than 400ml comes out through the catheter at any one time then he has to increase the number of times he catherizes each day. 

      Later on, you might want to get more agressive and try and keep the total bladder volume under 400m which would be the sum of his natural void and the catherized void. 

      Jim

    • Posted

      Just to expand on pushing with the detrussor muscles while self cathing. Maybe not a great idea right in the beginning while his body is adjusting. If he does it naturally fine, but don't force it. But later, when the body has adjusted to self cathing, it's a good idea to do this from time to time, especially if he isn't doing much in terms of natural voids. As his natural voids increase, then again less important.

      Jim

    • Posted

      Its a side effect vs. benefit secnario. Does it do enough so that he doesn't have to cath? There are other alpha blockers too - Alfusozin is generally side effect free and often works just as well - he might want to switch to that.

      I'm going to disagree with some of the self cathing advocates - its certianly a WAY better option than a foley, or many of the more invasive, potentially problematic procedures (like TURP) and can free yo to live a reasonably normal life, but its far from ideal. Its up to your husband, but if there's a way to pee normally and not have to rely on a cath - even a handy, well concealed one, it would be plan "A" for me.

      There is a reason for his retention and he should see a urologist to have the necessary tests to determine what it is. There are (lots of threads on them here) new, non-invasive outpatient procedures available that weren't even a few years ago like PAE, Urolift and Rezum. The liklihood is that your husband can have something done with pretty quick recovery/minimal side effects that will solve the problem and free him from any catheter if that's important to him.

    • Posted

      Oldbuzzard said: I'm going to disagree with some of the self cathing advocates - its certianly a WAY better option than a foley, or many of the more invasive, potentially problematic procedures (like TURP) and can free yo to live a reasonably normal life, but its far from ideal.

      ------------------------

      As a self cathing (CIC) "advocate" it's unclear what the "disagreement" is. I don't think anyone has said it's "ideal". What we have said is that it's a viable option either short or long term. 

      Short term, CIC allows you to extend the "watch n' wait" period letting you consider current options in an unhurried manner, as opposed to being rushed into a decision because you're afraid of locking up or doing damage to your kidneys. 

      Longer term, CIC lets you wait for better options. The latter is what I have been doing for the past couple of years and during that time my bladder has been rehabilitated to the point where most of the time I void naturally and only need CIC on occasion. 

      Frankly, at this point CIC has become so fast, painless and easy that I would be hard pressed to try any of the current procedures or operations in that all of them carry some risk. 

      Jim

  • Posted

    Thankyou all for your repliessmile

    JimJames.... I may well come back to you on the bladder muscle info soon 

    Old Buzzard...... He is passing urine normally now since the catheter was removed. He says he feels empty , nurse did say he could cath to check but he's not too keen on doing that if its not needed. We are now on a waiting list to see a urologist....... Are there any tests you think we should ask for? How do they know it is only BPH and not cancer?  He was thinking of having another PSA in a few weeks but from what I gather it's not that reliable.... Wonder if we should do the PA3 urine test? 

     Or were you thinking more along the lines of BPH not cancer?

    I do appreciate that at his age he may well have some cancer cells show up that would never cause a problem and don't want to 'over treat' something that could well be left.

    Thanks again gents

    • Posted

      If he's peeing normally (he should cath once after emptying just to be safe) and hasn't had problems previously, he's probably fine - at least for the foreseeable future. He should probably keep a couple of those speedicaths in his car and also in his travel bag when away from home for safe keeping and peace of mind, but may not ever need them. Based on what you describe, he doesn't need any meds and this is pretty close to the ideal outcome.

      6 is kind of high for a PSA, but as has been pointed out, could well have been inflated due to his temporary condition. Another PSA test isn't a bad idea just to make sure that 6 isn't real - but its highly doubtful he has cancer and on the remote chance he does, what they call watchful waiting is often the best approach, as only 5% ever grow enough to be an issue and there are ways of isolating which ones are most aggressive.

      Most likely this is just a lousy couple of weeks that won't repeat - I hope that's the case. 

    • Posted

      It all sounds very good and must have been a one off. Stop worrying and get on with the other event in your life.

      No reason that he should have any cancer cells it is really not that common. The media and cancer charities run so many scare stories that peoples first though now turns to the Big C.

      The tissue removed at my last procedure when I was 78 did not show any and as I have said my PSA is now 0.74. 

