add your experience please

Hello Chris

Sorry to hear your suffering , I too get frustrated because it's an invisible illness you feel like family and friends don't believe you , all I did today was walk to the doctors and back and felt like I'd been run over by a steamroller had to go to work after and been in pain all day hips, upper and lower back , shoulders, ribs and neck all in constant pain , no painkillers touching it , it takes away your happiness and they you feel like your family don't support you cuz it's all in your head !!!

Gentle hugs to you x

Hello Chris, I used to say to my husband all the time how much pain i am in felt like it fell on deaf ears partly why i joined this site. I wanted someone to believe me and that i am not just saying i am pain for attention or that i am a hypocondriact. It is painful and your body is sensitive to even the lightest touch , my husband is a big man well to me as i am only 4ft 10 so i always remind him i am a delicate flower when we hug. I say to him i wish he could feel the pain just for a few mins just to know what it feels like. Unless you have it i just dont think you get it. i know he loves me and i understand he doesnt like to see me in pain. hope this helps. Try get him to give you a gentle massage.

Hi Chris, I was diagnosed with fibro last year after months of visiting various Gp's and the saying that nothing was wrong. A rhumatologist finally diagnosed me and put me on medication which helps but obviously does not make the problems go away. I have chronic neck and back pain, headaches, lightheadedness, extreme tiredness where I can sleep for hours and hours and still not feel refreshed, ibs, stomach and chest pain, sore swollen muscles , leg twitches, hand and feet cramps, sore throat, breathlessness as well as health anxiety so half the time I am convinced that I am dying of a terrible disease. I get a lot of floaty objects and flashes in my eyes and feel as though i am about 80 when I am only 21 !! I understand how hard it is convincing others of your problems because there is nothing "physically wrong". My dad will often make comments like "you really need to sort your sleeping out, you've slept for this long and you are still tired and yawning all the time?" and my friends find it hard to relate because they think "well if you feel constantly ill there must be a reason or a medicine to get rid of it". It is hard and a daily struggle to combat the tiredness. pain and worry. I hope your husband can understand how frustrating it can be and how down it can make you feel x

Thankfully my family are good, they have seen me have really bad days when I can't get out of bed, because of pain, nausea, mygrain and dizziness. It's so called friends I have the problem with because they don't see these days, and because when they see me I look fine.

i get stiff pain that aches

a tenderness pain all over that just the thought of being touched is to much 

shooting and stabbing pains .

fatigue that comes out of nowhere and turns me into a zombie 

anded to that i cant blurred vision ,headaches  dizziness 

nausea. and bouts of vomiting ,bouts of constipation,and diroeh

food  drug and alchol sensistives,

anexity and panic attacks  .the list goes on there are at last count 26 symptoms to fibro thank the lord you dont get them all at once . 

i mostly suffer pain /fatigue  depression  the other symptoms come and go  .good luck with explaining it hun iv had it for 10yrs my family still dont get it .

 

Go to fmnetnews.com and then I the right hand side is a list at the top is a letter to normals.  I showed this to my partner when I was first diagnosed and really seemed to help him understand me better. Good Luck 

thank u all very much for your input it's appreciated maybe if he reads this he will stop rolling his eyes when he hears me say "ime sore"