Acute urinary retention.... Need advice on options please.
Posted , 19 users are following.
Hello all,
My husband had a crisis on Saturday night with acute urinary retention, absolutely nothing coming out and left at the mercy of Aand E for several hours in agony. Now home with a catheter, awaiting test results ( PSa etc) and an appt. with a urologist. I am terrified it is cancer but trying not to think about that to much so now throwing myself into researching BPH and our options so we are well informed at our appt. I don't want to accept surgery or strong drugs forever if there are other options.
I would bery very much appreciate any advice from you lovely gents on supporting my husband and any success with alternatives to avoid surgery ( saw palmetto, pumpkin oil etc) .
Maybe be I should mention he is 54 ,in very good health generally but has a ' slow' flow in the mornings for a few years . I am 4 months pregnant with our first long awaited child and need someone to give me a kick up the bum to start thinking positive!!
many thanks in advance for any advice
Ali
0 likes, 134 replies
stinger212 aliL
Posted
My point is that once you get used to self catherizing, anxiety drops and you guys will have a clear mind to decide on what is the right procedure for your situation. Plenty choices out there but it is your call, not ours. Have read all postings and the pros and cons stated here on all procedures and no doubt all written with best of intentions. But like I did, ask those experienced with BPH issues about how they treated it and take what makes sense for your situation.
Bottom line is that you guys make the final call on what to do next and by all means, avoid paralysis by analysis. Ask, listen, brainstorm with Hubby and decide. That goes with what doctors tell you as well. Best of luck...cheers.
cartoonman stinger212
Posted
But yes, learning to cath gives you (collectively) control over the situation, which is WAY better than the alternative!
aliL
Posted
i firslt wanted to say to say a massive Thankyou for the advice re self caths. Hubby had his catheter out today and they tried to give him rubber non lubed caths to bring home. He refused them thanks to the advice on here and has come home with pre lubed speedicaths.... Great
Can I ask if you think he needs the Tamsulosin now he is self cathing? Does the Tamsulosin help flow or is his bladder better off trying to ' retrain ' itself without drugs?
Thankyou ou all again for your fantastic support
Ali
gbhall aliL
Posted
Tamsulosin (Flomax) is an alpha-blocker that relaxes the muscles in the prostate and bladder neck, making it easier to urinate.
Tamsulosin may cause dizziness or fainting, especially when you first start taking it or when you start taking it again. Be careful if you drive or do anything that requires you to be alert. Avoid standing for long periods of time or becoming overheated during exercise and in hot weather. Avoid getting up too fast from a sitting or lying position, or you may feel dizzy.
Tamsulosin can affect your pupils during cataract surgery. Tell your eye surgeon ahead of time that you are using this medication.
Generally, I think it takes some time to start to work, and can be quite hard to tell if it does anything anyway. Sometimes you can only be sure it helps when you stop !
derek76 aliL
Posted
I once asked the nurse at my GP practice what was the most complained about drug, She said, Tamsulosin and that is by wifes!
jimjames aliL
Posted
To your specific question, as another poster said, "it depends". While not really necessary there may be scenarios where your husband wants to decrease his cathing intervals by increasing his natural urination. More lifestyle choice I think,then what is good or not good for the bladder. But of course there are the side effects to contend with as well.
Personally I rehabilitated my bladder over the course of a couple of years to the point where I could almost stop. So then I introduced Daily Cialis to see if it could get me to the pont where I could stop self cathing completely. It almost did, but not quite, so I stopped taking it seeing no real benefit.
Got to experient with these things, we're all different. But right now, with your husband new to self cathing, best to just concentrate on the basics. Have him measure his urine output with a 500ml plastic cooking cup noting how much comes out naturally and how much comes out through the catheter.
If more than 400ml comes out through the catheter at any one time then he has to increase the number of times he catherizes each day.
Later on, you might want to get more agressive and try and keep the total bladder volume under 400m which would be the sum of his natural void and the catherized void.
Jim
jimjames
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Jim
oldbuzzard aliL
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I'm going to disagree with some of the self cathing advocates - its certianly a WAY better option than a foley, or many of the more invasive, potentially problematic procedures (like TURP) and can free yo to live a reasonably normal life, but its far from ideal. Its up to your husband, but if there's a way to pee normally and not have to rely on a cath - even a handy, well concealed one, it would be plan "A" for me.