    • Posted

      If he doesn't want to self cath to check his PVR (post void residual) why don't you just go back to the doctor and have them do a bladder scan right after he urinates. Most urologists now have bladderscans right in the offfice. 

      Jim

    • Posted

      That's a good idea.  I favor the self-cath approach, though, and a recent health visit serves as an example:  I had a scan done, and the tech said there was 90cc in my bladder.  She then double-checked, with another scan, and said it was only 60cc.  I then self-cathed, to give them a pee sample, and drained 150cc into the cup.  Just sayin'...  :-)
    • Posted

      I've also suspected my urologist's bladder scanner underestimated my PVR by a little as well. Although, must say, the one time I challeged him and self cathed right after, they were almost the same.

      The other thing is that it's very hard to compare one against the other because the kidneys can dump significant amounts of urine in a very short time. So, that could account for the difference sometimes. For example, one ultrasound showed a larger bladder volume POST void than PRE void. So how is that possible? Probably because they had me drink a gallon of water prior to the test! In the real world, probably not so dramatic a kidney dump.

      Then there are the "studies". One study suggests that even self cathing doesn't always empty the bladder to zero where they compared to ultrasound. That would favor ultrasound as more accurate. But then another study says bladder scanners underestimate which supports cartoonman's experience.

      A little off topic, but one thing I have found is that by changing my pelvic position a little in a half squat,  I can sometimes drain 10-50cc more out of the bladder. But then again, I have a bladder diverticulum which confuses the issue because tilting the pelvis simply might be emptying the diverticulum into the bladder which then comes out of the catheter. 

      Maybe someone without a diverticulum could try changing pelvic positions and/or a half squat when the catheter stops flowing and see if anything more comes out. 

      Jim

    • Posted

      I'll try that out---as soon as I learn to say, "Diverticulum!"  :-D    I guess if it's a new word for me, I don't have that issue!
    • Posted

      In the UK GP's have little in the way of equipment and he has yet to see a urologist.
    • Posted

      Thanks Derek. Not that familiar with health care on the other side of the pond. How hard it is to get to see a urologist? Here in the states, if you're on Medicare, you don't even need a referral from your GP. You can call up a urologist directly. If you don't like that urologist, the next day you can make an appointment with another one. And then another one.  I guess we are spoiled.

      Jim

    • Posted

      We get 10 minute appointments with our GPs who nowadays practically appologise if they touch you. I can get an ECG or a 24 hour BP monitor at the surgery done by the nurse but not much else. My GP has done a DRE for me. When my wife went after passing blood from her back passage he was reluctant to do an examination. Mostly they will refer you to a consultant.  

      The NHS is supposed to have an 18 week limit for the initial consultant appointment and treatment. It rarely happens. Some parts (very few) of the country have 'choose and book' where you can pick your hospital and consultant after finding the best option. 

      Last year I waited 26 weeks to see a neurologist when the hospital website said that it should be 12. I was then referred to a neurosurgeon. The waiting time was said to be 34 weeks so I arranged to see one privately. I stayed on the NHS list as well and when I last asked it had gone out to 39 weeks.

       

       

    • Posted

      That must be very frustrating. If today I wanted to see a new urologist, I would simply call their office directly and probably have to wait no more than a week, possibly less. My GP is great but I no longer need him for referrals, just general stuff and that's mostly via emai which he responds to the same day. Not to say that we always get the time we need when we see the doc, but if the first doc rushes us through or is otherwise unsatisfactory, there is always another. There are some docs, and some very excelent ones, that do not take Medicare so those are out unless you pay out of pocket. But still a lot of good ones that do take Medicare, and most of the docs at the the large teaching hospitals accept it. 

      Jim

    • Posted

      We need to be referred by our GP even to see one privately.

      You normally just see the same consultant but at a different location.  

    • Posted

      It may be like that here in the not too distant future, but hopefully distant enough that it won't affect me too much. 

      Jim

    • Posted

      In emergency the NHS is very good but less urgent things they just don't have the capacity to cope with.

      I don't know about your ER but here you can wait up to five hours to see a doctor or nurse practitioner and sometimes about two hours to see a triage nurse to be asessed.

      Part of the problem is that people cannot get appointments with a GP so go to A&E (ER) GP's in the main work 9 to 5 and no weekends.

      The GP's at the practice I go were working a three day week but all seem now to work four days due to lack of doctors. One who has had a few pregnancies works very little and a husband and wife team do Job Share.

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