Add me to list of people freaking out!
Posted , 5 users are following.
Hi All,
First of all, finding this forum has been one of the only things that has calmed me over the last week. I am a 36 yr old male and over the last year I have had several bouts with what appeared to be stomach flu but always following same pattern after a rich meal I wake up in middle of night with indigestion followed by several hours of combination of diarreah and vomiting. This was happening every few months until recently it has happened much more frequently.
The symptoms usually go away after a few hours and then I am left feeling achy for a the next 24 hrs or so. I have all the same symptoms you all have including the greasy stool and for first time feelings some pain on left side and back. Although as I've spent 72 hrs straight on google I'm not sure what is real any more 😦
I was so excited as I finally had my appetite back today and after eating some plain pasta I have the feeling of something being stuck in my throat.
I have received normal blood work back and an ultrasound scheduled for tomorrow. Like many, I have convinced myself this has to be PC because the symptoms keep checking those boxes.
I know it's very unlikely for someone my age but so is getting CP as I've never been a big drinker or had a acute symptoms before. I guess I'm hoping it's gallstones and maybe some other issues but I can't shake this feeling it's not. Not really sure the point but I guess regardless of the diagnosis there is certainly something wrong and I guess I just wanted to join the community, I'll keep you posted thanks!
0 likes, 5 replies
eugene51909 troy33410
Posted
same systomps 13 plus months and I'm 23...
vedawms troy33410
Posted
First, don't panic...
Second, if you're eating rich meals and that causes problems, then don't do that. Follow an approved "be nice to your gut" diet and see what happens. Don't drink. This will hurt you more than anything, literally.
Third, it's good that you are getting more tests. Have you had recent lipase levels checked (especially during an episode)? That can be a good diagnostic starting point. I don't think lipase is part of a standard CBC panel, not sure. I usually ask for LFTs (liver function tests).
Fourth, think hard about the location and nature of the pain. You may be psyching yourself into something it's not. Distract yourself and see if it helps.
Fifth, get yourself a good gastroenterologist with knowledge of IBS, pancreatitis, etc. Get a specialist's opinion, and see if there are additional tests they want to run.
The more concrete information you have, hopefully the better you will feel. Don't take the cancer leap until you can rule other things out. Use your gastroenterologist to your best advantage here!
Please do keep us posted!! And remember not to panic.
Shortie79 troy33410
Posted
Stay away from Dr. Google, it’ll cause you to freak out. Given your age, unless you have a family history, cystic fibrosis, or Pancreas Divisum then it’s unlikely you even have CP. A normal CBC won’t really show anything but a liver function test will. I was born with Pancreas Divisum (rare condition when you’re pancreatic ducts don’t fuse together), in my case it caused CP. The doctors took over a year to diagnose my pancreas condition and even longer to diagnose CP. The pancreas is the hardest organ to diagnose given its location, therefore be very patient. Your diet and symptoms sound more gallbladder or IBS related but everyone is different. My blood work never showed pancreatic symptoms but my liver enzymes always elevated during an attack. I was 37 when diagnosed with CP and I’m currently 39. I will have my pancreas removed due to my condition in August. You can live without your pancreas nowadays but you need to be on a low fat and carb lifestyle. Make sure you’re seeing a proper GI.
Stupage22 troy33410
Posted
sorry dude, i hope for your sake its gallstones or gallbladder related, and not CHRONIC pancreatitis . CP is a b***h, and the path and progression are well known despite medicine's apparent denial of what to do.
It will not likely kill you, at least not anytime soon. Some say there's increased risk of pancreatic cancer for CP patients, others say not. the bad news is that you'll live another 30 years, and most of the time you'll be in pain.
Before long you'll graduate to narcotics, and you'll need an empathatic pain specialist to write your prescriptions for opiates. Good luck with this, it is the most important thing you do in the next year, is to find the right pain doctor. Don't just sign up with the first doc you see, I reccomend you visit at least three, or as many as you can until you find the right guy to help you with THIS particular disease. Not just a pain doc that has many CP patients, but a doc that's had success treating CP. Please don't be afraid to ask if he's had REPEATED success with CP, and don't let yourself be intimidated, this is too important. In fact, Pain Control is the only thing modern medicine has to offer, despite what they tell you about stents, digestive enzymes, and NEVER let them talk you into surgery. I had a Whipple procedure, basically remove half the pancreas, along with the duodenum and part of the stomach, all in hope of decreasing the pain, and frankly after six months recovery in the hospital, my pain was worse not better, and I am now an instant Type 1 insulin dependent Diabetes .
Good Pain Control is the best you can hope for, and that means narcotics and the doc that will prescribe them. F**k all that voodoo accupuncture, deep breathing, trigger point pressure ...... blah blah blah. I've had 12 attempted nerve blocks, only one time did it work for about 60 days .
after 35 years of marriage, and 10 years of CP, my wife got "sick and tired of taking care of a sick old man", and left me for another guy. Be as patient as you can with your caretaker, doing this alone sucks
thats my two cents..........
vedawms Stupage22
Posted
I second this. Every word.