There is a reason for his retention and he should see a urologist to have the necessary tests to determine what it is. There are (lots of threads on them here) new, non-invasive outpatient procedures available that weren't even a few years ago like PAE, Urolift and Rezum. The liklihood is that your husband can have something done with pretty quick recovery/minimal side effects that will solve the problem and free him from any catheter if that's important to him.
jimjames oldbuzzard
Posted
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As a self cathing (CIC) "advocate" it's unclear what the "disagreement" is. I don't think anyone has said it's "ideal". What we have said is that it's a viable option either short or long term.
Short term, CIC allows you to extend the "watch n' wait" period letting you consider current options in an unhurried manner, as opposed to being rushed into a decision because you're afraid of locking up or doing damage to your kidneys.
Longer term, CIC lets you wait for better options. The latter is what I have been doing for the past couple of years and during that time my bladder has been rehabilitated to the point where most of the time I void naturally and only need CIC on occasion.
Frankly, at this point CIC has become so fast, painless and easy that I would be hard pressed to try any of the current procedures or operations in that all of them carry some risk.
Jim
aliL
Posted
JimJames.... I may well come back to you on the bladder muscle info soon
Old Buzzard...... He is passing urine normally now since the catheter was removed. He says he feels empty , nurse did say he could cath to check but he's not too keen on doing that if its not needed. We are now on a waiting list to see a urologist....... Are there any tests you think we should ask for? How do they know it is only BPH and not cancer? He was thinking of having another PSA in a few weeks but from what I gather it's not that reliable.... Wonder if we should do the PA3 urine test?
Or were you thinking more along the lines of BPH not cancer?
I do appreciate that at his age he may well have some cancer cells show up that would never cause a problem and don't want to 'over treat' something that could well be left.
Thanks again gents
oldbuzzard aliL
Posted
6 is kind of high for a PSA, but as has been pointed out, could well have been inflated due to his temporary condition. Another PSA test isn't a bad idea just to make sure that 6 isn't real - but its highly doubtful he has cancer and on the remote chance he does, what they call watchful waiting is often the best approach, as only 5% ever grow enough to be an issue and there are ways of isolating which ones are most aggressive.
Most likely this is just a lousy couple of weeks that won't repeat - I hope that's the case.
derek76 aliL
Posted
No reason that he should have any cancer cells it is really not that common. The media and cancer charities run so many scare stories that peoples first though now turns to the Big C.
The tissue removed at my last procedure when I was 78 did not show any and as I have said my PSA is now 0.74.
jimjames aliL
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Jim
cartoonman jimjames
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jimjames cartoonman
Posted
The other thing is that it's very hard to compare one against the other because the kidneys can dump significant amounts of urine in a very short time. So, that could account for the difference sometimes. For example, one ultrasound showed a larger bladder volume POST void than PRE void. So how is that possible? Probably because they had me drink a gallon of water prior to the test! In the real world, probably not so dramatic a kidney dump.
Then there are the "studies". One study suggests that even self cathing doesn't always empty the bladder to zero where they compared to ultrasound. That would favor ultrasound as more accurate. But then another study says bladder scanners underestimate which supports cartoonman's experience.
A little off topic, but one thing I have found is that by changing my pelvic position a little in a half squat, I can sometimes drain 10-50cc more out of the bladder. But then again, I have a bladder diverticulum which confuses the issue because tilting the pelvis simply might be emptying the diverticulum into the bladder which then comes out of the catheter.
Maybe someone without a diverticulum could try changing pelvic positions and/or a half squat when the catheter stops flowing and see if anything more comes out.
Jim
cartoonman jimjames
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derek76 jimjames
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jimjames derek76
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Jim
derek76 jimjames
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The NHS is supposed to have an 18 week limit for the initial consultant appointment and treatment. It rarely happens. Some parts (very few) of the country have 'choose and book' where you can pick your hospital and consultant after finding the best option.
Last year I waited 26 weeks to see a neurologist when the hospital website said that it should be 12. I was then referred to a neurosurgeon. The waiting time was said to be 34 weeks so I arranged to see one privately. I stayed on the NHS list as well and when I last asked it had gone out to 39 weeks.
jimjames derek76
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Jim
derek76 jimjames
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You normally just see the same consultant but at a different location.
jimjames derek76
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Jim
derek76 jimjames
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I don't know about your ER but here you can wait up to five hours to see a doctor or nurse practitioner and sometimes about two hours to see a triage nurse to be asessed.
Part of the problem is that people cannot get appointments with a GP so go to A&E (ER) GP's in the main work 9 to 5 and no weekends.
The GP's at the practice I go were working a three day week but all seem now to work four days due to lack of doctors. One who has had a few pregnancies works very little and a husband and wife team do Job Share.